Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I have Celiac Disease?

texasguy90

Recommended Posts

texasguy90 Newbie
texasguy90
Posted

Hey Everyone, 


Proclaimer: I am a 26 year old male with a relatively healthy diet, I've already had a colonoscopy at the age of 22 due to blood when pooping. During the colonoscopy they found a large amount of polyps.


I'm concerned that I may have Celiac Disease. My symptoms include diarrhea (soft stools on a good day), bloody stools, severe light-headedness when using the restroom or right after eating, stomach pain/cramping, gas, bloating, low energy, and frequent headaches. When I do have gluten, I have diarrhea, stomach pain, gas and light-headedness shortly after with frequent back-to-back-to-back-...etc trips to the restroom. Does this sound like Celiac Disease? Or maybe IBS?


I have a doctor’s appointment coming up in March. Should I remove gluten from my diet now or wait until speaking to a doctor? 


Thank you! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SLLRunner Enthusiast
SLLRunner
Posted
50 minutes ago, texasguy90 said:

Hey Everyone, 


Proclaimer: I am a 26 year old male with a relatively healthy diet, I've already had a colonoscopy at the age of 22 due to blood when pooping. During the colonoscopy they found a large amount of polyps.


I'm concerned that I may have Celiac Disease. My symptoms include diarrhea (soft stools on a good day), bloody stools, severe light-headedness when using the restroom or right after eating, stomach pain/cramping, gas, bloating, low energy, and frequent headaches. When I do have gluten, I have diarrhea, stomach pain, gas and light-headedness shortly after with frequent back-to-back-to-back-...etc trips to the restroom. Does this sound like Celiac Disease? Or maybe IBS?


I have a doctor’s appointment coming up in March. Should I remove gluten from my diet now or wait until speaking to a doctor? 


Thank you! 

Hi Texas Guy,

Welcome.  If you are going to be tested for celiac disease, you don't want to cut out gluten because you can get a false negative.

Can you get in to see your doctor sooner? 

Do you have the ability to email your doctor or do phone appointments? If so, I certainly would contact him/her with your concerns and ask for a sooner appointment. 

cyclinglady Grand Master
cyclinglady
Posted

I am sorry that you are sick!  :(

The only way to know if you have celiac disease is to get tested:

Open Original Shared Link

You must be consuming gluten daily or the tests will be inaccurate!  

Symptoms:

Open Original Shared Link

Please do not settle for an IBS diagnosis.  I personally think it is just code for "I Be Stumped".  There is a reason for all your symptoms.  You are your best health advocate, so do not give up!

You can also have more than one thing going on, so your doctor should re-check your colon, rule out Crohn's Disease, SIBO, and a zillion other possible things.  

Take care!  

GFinDC Veteran
GFinDC
Posted

Hi Texasguy,

Definitely stay on gluten until all testing for celiac is completed.  the testing is usually a blood sample to test for gliaden antibodies, and then an endoscopy later  to take biopsy samples of the small intestine.  You want to get the full celiac panel, not just the ttg.

It's much easier to stay on gluten throughout the testing process than to go off gluten and then back on it for 12 weeks to be tested later.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.