Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate You, Mcdonalds


lorka150

Recommended Posts

lorka150 Collaborator

Okay, McDonalds (in Canada, at least) uses Mother Parker's instant coffee for their decaf.

I drank it over the course of my gluten free diet, and although have been feeling better, not 100%. I don't drink it every day, but I go through times were I drink it more often.

Anyway - I think it might have gluten, OR I got cross contaminated (because they are making the coffee) at McD's.

I'm a little angry.

About mid-way through my "I am certain this meal is gluten free" dinner (made it at home - steamed fish and veg - my eyes started to cross. Then, HORRIBLE brain fog, then the WORST headache ever! I felt like my skull was being crushed! That had never happened, but I do understand that symptoms can change throughout various glutenings. And I do always get brain fog first.

Wow. It sure hurt. I shoved two tylenol down my throat so fast!

It went away (the headache), but man... Now I am getting some of my other symptoms, but oddly, not the gastro ones. Either way, a symptom is a symptom.

The point is, I think I shall never consume a McD decaf coffee again.

That was unpleasant.

Oh, and the weird thing is, I know I haven't had one in awhile, and I was feeling really good these last few days.

So Mother Parker's decaf coffee? I think it contains gluten or casein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cindy Chabot Newbie

I understand your frustration. I am currently dealing with being glutened, I'm not sure where or how but it has happended. My skin is so itchy and my head also hurts. I also dealt with the gastro problems. Sometimes have celiac disease just sucks and we have to live with it, although sometimes it is just so difficult. I hope you feel better soon

mart Contributor

My kids love McDonald's french fries, but I don't dare buy them anymore. Although they do fry them separately from the chicken nuggets, the employees use the same gloved hands to pick them up as they do to pick up the nuggets. I'm so paranoid, I guess it's because my celiac disease son is still so underweight even after being "gluten-free" for 4 months. Anyway, I once got up the nerve to ask them to change their gloves, but the girl just looked at me weird and didn't do it. She just served them with the same gloves. So I just threw them away and drove home with some very disappointed kids. That was our last trip to McDonald's.

lizzy Apprentice

i too am going through a gluten accident and am still trying to find the culprit, i am going to eat rice for the next week untill i can figure it out. i had a coffee at starbucks on wensday and after drinking it my cheast felt really tight and i couldnt breath propaly. i wasnt certain if it was the cafine or somthing else but as the day went on i felt sicker untill i stared having seizures , now to day after sleeping most of yesterday away my hand tremor is back and the tinging i have in my body. so what ever it was was alot for me to be this sick. its so frustrateing because once its consumed theyre nothing you can do but wait it out.

Merika Contributor

Flavored coffee can contain gluten. Vydor had a great post on that a while back, with links.

As for unflavored coffee - well, if the basket has been put down on a counter that bread crumbs (buns, muffins....) are on, and some stuck to the bottom and then coffee was brewed through it, you could definitely be sick from that.

At coffee shops, I've been getting an Americano (espresso shot with hot water - so about the size of a coffee) and haven't been glutened yet from it (knock wood). That way mine is made fresh. It's also not stored in a large coffee urn (urn?) that may have previously contained flavored coffee.

Merika

lovegrov Collaborator

I'm no Starbucks fan, but all their coffees are gluten-free except a couple that they add some sort of chips to after brewing. Although you should always check before drinking, flavored coffees are almost without exception gluten-free.

richard

darlindeb25 Collaborator

:unsure: Richard and I will never agree on this, but I know for a fact that flavored coffee's quite often do CONTAIN GLUTEN! I was reading the different flavored teas the other day from the company that claims gluten-free, Celestial Seasonings, and they stated on the box, this tea is not gluten free, this tea may contain gluten. A good many of the flavored coffees have a spice added to them and they are not gluten free. Just be very careful and always ask to read the ingredients of any flavored coffee you want to purchase. I worked in food service and everything they get in has ingreds listed on it--if they say they cant show you, then dont purchase it. PLEASE! I have been glutened by flavored coffee, hazelnut to be exact--so always be careful. Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mytummyhurts Contributor
Okay, McDonalds (in Canada, at least) uses Mother Parker's instant coffee for their decaf.

I drank it over the course of my gluten free diet, and although have been feeling better, not 100%. I don't drink it every day, but I go through times were I drink it more often.

Anyway - I think it might have gluten, OR I got cross contaminated (because they are making the coffee) at McD's.

I'm a little angry.

About mid-way through my "I am certain this meal is gluten free" dinner (made it at home - steamed fish and veg - my eyes started to cross. Then, HORRIBLE brain fog, then the WORST headache ever! I felt like my skull was being crushed! That had never happened, but I do understand that symptoms can change throughout various glutenings. And I do always get brain fog first.

Wow. It sure hurt. I shoved two tylenol down my throat so fast!

It went away (the headache), but man... Now I am getting some of my other symptoms, but oddly, not the gastro ones. Either way, a symptom is a symptom.

The point is, I think I shall never consume a McD decaf coffee again.

That was unpleasant.

Oh, and the weird thing is, I know I haven't had one in awhile, and I was feeling really good these last few days.

So Mother Parker's decaf coffee? I think it contains gluten or casein.

<{POST_SNAPBACK}>

So, why do you think the coffee's not safe? Could you have been glutened from another source?

darlindeb25 Collaborator

I agree, I dont think it was the decaf coffee that made you ill, but I have no idea what else you may of had throughout the day that may have contained gluten or maybe something else you cant tolerate now. Could be so many things. I know I have never had a problem with McDonald's fries or hashbrowns. My son is a manager of McDonald's and I know they are careful, this is in the US though. Deb

VegasCeliacBuckeye Collaborator

It could have been eating at McDonalds also...

Folks forget that Fast Food can be devastating to your stomach -- sometimes just eating there will hurt.

Also, this brings up another great point I was talking to my mother about the other day. Celiacs always tend to believe that when they get diarhea that they were "glutened" -- they often forget about the fact that normal folks get diarhea all the time also -- from the body not liking a certain meal to spicy foods to even mild food poisoning -- so, just a friendly reminder that we may not be "glutened" every time the big "D" shows up -- sometimes we have the same reactions as other people.

the problem is we get so trained into beleiving that every little stomach problem is based in Celiac - -we forget that we can get common ailments and indigestion like other people

Just my two cents....

p.s. I hate decaf -- never saw the point :lol::P

lorka150 Collaborator

Ha, thanks but I would NEVEr eat at McDonald's! Just was grabbing a drive-thru coffee.

Candy Contributor
Okay, McDonalds (in Canada, at least) uses Mother Parker's instant coffee for their decaf.

I drank it over the course of my gluten free diet, and although have been feeling better, not 100%. I don't drink it every day, but I go through times were I drink it more often.

Anyway - I think it might have gluten, OR I got cross contaminated (because they are making the coffee) at McD's.

I'm a little angry.

About mid-way through my "I am certain this meal is gluten free" dinner (made it at home - steamed fish and veg - my eyes started to cross. Then, HORRIBLE brain fog, then the WORST headache ever! I felt like my skull was being crushed! That had never happened, but I do understand that symptoms can change throughout various glutenings. And I do always get brain fog first.

Wow. It sure hurt. I shoved two tylenol down my throat so fast!

It went away (the headache), but man... Now I am getting some of my other symptoms, but oddly, not the gastro ones. Either way, a symptom is a symptom.

The point is, I think I shall never consume a McD decaf coffee again.

That was unpleasant.

Oh, and the weird thing is, I know I haven't had one in awhile, and I was feeling really good these last few days.

So Mother Parker's decaf coffee? I think it contains gluten or casein.

I guess it's the Celiacs who can't eat anything,I mean face it ,it's not Mcdonald's fault.Cellies'll have to make all their own special food,and stick too it.I'm not trying to make the rest of the world gluten free.Or maybe there should be a whole gluten free market ( including irritant-free coffee flavoring),since most things are thickened with flour.
cornbread Explorer

I wouldn't be surprised if it was the coffee - or rather, the coffee lid... If I buy coffee at coffee places , I very often change the lid for a fresh one, because I've noticed that they often use their palm to press the whole lid down - a palm that has very likely just handled some kind of gluten filled baked goods (or milk, which for us casein-free folks is just as bad). Call me paranoid, but so far no coffee shop glutanimations or caseinations!! :ph34r:

lorka150 Collaborator

No way, I don't think you're paranoid. This morn I went out for coffee with my dad and he grabbed me a lid (after sharing it in the hand with his huge Starbucks Breakfast cookie <_< ), and put it on the table, face down. I nudged it in the trash and grabbed another and I said, "ONE CRUMB, dad!"

And we laughed - because it's so serious, but so silly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.