Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick on vacation...so frustrated!

icelandgirl

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

Yes, this will be a complaining thread.  I apologize in advance.

I'm on vacation and I've been glutened.  I have no idea by what, but I'm so frustrated that I just want to cry.  My husband works super hard for us.  I'm a stay at home mom of 3.  Every paycheck for the past year we've been putting some money aside to take everyone to the beach.  Starting on day 3 I have felt bad.  I've had the massive D, body aches, headache and utter exhaustion.  I've laid on my bed in tears over the cramping in my gut.  Today we had arranged to take a boat out and we couldn't cancel so my husband took the boys.  I had to stay right by the bathroom.

Ugh!!  Thanks for listening.  The rest of the trip I'm eating bananas, blueberries, chicken, potatoes and well cooked veggies.  Nothing else. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I'm so sorry! Great big huge hugs! {{{{{{{{{{{{{{{{{{{{{{ Icelandgirl }}}}}}}}}}}}}}}}}}}}}}}}}}

manasota Explorer
manasota
Posted

Jeez, i am sooooooooo sorry!  That really stinks!  So very disappointing!  You have every right to complain, cry, stomp your feet--whatever helps you to vent.   Great big hugs to you, Icelandgirl!!  Lots of hugs.

cyclinglady Grand Master
cyclinglady
Posted

Oh no!  I am so sorry that you are sick!  My last glutening was in  July.  A whole year has gone by and I confess, I have NEVER eaten out again!  I just order coffee.  The benefits of eating out (convenience) just don't outweigh the risks (being sick) for me. 

I hope you feel better soon!  

Hugs!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thank you all so much!  I don't eat out ever because I got sick last summer.  I do the same as you, cyclinglady, I order coffee.  I ate out once, at a gluten free bakery...but I was starting to have issues already...so something from the day before.  I've cooked everything myself...now I'm thinking I've gotten cc'd somehow in the kitchen of this condo.  My husband wants us to get an RV and do all traveling that way to keep me safe.  Sigh...one good thing...this glutening has shown me just how far I've come.  I used to feel like this every day...

cyclinglady Grand Master
cyclinglady
Posted

Well, I confess we do have an RV.  I grew up with one, but my hubby did not.  He never even camped.  

It is gluten free.  It allows us to travel and sight see without worry.  If we can find a safe restaurant, then we'll go for it.  If not, we'll skip it and I'll prepare a meal.  

We just spent the last three nights camped in our RV in the driveway while we got new sewage and fresh water lines.  We wanted to avoid all the dust when they were breaking walls and then when patching.  No glutening for us!  We did lots of prep work to keep the dust at bay.  It makes for a great guest room too.  

We are heading out of the country again this year.  Am worried about staying safe.  But we have done it in the past.  We just have to eat from a grocery store if we can't find a suitable restaurant.  So, often, it's just a cold meal.   My glutening last year occurred days before I left to visit my parents.  I suspect two products but I'll never know for sure.   Am packing a lot of Lara Bars this time for sure!  

We camp at the beach and love it.  We bring bikes, surf, and meet up with other families.  We travel and explore our state and we've gone across country a few times.  We have plans to travel more when our daughter is in college.  

Maybe, it is not a glutening.  Maybe it's a bug.  That's what I thought last summer, as I had lots of intestinal issues, abdominal pain, vomiting, etc.  I just had anemia when I was diagnosed, so I thought that I was mistaken.  Got home and tested a month after I became ill and my antibodies were sky high.  Yep, it was a glutening.  

The good news is that I have been well now for a year.  So, you'll feel better soon!  And no, it did not take a year to get well!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thanks cyclinglady...the RV sounds great and safe!  I'm fairly sure that this is gluten...but I'm just hoping that it isn't weeks to get better like last time.  I'm eating super simple...baked a piece of chicken and roasted potato and zucchini for dinner.  I'll keep doing that and drinking water.  It's the worst being on vacation and wishing you could go home!

Good luck on your international trip...so cool that you don't let this stuff stop you from traveling!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.