Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick on vacation...so frustrated!

icelandgirl

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

Yes, this will be a complaining thread.  I apologize in advance.

I'm on vacation and I've been glutened.  I have no idea by what, but I'm so frustrated that I just want to cry.  My husband works super hard for us.  I'm a stay at home mom of 3.  Every paycheck for the past year we've been putting some money aside to take everyone to the beach.  Starting on day 3 I have felt bad.  I've had the massive D, body aches, headache and utter exhaustion.  I've laid on my bed in tears over the cramping in my gut.  Today we had arranged to take a boat out and we couldn't cancel so my husband took the boys.  I had to stay right by the bathroom.

Ugh!!  Thanks for listening.  The rest of the trip I'm eating bananas, blueberries, chicken, potatoes and well cooked veggies.  Nothing else. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I'm so sorry! Great big huge hugs! {{{{{{{{{{{{{{{{{{{{{{ Icelandgirl }}}}}}}}}}}}}}}}}}}}}}}}}}

manasota Explorer
manasota
Posted

Jeez, i am sooooooooo sorry!  That really stinks!  So very disappointing!  You have every right to complain, cry, stomp your feet--whatever helps you to vent.   Great big hugs to you, Icelandgirl!!  Lots of hugs.

cyclinglady Grand Master
cyclinglady
Posted

Oh no!  I am so sorry that you are sick!  My last glutening was in  July.  A whole year has gone by and I confess, I have NEVER eaten out again!  I just order coffee.  The benefits of eating out (convenience) just don't outweigh the risks (being sick) for me. 

I hope you feel better soon!  

Hugs!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thank you all so much!  I don't eat out ever because I got sick last summer.  I do the same as you, cyclinglady, I order coffee.  I ate out once, at a gluten free bakery...but I was starting to have issues already...so something from the day before.  I've cooked everything myself...now I'm thinking I've gotten cc'd somehow in the kitchen of this condo.  My husband wants us to get an RV and do all traveling that way to keep me safe.  Sigh...one good thing...this glutening has shown me just how far I've come.  I used to feel like this every day...

cyclinglady Grand Master
cyclinglady
Posted

Well, I confess we do have an RV.  I grew up with one, but my hubby did not.  He never even camped.  

It is gluten free.  It allows us to travel and sight see without worry.  If we can find a safe restaurant, then we'll go for it.  If not, we'll skip it and I'll prepare a meal.  

We just spent the last three nights camped in our RV in the driveway while we got new sewage and fresh water lines.  We wanted to avoid all the dust when they were breaking walls and then when patching.  No glutening for us!  We did lots of prep work to keep the dust at bay.  It makes for a great guest room too.  

We are heading out of the country again this year.  Am worried about staying safe.  But we have done it in the past.  We just have to eat from a grocery store if we can't find a suitable restaurant.  So, often, it's just a cold meal.   My glutening last year occurred days before I left to visit my parents.  I suspect two products but I'll never know for sure.   Am packing a lot of Lara Bars this time for sure!  

We camp at the beach and love it.  We bring bikes, surf, and meet up with other families.  We travel and explore our state and we've gone across country a few times.  We have plans to travel more when our daughter is in college.  

Maybe, it is not a glutening.  Maybe it's a bug.  That's what I thought last summer, as I had lots of intestinal issues, abdominal pain, vomiting, etc.  I just had anemia when I was diagnosed, so I thought that I was mistaken.  Got home and tested a month after I became ill and my antibodies were sky high.  Yep, it was a glutening.  

The good news is that I have been well now for a year.  So, you'll feel better soon!  And no, it did not take a year to get well!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thanks cyclinglady...the RV sounds great and safe!  I'm fairly sure that this is gluten...but I'm just hoping that it isn't weeks to get better like last time.  I'm eating super simple...baked a piece of chicken and roasted potato and zucchini for dinner.  I'll keep doing that and drinking water.  It's the worst being on vacation and wishing you could go home!

Good luck on your international trip...so cool that you don't let this stuff stop you from traveling!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

      @Jmartes71, Have you tried a naturopathic or holistic doctor? Some posters in the past have commented theirs were more helpful than mainstream doctors.
    2. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      @HectorConvector, Have you tried taking 500 mg of the Thiamine Mononitrate that you have left? Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand. Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency. No harm in trying it. Neuroplastic...
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I...
    4. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748
    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.