Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

George Macdonald

Recommended Posts

George Macdonald Newbie

Hi! My name is George. I am 13 years of age and I am struggling with a problem. I was diagnosed with celiac about 6 months ago after having stomachs and short stature. I love this new diet now that I am starting to develop muscles. The good things end there. I hate seeing all my friends eat sandwiches, cake, cookies, pizza etc. I also have been dealing with delayed puberty. Is this linked with celiac? Should I tell my parents? Should I see an endocrinologist? Please help me. 

-George 

P.S. An adult didn't write this I am just very educated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome George. Having a celiac diagnosis at any age is tough but it is very hard when you are in your teens. Unfortunately it seems so much revolves around food. All we can really do is try to keep food on us as much as we can so when others are eating stuff we have something also.  Eating before we join friends can help so at least we aren't hungry.  Maybe have a slice or two of gluten-free pizza before you go.  I keep 'treat' foods with me, stuff like chocolate, safe cookies or granola bars etc.

Do talk to your doctor about the puberty issue. Celiac can mess with our hormones but that should resolve after you have healed. You may even find that you have a growth spurt before too long. Hang in there, the fact that you are feeling better is a good thing so concentrate on that if you should happen to be tempted to eat something risky.

You may also want to post in the Post Diagnosis or Teen section as those may get more notice and replies.

ironictruth Proficient
6 hours ago, George Macdonald said:

Hi! My name is George. I am 13 years of age and I am struggling with a problem. I was diagnosed with celiac about 6 months ago after having stomachs and short stature. I love this new diet now that I am starting to develop muscles. The good things end there. I hate seeing all my friends eat sandwiches, cake, cookies, pizza etc. I also have been dealing with delayed puberty. Is this linked with celiac? Should I tell my parents? Should I see an endocrinologist? Please help me. 

-George 

P.S. An adult didn't write this I am just very educated.

Hi George. I agree, you should discuss with your doctor. But before worrying too much, I am thinking back to my junior high/high school days and I remember a few guys basically returning after a summer vacation totally changed! So, you technically might be a bit on the later end, but by no means have you missed the puberty boat. 

Learn how to start making some gluten free goodies on your own. Brownies and pizza crust can be frozen. You may have some fails, but when you find a good recipe, your friends will inquire, try a piece and you can say "yeah, I made them" which is pretty damn cool. 

Ennis-TX Grand Master

Honestly I had very late onset puberty, and a mental delay of interest like 5 years behind everyone else. Made me the real odd ball, top it off with Aspergers and life as a kid was tough. Back then we did not know it was celiac causing me do never want to do anything and always in pain (bloating was always bad and I assumed it was normal). I have no medical references as to the late onset puberty just my personal experiences. As for enjoying other foods....I made it my life to create safe foods and crazy flavor combinations in cooking to enjoy food again. I will PM you some links to simple ideas, and where to get ingredients. You seem like you might be able to do something great starting off early like this. I surprise my friends with some foods as they are very innovative and made with strong flavors and great mixes. Everyone else is eating lunchables and sandwiches and you show up with a container of stir fry and baked goods. Best part is with this disease you can bring your own food almost anywhere including theme parks and theaters. If they can not meet your medical and food requirements with what they provide then you can bring you own to meet your medical, and food requirements, saves alot of money. Good luck.

cyclinglady Grand Master

This is article is oddly timely.....

Open Original Shared Link

I definitely would discuss this with your PED GI and set your mind at ease.  The other members have given you excellent advice!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.