Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jumped In Feet First!

SLLRunner

Recommended Posts

SLLRunner Enthusiast
SLLRunner
Posted

As some may recall from my topic "Test Results" started a few months back, I have been through the ringer with getting anyone at Kaiser to listen to me about my digestive issues. I changed insurance, had a long consult with a new GI who specializes in celiac and gluten sensitivity who listened as well as educated me, asked me to try the low FODMAP diet, and then made an appointment with a dietitian  (see her in 2 weeks), and said he has to look at my pathology reports from the endoscope. I will see him in 4 months unless things don't go well.

I have been doing this diet, which is gluten free, and I have never felt better in my life. Three weeks in and I'm not aching as much, my stomach is not hurting (except I made some gluten free cookies from a package and didn't realize they had inulin, which I am not supposed to have right now. Bad stomach ache! Lesson learned), and I am starting to get my energy back. 

I will not eat gluten again, so my focus with the dietitian will be eating gluten free forever. I will never know if I have celiac, but I do know that gluten is the main problem. I will know for sure when I start adding back in foods that are higher FODMAP, such as the asparagus I love so much and can't eat right now.

Family members we are staying with are understanding and accommodating because their daughter is gluten free.

Just wanted to share my success!  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

It is always nice to hear of a success, and someone feeling better!  Yeah!

squirmingitch Veteran
squirmingitch
Posted

Good for you!!! I know this has been such a long painful journey for you SSLRunner but you've reached the end now & I hope you have no more doubts and can live with not having an official dx. After all, your body did give you an official dx, it just isn't signed by a doctor right?

I am thrilled to hear you're feeling so much better!

Yaaaaaaaaaaaaaaaaaaaaaayy!

cyclinglady Grand Master
cyclinglady
Posted

I am so glad for you!  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    2. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    3. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that...
    5. Maggieinsc
      - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

      Thanks for the prompt reply. Interesting that blood test could be caused by other things. I am sure Dr Fincher will get to the bottom of it. I know he ate nowhere near that amt of gluten before the endoscope. Always interested in any new info abt celiac. U can not trust what is said on fb- That would be a piece of bread a day. He didn't even make that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748
    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Gut nutrition supplements?

      By xxnonamexx · Posted

      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      Gluten free Yogurt suggest

      By Jane07 · Posted

      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.