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Breastfeeding

Rebekah3

By Rebekah3
in Related Issues & Disorders

Recommended Posts

Rebekah3 Rookie
Rebekah3
Posted

Hey all,

I've been diagnosed with presumptive Celiac disease (all positive blood tests, no biopsy yet. See the Gastro next week). I am nursing my 8 month old. I nursed my first for 19 months, and I planned to let this one self-wean too. My question is this: Is breastfeeding reasonable while transitioning to a Gluten Free Diet/ active celiac? My symptoms are mainly neurological and probably some vitamin deficiencies. I'm also a Type 1 diabetic, which has it's own challenges with breastfeeding. Has anyone done this? If I was a treated Celiac (gluten free already) breastfeeding would be fine, no? But will continuing to do it through the transition be ok? Thoughts? Experiences?

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tshep Newbie
tshep
Posted

You can absolutely breastfeed while gluten free! Our entire family has been gluten free since my daughter was diagnosed with Celiac a little over 2 years ago. That means my 9 month old has never had any exposure to gluten, in utero, or through breastfeeding, and now through the introduction of solids. He has no deficiency, growing like a weed, starting solids on track, hitting all his milestones wonderfully. Just eat plenty of raw, whole foods. In fact since Celiac is generally considered hereditary  (though not necessarily), by continuing to breastfeed, you are giving your baby the best possible foundation for a healthy digestive system. Way to go, mama!

  • 1 year later...
ZCeuz Newbie
ZCeuz
Posted

Breastfeeding is one of the biggest gift a mom can give her baby. Not just from a nutritional point of view but also psycho-developmental perspective.

Of course, the healthier the mom, both physically and psychologically, the better for her baby.

pschwab Enthusiast
pschwab
Posted

We have been completely gluten free in our household for the past year since my two year old was diagnosed with celiac. I had a new baby two months ago. The pediatric gi dr told me to introduce gluten through breastfeeding between 4-6 months. He said this was based on a study saying introduction at this age has been shown to help stop celiac from occurring. Just because a child has the gene doesn't mean they have to develop celiac. So if you were nursing during that time, which it sounds like you were, you should be fine going gluten free. If you are worried, I would talk to a gi doctor to see if you need to continue to expose your little one to gluten. If they recommend you do, I would ask your significant other to feed them a minimal amount each day outside the house. Then wash the baby's mouth (brush any teeth they might have) and I would assume nursing would be safe for you. This is all my opinion and I highly recommend talking to a dr to confirm, but I wouldn't stop nursing until both you and the baby are ready.

StephanieL Enthusiast
StephanieL
Posted
On 6/11/2017 at 5:40 PM, pschwab said:

We have been completely gluten free in our household for the past year since my two year old was diagnosed with celiac. I had a new baby two months ago. The pediatric gi dr told me to introduce gluten through breastfeeding between 4-6 months. He said this was based on a study saying introduction at this age has been shown to help stop celiac from occurring. Just because a child has the gene doesn't mean they have to develop celiac. So if you were nursing during that time, which it sounds like you were, you should be fine going gluten free. If you are worried, I would talk to a gi doctor to see if you need to continue to expose your little one to gluten. If they recommend you do, I would ask your significant other to feed them a minimal amount each day outside the house. Then wash the baby's mouth (brush any teeth they might have) and I would assume nursing would be safe for you. This is all my opinion and I highly recommend talking to a dr to confirm, but I wouldn't stop nursing until both you and the baby are ready.

This isn't exactly what they are saying. They suggest ACTUAL gluten introduction at that time.  There is no guarantee that gluten is passing from Mom to Baby via breastmilk at any time.  

pschwab Enthusiast
pschwab
Posted

Our pediatric gi specialist and my sister-in-law's pediatric allergist said gluten definitely comes through breast milk. My nephew has a gluten allergy and she couldn't eat gluten while nursing him or he would have a reaction every time.

Victoria1234 Experienced
Victoria1234
Posted

My mom did not bf me at all. The recipe for formula, given by the doctor, had milk, Karo syrup and cream of wheat. Can you believe it?  I was a very fat baby.

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cyclinglady Grand Master
cyclinglady
Posted

Unfortunately, the reality is that celiac experts STILL do not know when a baby should be exposed to gluten.  

Read this:

Open Original Shared Link

 

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
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      Fiber Supplement

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      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
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