Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening symptoms five days to a week after consumption?


hopefulinmybody

Recommended Posts

hopefulinmybody Apprentice

Hi,

A week ago I accidentally bought and put in my mouth a sunflower seed cacao treat at LAX airport. I put it in my mouth, chewed, looked down at the label and saw it has wheat. I spit it out and gargled, brushed my teeth, etc. And then I tried to forget about it. I felt okay for about five days. . . and then, by this past weekend, and until now I have fatigue, muscle stiffness, and some anxiety. Of course it could be a tiring life and anxious conditions in life too.

Does this happen to celiacs to get a delayed reaction to a glutening or does everybody have glutening symptoms come on within 24 hours?

I've been diagnosed and gluten-free for five years but this is the first time I KNOW I put gluten in my mouth. I had a lot of fatigue for two years after diagnosis but lately it's been better, now this!

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Oh, it is hard to say....everyone responds differently.  Here is some information about antibodies rising after a glutening:

Open Original Shared Link

i hope you feel better soon!  Try not to worry.  What's done is done!  Either you got glutened or you did not.  Focus on feeling better.  ?

 

Darren Apprentice

I'm sure there isn't a single celiac who has made a mistake or ingested gluten without even knowing it at the time. It happens. Don't stress about it, an occasional glutening is to be expected and isn't going to harm you all that much in the grand scheme of things as ping as it isn't frequent. Just focus on moving forward you are obviously doing a great job managing this damn disease. Don't be hard on yourself!

Darren Apprentice

As long not as ping....darn autotype :) 

hopefulinmybody Apprentice

Thank you everyone! I really appreciate it and the link to the Celiac Disease Center in Chicago.

mommida Enthusiast

I have seen some claims that a Celiac's blood in a petri dish will react for up to a week once gluten was added.

 

Missy Joy Newbie

I have always had my symptoms of ingesting gluten at least 4 days after. It makes it difficult to figure out what I ate that was cross-contaminated but I usually can pinpoint it when I think about what I ate 4 days ago. It's like clockwork - 4 days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
firewrangler Newbie

Me too Missy.   Four days.  It has made sorting this out very difficult to say the least.

melprkr Rookie

I have just gotten over a glutening. This one was NO FUN AT ALL, as I know none of them are.  But this one really took me back.  Worst I have ever had.  Anxiety was through the roof.  It took mine about a week to show up full blown.  I had small symptoms along the way.  It wasn't until a few days after having a weeks worth of anxiety what was actually going on.  I have done the same as you before however my symptoms were not near as bad.  This one came from actually ingesting what I thought was safe waffle fries.  I have been dealing with this now for about 3 weeks and am finally starting to feel more like me.  Hopefully yours won't last like that especially since you have been gluten-free for so long.  As everyone says we can all make mistakes. You just have to focus on getting better, because you will get better.

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748

    Anna Costa
    Newest Member
    Anna Costa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.