Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Splishsplashy

Recommended Posts

Splishsplashy Rookie

Hi guys! I was diagnosed with celiac about a year ago now and when I was first diagnosed my dietician told me that if I was to kiss anyone they would have to go gluten free for two weeks beforehand. Then I didn't really care but now I have my first boyfriend and we've been dating for awhile. I feel bad that he would have to go gluten free especially for that long because I know that can be unhealthy. So my question is, has anyone else ever been told that about the two weeks gluten free thing? I know am I very severely allergic (like waaaaaaay more that most) but still when I was looking up stuff on this I've never seen anyone else who's been told this. So was she wrong, or is it just because I'm so allergic?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
(edited)
1 hour ago, Splishsplashy said:

Hi guys! I was diagnosed with celiac about a year ago now and when I was first diagnosed my dietician told me that if I was to kiss anyone they would have to go gluten free for two weeks beforehand. Then I didn't really care but now I have my first boyfriend and we've been dating for awhile. I feel bad that he would have to go gluten free especially for that long because I know that can be unhealthy. So my question is, has anyone else ever been told that about the two weeks gluten free thing? I know am I very severely allergic (like waaaaaaay more that most) but still when I was looking up stuff on this I've never seen anyone else who's been told this. So was she wrong, or is it just because I'm so allergic?

That makes no sense.  He just needs to not have gluten in his mouth when he kisses you.  A good brushing and flossing and rinseing should be fine.

Edited by kareng
GFinDC Veteran
3 hours ago, Splishsplashy said:

Hi guys! I was diagnosed with celiac about a year ago now and when I was first diagnosed my dietician told me that if I was to kiss anyone they would have to go gluten free for two weeks beforehand. Then I didn't really care but now I have my first boyfriend and we've been dating for awhile. I feel bad that he would have to go gluten free especially for that long because I know that can be unhealthy. So my question is, has anyone else ever been told that about the two weeks gluten free thing? I know am I very severely allergic (like waaaaaaay more that most) but still when I was looking up stuff on this I've never seen anyone else who's been told this. So was she wrong, or is it just because I'm so allergic?

Hi Splishsplashy,

There is nothing unhealthy about going gluten-free for 2 weeks, or any amount of time for that matter.  The only precaution would be that a person who is planning to be tested for celiac disease should not go gluten-free until the testing is completed.  Being gluten-free before testing would make the antibody tests inaccurate.

Also, celiac disease is not an allergy, but it is an autoimmune condition.  Maybe what you meant to say is that you are very sensitive to gluten exposure?

I agree, there is no reason to go gluten-free just for a kiss.  Bah, humbug! :)  But brushing and rinsing would be a good idea, and also waiting an hour after eating.

Welcome to the forum Splishsplashy! :)

Splishsplashy Rookie
1 hour ago, GFinDC said:

Hi Splishsplashy,

There is nothing unhealthy about going gluten-free for 2 weeks, or any amount of time for that matter.  The only precaution would be that a person who is planning to be tested for celiac disease should not go gluten-free until the testing is completed.  Being gluten-free before testing would make the antibody tests inaccurate.

Also, celiac disease is not an allergy, but it is an autoimmune condition.  Maybe what you meant to say is that you are very sensitive to gluten exposure?

I agree, there is no reason to go gluten-free just for a kiss.  Bah, humbug! :)  But brushing and rinsing would be a good idea, and also waiting an hour after eating.

Welcome to the forum Splishsplashy! :)

Yeah I know its autoimmune and not an allergy I just said that accidentally bc I'm so used to saying that when trying to explain to people who don't have it! 

Splishsplashy Rookie
1 hour ago, GFinDC said:

Hi Splishsplashy,

There is nothing unhealthy about going gluten-free for 2 weeks, or any amount of time for that matter.  The only precaution would be that a person who is planning to be tested for celiac disease should not go gluten-free until the testing is completed.  Being gluten-free before testing would make the antibody tests inaccurate.

Also, celiac disease is not an allergy, but it is an autoimmune condition.  Maybe what you meant to say is that you are very sensitive to gluten exposure?

I agree, there is no reason to go gluten-free just for a kiss.  Bah, humbug! :)  But brushing and rinsing would be a good idea, and also waiting an hour after eating.

Welcome to the forum Splishsplashy! :)

So you really think that it would be fine to not worry about it? I just can't think of why they would have said that then! Sorry I really don't mean to sound stupid about this. 

kareng Grand Master
(edited)
7 minutes ago, Splishsplashy said:

So you really think that it would be fine to not worry about it? I just can't think of why they would have said that then! Sorry I really don't mean to sound stupid about this. 

I have never heard that nonsense.  Are you young?  Maybe she thought she could keep you from casual "encounters"?  

He needs to clean his mouth, like I said.  One thing we do - my hub will brush and floss and then eat and drink gluten-free with me.  Then you can be as spontaneous on kissing as you want.

 

I kind of wonder what other nonsense she told you?  Not all dieticians understand Celiac.

 

Now this might be aplicable to people with severe peanut allergies.  I know my son was dating a girl with a peanut allergy - he just didn't eat anything peanut for the whole day before he would see her.

Edited by kareng
Splishsplashy Rookie
2 minutes ago, kareng said:

I have never heard that nonsense.  Are you young?  Maybe she thought she could keep you from casual "encounters"?  

He needs to clean his mouth, like I said.  One thing we do - my hub will brush and floss and then eat and drink gluten-free with me.  Then you can be as spontaneous on kissing as you want.

 

I knod of wonder what other nonsense she told you?  Not all dieticians understand Celiac.

Yeah I'm 17 now so pretty young. Thank you so much for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
1 minute ago, Splishsplashy said:

Yeah I'm 17 now so pretty young. Thank you so much for the help!

Oh! well....if I had known that!  I would have told you you can't kiss anyone until you have dated them for 3 years and are over 25!  lol

 

Splishsplashy Rookie
6 minutes ago, kareng said:

Oh! well....if I had known that!  I would have told you you can't kiss anyone until you have dated them for 3 years and are over 25!  lol

 

Haha, I was just wondering for future reference, I just hadn't thought about it till now  lol

squirmingitch Veteran
3 hours ago, kareng said:

Oh! well....if I had known that!  I would have told you you can't kiss anyone until you have dated them for 3 years and are over 25!  lol

 

:lol::lol::lol::lol:

GFinDC Veteran
3 hours ago, Splishsplashy said:

So you really think that it would be fine to not worry about it? I just can't think of why they would have said that then! Sorry I really don't mean to sound stupid about this. 

Hi,

I am not sure what you are talking about in regards to not worrying about this?

Anyway, we are here to help, so any questions are ok.  We all had questions when we started the gluten-free diet too.

But no, you shouldn't have to worry about kissing until you are 30 or so.  That Karen is too lax. :)

Joking aside, it is good you are trying to figure things out before they happen.  Brushing and rinsing before kissing sounds good, but maybe chewing gum would help also.  It seems like it could anyway, as long as the gum was pitched prior to the spit swapping.  Kinda curious if other people have tried gum chewing to get rid of gluten residue in their mates?

I like your username Splishsplashy! :)

Splishsplashy Rookie
14 hours ago, GFinDC said:

Hi,

I am not sure what you are talking about in regards to not worrying about this?

Anyway, we are here to help, so any questions are ok.  We all had questions when we started the gluten-free diet too.

But no, you shouldn't have to worry about kissing until you are 30 or so.  That Karen is too lax. :)

Joking aside, it is good you are trying to figure things out before they happen.  Brushing and rinsing before kissing sounds good, but maybe chewing gum would help also.  It seems like it could anyway, as long as the gum was pitched prior to the spit swapping.  Kinda curious if other people have tried gum chewing to get rid of gluten residue in their mates?

I like your username Splishsplashy! :)

Thanks!

bpack81 Rookie

Hi! My husband is also super-sensitive and we wait for 36 hours after I eat gluten to kiss. I'm not saying YOU have to wait 36 hours- we don't know that shorter periods aren't safe, we just know that 36 hours is safe. So if you have any remaining concerns about the two weeks - I can tell you for sure you can shorten your longest possible period to 36 hours. I will look forward to hearing whether we can trim any time off our waiting period !! :) Haha. 

  • 1 year later...
Legolass Newbie

I too am very sensitive and have indeed been glutened very badly from kissing. I was 23 when I found out about my diagnosis so it took some trial and error incorporating it into my dating life. I found that if my boyfriends generally brush their teeth and tongue thoroughly and floss before we kiss that I'm fine. They don't need to go completely gluten-free, but some do just because it's easier for us to date that way. It's an awkward thing to bring up on a first date but if a guy isn't a total selfish jerk he will understand. I've also found it helps to make little purse kits and car kits of toothbrushes and floss for the guys I date so we can kiss whenever we like.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.