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I Just don't know

zenjess1980

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zenjess1980 Contributor
zenjess1980
Posted

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

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cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum!  Glad to hear that you are in remission.  Have you been gluten free since your cancer diagnosis?  

 

zenjess1980 Contributor
zenjess1980
Posted
  • Author
5 minutes ago, cyclinglady said:

Welcome to the forum!  Glad to hear that you are in remission.  Have you been gluten free since your cancer diagnosis?  

 

Hello, thanks for the welcome. No i have not been gluten free since the diagnosis. That's when they also did the biopsy for celiac which came back negative. With the bloodwork positive, some of my other symptoms/disorders, and the fact that i get some type of dermatitis, i can't help but to wonder if I'm not at least gluten or wheat sensitive.  

cyclinglady Grand Master
cyclinglady
Posted

You might find this old thread helpful:

I would seriously research the benefits of a gluten free diet.  It certainly can not hurt you provided you eat healthy whole foods and not processed gluten-free junk.  See if symptoms resolve. 

 

zenjess1980 Contributor
zenjess1980
Posted
  • Author
7 minutes ago, cyclinglady said:

You might find this old thread helpful:

I would seriously research the benefits of a gluten free diet.  It certainly can not hurt you provided you eat healthy whole foods and not processed gluten-free junk.  See if symptoms resolve. 

 

Thank you, i did find it interesting and fascinating. 

cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, zenjess1980 said:

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

Make sure every medication and supplement is gluten free!  Dang!  Even your lipstick!  

zenjess1980 Contributor
zenjess1980
Posted
  • Author
3 hours ago, cyclinglady said:

Make sure every medication and supplement is gluten free!  Dang!  Even your lipstick!  

Will do. Thank you. 

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Gemini Experienced
Gemini
Posted
On 4/5/2016 at 9:19 PM, zenjess1980 said:

Hello everyone. I'm new to this forum. I'm not quite sure what to say anymore. It's been a several year ordeal.  My bloodwork came back positive for Celiac Disease about 8 years ago, but my biopsy 3 years ago came back negative (I was eating gluten at this point.) When they did my biopsy they ended up finding MALT Non Hodgkin Lymphoma of the Duodenum. Anyway, in remission from Cancer and just wanting to feel better and BE better.

I have been diagnosed with Hashimotos Thyroiditis, Diabetes type 2, Fibromyalgia, Bipolar 2, Migraines, ADHD, TMJD, and Generalized Anxiety Disorder and am on a plethora of medication. 

I am seeing an integrative MD tomorrow afternoon, and going to bring this up to him.  Something, something's gotta give.  Just not really sure where to turn or what to think anymore.

 

-Jessica

Jess.......your list of conditions reads like the Who's Who of Celiac Disease!  I am just floored and disturbed over the response you got from the AMA crowd.  What I do know is this......I have Hashi's also and with the gluten-free diet and thyroid hormone replacement, things have calmed down and my thyroid is much easier to manage. Most of your conditions are all based in inflammation and once you start living strictly gluten free, you may be surprised at how well your body responds. Fibromyalgia, ADHD, TMJD and the anxiety problem are not a diagnosis.  Those are symptoms of a deeper problem and Celiac is one of the biggest offenders in creating them. It may take awhile but I really think you will see big improvements, over time.  I never have anxiety EXCEPT when I am glutened and then it's BAD!

I am glad you are seeing an integrative MD because they are generally better at this than mainstream MD's.  It may be entirely possible that you will be able to ditch many of the meds you are on.  Except the thyroid hormone......but that's just hormone replacement and not really medication.  Be patient but stay very gluten free because you have Celiac Disease and most of what you have was most likely caused by it.  Mainstream docs rarely connect the dots.

Good luck and keep us informed!

zenjess1980 Contributor
zenjess1980
Posted
  • Author
2 hours ago, Gemini said:

Jess.......your list of conditions reads like the Who's Who of Celiac Disease!  I am just floored and disturbed over the response you got from the AMA crowd.  What I do know is this......I have Hashi's also and with the gluten-free diet and thyroid hormone replacement, things have calmed down and my thyroid is much easier to manage. Most of your conditions are all based in inflammation and once you start living strictly gluten free, you may be surprised at how well your body responds. Fibromyalgia, ADHD, TMJD and the anxiety problem are not a diagnosis.  Those are symptoms of a deeper problem and Celiac is one of the biggest offenders in creating them. It may take awhile but I really think you will see big improvements, over time.  I never have anxiety EXCEPT when I am glutened and then it's BAD!

I am glad you are seeing an integrative MD because they are generally better at this than mainstream MD's.  It may be entirely possible that you will be able to ditch many of the meds you are on.  Except the thyroid hormone......but that's just hormone replacement and not really medication.  Be patient but stay very gluten free because you have Celiac Disease and most of what you have was most likely caused by it.  Mainstream docs rarely connect the dots.

Good luck and keep us informed!

Thank you very much for your welcoming and very helpful response. I really appreciate it :) Today is my first day gluten free, and yes, I plan to stay that way! Thanks again!

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