Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recurring Back Itch


RiceGuy

Recommended Posts

RiceGuy Collaborator

I was just thinking about how when I was little I often had an itchy back. I recall my mother thinking it might be an allergy to nightshades, since she has such an allergy. She also would have a back itch, and kept a back scratcher handy. For me it would come and go, but never any rash or anything, just an itch. It was sorta all over too, so I'd just scratch around until it faded enough to ignore. That would take anywhere from a few minutes to nearly an hour. This went on for a number of years, but it did eventually stop.

Now I'm wodering if this was a gluten reaction. Has anyone else had anything similar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

I come from a long line of back scratchers! I don't get this nearly as often now that I'm gluten free, so you could be on to something...

mart Contributor

My celiac disease son definitely has back itch daily and all over sometimes too! He also has no rash. I'll bet it is caused by celiac disease. Glad to know yours went away!

Rusla Enthusiast

As I write this I am going mad with not just itchy back but head etc. I have had to go back on gluten for this week, which ends tomorrow. When I was off of gluten I did not have an itchy back, head, etc. Now I am at work and losing my mind from it, I would say there is a correlation.

missylynn1 Newbie
As I write this I am going mad with not just itchy back but head etc. I have had to go back on gluten for this week, which ends tomorrow. When I was off of gluten I did not have an itchy back, head, etc. Now I am at work and losing my mind from it, I would say there is a correlation.

i feel your pain for years doctors told me that it is in my head. finally called doctor and told him he had to do something i ended up having dermatitis herpetaformis which is an allergy to gluten. had biopsy of stomach and also have sprue. so keep on your doctor till you find out. good luck!!!!

skbird Contributor

I have noticed that when I have gluten, I get itchy around my collar bone area. This sometimes happens when I have corn, too, but mainly non-organic corn.

I used to always have an itchy back in the winter, and last year it stopped (I had just gone gluten free). But I also was taking in regular supplemental oils so I figured that was the reason. However, this year my back isn't feeling like that and it's cold already, so it is different. Maybe gluten?

Stephanie

jerseyangel Proficient

I have a problem w/ itching (no rash) on my arms, back, thighs and the inside of my ears. Before gluten-free, it would get awful--even the water from the shower would sting. I tried changing soap, laundry det. etc. Since being gluten-free, it is much improved--I still get it at times, I don't always know what triggers it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator
I have noticed that when I have gluten, I get itchy around my collar bone area. This sometimes happens when I have corn, too, but mainly non-organic corn.

I used to always have an itchy back in the winter, and last year it stopped (I had just gone gluten free). But I also was taking in regular supplemental oils so I figured that was the reason. However, this year my back isn't feeling like that and it's cold already, so it is different. Maybe gluten?

Stephanie

Now that you mention it, I seem to recall something about the winter time having an effect. I do know that I get serious allergic reactions from GM (genetically modified) corn too. I can eat organic corn with no problems.

Judyin Philly Enthusiast
Now that you mention it, I seem to recall something about the winter time having an effect. I do know that I get serious allergic reactions from GM (genetically modified) corn too. I can eat organic corn with no problems.

RiceGuy

I put a post on earlier today re: itching.

I was going crazy until I changed my shampo, conditioner and body lotion.

I never thought about shampo until lots of people on the forum told me about the shampo issue. It made sence to me since it goes all down your body while in the shower.

My skin is not as dry and i don't have to put lotion on every hr.

Winter is bad anyway for drying your skin.

Good luck

Judy

Rachel--24 Collaborator

I used to be itchy all the time but never thought much about it. I'm just realizing (after reading this) the itchiness went away...probably when I went gluten-free...dont know cuz I wasnt really paying much attention. I had far worse symptoms to deal with. :(

Anyways....since Thanksgiving night I've been itching again. Its not a rash...just prickly/itchy type feelings everywhere. I did have a reaction that night but as far as I know my meal was gluten-free. Now I'm curious about the turkey cuz each time I've had turkey leftovers I've gotten symptoms. Turkeys dont have gluten do they? Mine was from whole foods and I'm pretty sure they dont put anything in their meats but it sure had more flavor then most turkey I eat. :huh: It was juicy and flavorful. Anyone react from turkey? My head feels better today but I'm still itchy. :(

kevsmom Contributor

I also keep a back scratcher handy, because my 17 year old son doesn't want to touch my back to scratch it. If I am really desperate, I will use a pair of scissors or a letter opener. I also have an itchy belly, but I can scratch that myself (as long as I don't get caught - people at work think I'm crazy enough already - I have to watch it with the letter opener too). :)

This has been going on for long before I went gluten-free. As a matter of fact, I inherited the back scratcher from my father, who passed away 10 years ago. He had a iliostomy due to ulcerative colitis many decades ago. I know he was never tested for Celiac. Hmmm.... I wonder?

Rusla Enthusiast
i feel your pain for years doctors told me that it is in my head. finally called doctor and told him he had to do something i ended up having dermatitis herpetaformis which is an allergy to gluten. had biopsy of stomach and also have sprue. so keep on your doctor till you find out. good luck!!!!

I saw the dermatologist who said I couldn't have DH because it was in other places and not the normal places, he was suprised I was gluten intolerant because of my weight. I informed him I know other people with celiac disease who have the same problems right down to the weight. He stood there shocked. I then asked him to do a skin biopsy. We shall see, what becomes of this. I so wonder why doctors can't look outside of the box.

I will not go back on gluten again. Even being back off gluten for one day the itchiness has considerabley subsided. I am so sick and tired of the medical profession. Last week when I had to be on gluten, I felt so sick and cried for the first two days because I was back on it and the only reason I don't feel great yesterday and today is because of gluten residue still in my body.

lovetoeat Rookie

My arms and legs are getting bumps and they itch like crazy!! Could this be gluten related? My IGG blood work came back high but the other two came back really low.....I go back to the doc again tomorrow...

Rusla Enthusiast
My arms and legs are getting bumps and they itch like crazy!! Could this be gluten related? My IGG blood work came back high but the other two came back really low.....I go back to the doc again tomorrow...

It could be or it could be an allergy to other things also. Perhaps keep a diary of what you eat each day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.