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Vitamin D supplement?


kam00096

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kam00096 Contributor

I had 2 positive blood tests for celiac around 2 months ago and after struggling to decide what to do next, due to very long waiting times for endoscopies, I decided just to go gluten-free. I ended up with some other non-related serious health problems so wasn't as strict about it as I would have liked to begin with but for the last 3 weeks or so have been better.

A couple of weeks ago I found out I have a pretty bad vitamin D deficiency and high parathyroid hormone (calcium fine) which the doctors think is because of the celiac. They've put me on a really high dose of vitamin D for 7 weeks then will retake bloods. Am just wondering if they should have waited until I'd been gluten-free for longer because surely at the moment I'm still not going to be absorbing it properly because everything's still damaged and not had time to heal? Or are medications absorbed differently? Seems like it might be a waste of time to take it at the moment?


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captaincrab55 Collaborator

OK,   How low was your Vitamin D level??

 

kam00096 Contributor

Honestly I'm not sure (there's been a lot going on) but the doctor said it was 'in my boots' and low enough to be messing up my parathyroid. 

cyclinglady Grand Master

Your small intestine is long!  You could have some severe damage in sections, but some nutrients may still get through.  I would take the Vitamin D.  When I was first diagnosed, I was very anemic.  My iron stores were practically nil.  I took iron supplements for a few months until I saw an upward trend.  That's what your doctor might be looking for.  A little goes a long way to helping you heal!  

Vitamin D is important.  I am no longer low in any nutrients based on lab results.  I do get my vitamins from natural foods now, but was happy to take them when I was ill.  Now I get most of my D from the sun because I live in sunny Southern California!  

captaincrab55 Collaborator
 

Take the time to find out how low your Vitamin D was.    

 

Honestly I'm not sure (there's been a lot going on) but the doctor said it was 'in my boots' and low enough to be messing up my parathyroid. 

 

frieze Community Regular

hopefully you are not taking those little green footballs.....

GFinDC Veteran

There is some good info on the Vitamin D Council website.  They say you can't get enough vitamin D from foods (usually), so sunshine or supplements are helpful.

Open Original Shared Link

 


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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