Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking for Support Group

eeyv

Recommended Posts

eeyv Rookie
eeyv
Posted

I am looking for a group of tweens/teens with Celiac for my daughter to join. She is currently 11 yo and diagnosed with Celiac Disease 6 months ago. She is responding very well to the gluten-free lifestyle, but social situations are challenging. It would be terrific for her to have a group of people her age to share experiences, stories and gluten-free-strategies. We live in the Atlanta area.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I do not know of a group near Atlanta, but I would recommend looking into a celiac camp for this summer.  She might meet lots of "local" kids.  There is one in Warm Springs, GA.  Starts right after school gets out.   Here is more information:

Open Original Shared Link

I am old, but I wanna go to celiac camp!   I do go to Lake Lanier where my family has a lake house, but I still have to think about food.....ugh!  

 

 

kareng Grand Master
kareng
Posted

You might check with the Children's Hospital.  Some of them have support/social groups for kids with food allergies.  I would think the issues would be similiar to Celiac

StephanieL Enthusiast
StephanieL
Posted

There is a group called "ROCK" Raising Our Celiac Kids with locations around the country. 

  • 2 weeks later...
eeyv Rookie
eeyv
Posted
  • Author
On 2/27/2017 at 2:02 PM, cyclinglady said:

I do not know of a group near Atlanta, but I would recommend looking into a celiac camp for this summer.  She might meet lots of "local" kids.  There is one in Warm Springs, GA.  Starts right after school gets out.   Here is more information:

Open Original Shared Link

I am old, but I wanna go to celiac camp!   I do go to Lake Lanier where my family has a lake house, but I still have to think about food.....ugh!  

 

 

Thank-you so much. I'll check it out!

eeyv Rookie
eeyv
Posted
  • Author
On 2/28/2017 at 2:16 PM, StephanieL said:

There is a group called "ROCK" Raising Our Celiac Kids with locations around the country. 

Thanks so much. I'll take a look.

On 2/27/2017 at 6:45 PM, kareng said:

You might check with the Children's Hospital.  Some of them have support/social groups for kids with food allergies.  I would think the issues would be similiar to Celiac

Terrific idea. I will look into this.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      37

      Insomnia help

      Thank you @knitty kitty x
    2. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks. When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did...
    3. melthebell
      - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say. But I welcome advice from members here who have done successful gluten challenges. I know they...
    4. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      What is your plan for the gluten challenge?
    5. trents
      - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Persistent isolated high DGP-IGG in child despite gluten-free diet

      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,508
    • Most Online (within 30 mins)
      7,748
    JamieAnn
    Newest Member
    JamieAnn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you @knitty kitty x
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      What is your plan for the gluten challenge?
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.