Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just diagnosed, weight loss?


Fbmb

Recommended Posts

Fbmb Rising Star

I had my endo last Monday and I'm waiting to hear from my GI, but since last Tuesday I have been gluten free. I had a baby in May and I still had about 15 lbs to lose before I was diagnosed, but wasn't trying to lose it. Since I've stopped eating gluten (and dairy, since I think I may be a little sensitive right now) I have lost about 3 lbs. I always hear about people gaining weight after going gluten free but I seem to be losing. Is this normal? I'm not worried about it because I'm still about 10 lbs over my pre-baby weight, but I've never really lost weight without actually trying (counting calories, exercise), and now I am. Just wanted to see what you all think.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

It can go either way. Once people heal their guts, they can either gain weight or lose weight. It's not like a one size fits all just the same way when you're undiagnosed, you can be skinny as a rail OR super chunky & anywhere in between.

kareng Grand Master
54 minutes ago, Fbmb said:

I had my endo last Monday and I'm waiting to hear from my GI, but since last Tuesday I have been gluten free. I had a baby in May and I still had about 15 lbs to lose before I was diagnosed, but wasn't trying to lose it. Since I've stopped eating gluten (and dairy, since I think I may be a little sensitive right now) I have lost about 3 lbs. I always hear about people gaining weight after going gluten free but I seem to be losing. Is this normal? I'm not worried about it because I'm still about 10 lbs over my pre-baby weight, but I've never really lost weight without actually trying (counting calories, exercise), and now I am. Just wanted to see what you all think.

But, in a way, you are trying to lose weight & restrict calories.  You have restricted your diet and cut out a lot of calories by not eating dairy and gluten,maybe fast food, etc

 

cyclinglady Grand Master

Karen and SquirmingItch are right.  Losing weight can easily happen.  By not eating out, eliminating dairy, and skipping processed junk food, you are going to naturally lose weight.   I am sad to report that this could just be temporary!  I am gaining as I continue to cheat on my low carb high fat eating plan.  I have diabetes, along with celiac disease (and some more stuff....)  I've been baking gluten-free too much and not only is it affecting my blood sugar, but it's packing on the pounds.  

So, keep up the good work.  Don't toss your old clothes.  I maintain three sizes now:

1) Tiny -- reserved for fast weight loss after a glutening (working on never having this happen again...oh, except, I like to travel and it's happened when I am away from home for long extended periods).  While I look good on camera, but I am usually weak, have gut issues and high anxiety (to name a few).  Malabsorption is SO not worth it.  :(

2) Small -- when I'm good about a whole foods, low carb, high fat diet  My blood glucose loves this!  Harder to maintain during holidays.  Best to use my glucose meter all the time to help me better monitor my carb/sugar intake.  Realistically, it's the best long-term health option for me.   :wub:

3) Normal -- Plenty of fat to get me through a medical crisis.  Allows me to crank up mountains on my bike for 40, 50 or more miles.  Goes better with my gray hair!  Am bigger than my slender athletic teen daugher!   I'm happy with this size!  :)  Just wish my diabetes was happy with this size.  

 

 

GFinDC Veteran

I agree, it can go either way, weight gain or weight loss.  We have had people who were heavy at diagnosis and they lost weight.  Not everyone is skinny with celiac disease.  Also, healing the gut can take months to years.  So it isn't easy to gain weight for some people.  We are all individuals and our bodies react individually.

High protein foods are a good idea at the beginning of the gluten-free diet.  Our bodies need protein to heal.

Beverage Proficient

I dropped 30 lbs in about a month after going gluten free, it was several pounds a day at first, then slowed to about a pound a day, then a pound a week.  Underneath the inflammation I was an emaciated woman with bone and muscle loss, a real sagging drawn face and felt like crap.  I also had bad deficiencies in B vitamins and thyroid, so work with a good doc (I recommend naturopath) to help your body to rebuild.

I do NOT believe it was from suddenly eating a better diet, my doc agrees.  I was eating really good whole and organic foods mostly, but with a little bread and oatmeal every day.  It was all inflammation / water retention.  The doc says that underneath the inflammation, I had wasted away like is typical with Celiac's, but the inflammation was covering it up. 

I have since stopped losing and have gained back about 7 lbs, but it's muscle and bone. I feel much stronger after about a year and a half, can do more exercise, but still working on it.

At first after going gluten free, since I had been starving, my body was craving food BIG TIME. I would joke that it was like having a teenager in the house. I'd make a huge gluten-free breakfast (2 eggs, gluten-free sausage or leftover meat or on corn tortillas like tacos), lunch a huge bowl of plain coconut yogurt with nuts and protein powder and fresh fruit plus an apple, afternoon snack of apple or nuts, dinner a huge plate of meat and vegetables in various concoctions.  I'd go back for seconds or even thirds. My body was craving nutrition now that it could start to absorb it.

I'm not as crazy hungry like that anymore, I have pretty much the same foods, but one good plateful at dinner is usually enough.  I don't have to eat teeny plates of food like others my age (60).  I can eat until I'm full up.  So no depriving this girl.

I never did get the big intestonal issues while eating gluten.  My giveaway now if I might have gotten glutened is that I feel more grumbling in the intestines and/or stomach, and I might gain a pound or feel a little bloated.

Take care, it takes awhile for your body to adjust, listen to it and give it time.

 

P.S. Be sure to read label on nuts, they should disclose if facility also processes wheat, but they are not required by law to disclose other sources of gluten like rye or barley (stoopid lawmakers only require wheat disclosure).  Since I was eating a lot of nuts, and I didn't want confusion if I got glutened, so I decided to buy gluten free certified from NUTS.COM. You can sign up for a newsletter and they have specials from time to time.

 

Beverage Proficient

Also like 'cyclinglady' I found I feel the best with more of a whole foods, paleo style diet.  At my local library, I can search a huge catalog for the entire county library system and request Paleo and Gluten Free cookbooks from other libraries in the system, and they send them to my library and I just go pick them up.  So that way I've not had to purchase them all and just take photocopies of my fav's.

I don't do 100% paleo, but it is my guideline and inspiration. I agree with her that processed gluten free foods have repercussions, they are usually high in starch and refined carbs.  I do treat myself to gluten-free pancakes or waffles (on my new waffle maker never had gluten on it ever) about once a month ;oO 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.