Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick on vacation...so frustrated!


icelandgirl

Recommended Posts

icelandgirl Proficient

Yes, this will be a complaining thread.  I apologize in advance.

I'm on vacation and I've been glutened.  I have no idea by what, but I'm so frustrated that I just want to cry.  My husband works super hard for us.  I'm a stay at home mom of 3.  Every paycheck for the past year we've been putting some money aside to take everyone to the beach.  Starting on day 3 I have felt bad.  I've had the massive D, body aches, headache and utter exhaustion.  I've laid on my bed in tears over the cramping in my gut.  Today we had arranged to take a boat out and we couldn't cancel so my husband took the boys.  I had to stay right by the bathroom.

Ugh!!  Thanks for listening.  The rest of the trip I'm eating bananas, blueberries, chicken, potatoes and well cooked veggies.  Nothing else. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

I'm so sorry! Great big huge hugs! {{{{{{{{{{{{{{{{{{{{{{ Icelandgirl }}}}}}}}}}}}}}}}}}}}}}}}}}

manasota Explorer

Jeez, i am sooooooooo sorry!  That really stinks!  So very disappointing!  You have every right to complain, cry, stomp your feet--whatever helps you to vent.   Great big hugs to you, Icelandgirl!!  Lots of hugs.

cyclinglady Grand Master

Oh no!  I am so sorry that you are sick!  My last glutening was in  July.  A whole year has gone by and I confess, I have NEVER eaten out again!  I just order coffee.  The benefits of eating out (convenience) just don't outweigh the risks (being sick) for me. 

I hope you feel better soon!  

Hugs!  

icelandgirl Proficient

Thank you all so much!  I don't eat out ever because I got sick last summer.  I do the same as you, cyclinglady, I order coffee.  I ate out once, at a gluten free bakery...but I was starting to have issues already...so something from the day before.  I've cooked everything myself...now I'm thinking I've gotten cc'd somehow in the kitchen of this condo.  My husband wants us to get an RV and do all traveling that way to keep me safe.  Sigh...one good thing...this glutening has shown me just how far I've come.  I used to feel like this every day...

cyclinglady Grand Master

Well, I confess we do have an RV.  I grew up with one, but my hubby did not.  He never even camped.  

It is gluten free.  It allows us to travel and sight see without worry.  If we can find a safe restaurant, then we'll go for it.  If not, we'll skip it and I'll prepare a meal.  

We just spent the last three nights camped in our RV in the driveway while we got new sewage and fresh water lines.  We wanted to avoid all the dust when they were breaking walls and then when patching.  No glutening for us!  We did lots of prep work to keep the dust at bay.  It makes for a great guest room too.  

We are heading out of the country again this year.  Am worried about staying safe.  But we have done it in the past.  We just have to eat from a grocery store if we can't find a suitable restaurant.  So, often, it's just a cold meal.   My glutening last year occurred days before I left to visit my parents.  I suspect two products but I'll never know for sure.   Am packing a lot of Lara Bars this time for sure!  

We camp at the beach and love it.  We bring bikes, surf, and meet up with other families.  We travel and explore our state and we've gone across country a few times.  We have plans to travel more when our daughter is in college.  

Maybe, it is not a glutening.  Maybe it's a bug.  That's what I thought last summer, as I had lots of intestinal issues, abdominal pain, vomiting, etc.  I just had anemia when I was diagnosed, so I thought that I was mistaken.  Got home and tested a month after I became ill and my antibodies were sky high.  Yep, it was a glutening.  

The good news is that I have been well now for a year.  So, you'll feel better soon!  And no, it did not take a year to get well!  

icelandgirl Proficient

Thanks cyclinglady...the RV sounds great and safe!  I'm fairly sure that this is gluten...but I'm just hoping that it isn't weeks to get better like last time.  I'm eating super simple...baked a piece of chicken and roasted potato and zucchini for dinner.  I'll keep doing that and drinking water.  It's the worst being on vacation and wishing you could go home!

Good luck on your international trip...so cool that you don't let this stuff stop you from traveling!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    2. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    3. - Theresa2407 replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    4. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Aretaeus Cappadocia replied to Anne G's topic in Related Issues & Disorders
      2

      celiac disease and braces

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,705
    • Most Online (within 30 mins)
      7,748

    Gigisboysx2
    Newest Member
    Gigisboysx2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
    • Aretaeus Cappadocia
      Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.