Need Help, Still Feeling Yucky

[celiaccecilia]

Hi All,

I am new to the board. I was diagnosed by a positive endoscopy in August 2005. It has been a real rollercoaster for me. Shortly after going on the diet I felt fabulous. (no headaches, body aches, stomach aches, big D etc.). Then I would feel gross for a few weeks and then feel good for awhile and so forth. I have not felt good now for about 3-4 weeks and do not know what I am doing wrong. I have switched all my products...shampoos, etc. to gluten free to the best of my knowledge. I only eat things on the gluten free list I have, and even some of those I don't eat because they make me sick. Is it normal to feel this way while still being so strict on the diet? I couldn't get 2 feet from the toilet for about 12 hours yesterday. I have lost about 10 pounds in the last few months...don't know if that is because I don't dare eat or cause I don't digest. Went to the GI a few days ago, not too helpful, though I found out my iron level is about 50% what it should be. He wants to give me a blood transfusion in a few weeks if it doesn't come up. What do you think about transfusions?

What can I expect with this diet, disease? Could I have more allergies? Do you think I should keep doing what I am doing? Will I feel better soon? Is this normal? Would love to feel better again. Thanks for any replies.

[Felidae]

Have you tried eliminating dairy or soy. I was like you I felt great for awhile and then not so good and back on the Immodium again. But I have been better since eliminating dairy. I tried some cheese again last night for the first time in about a month and I was back on the toilet for this morning.

[celiaccecilia]

Have you tried eliminating dairy or soy.

Yes, I have eliminated dairy, but I haven't eliminated soy yet. Can eating dairy/soy make you have headaches, body aches, etc?

[Rusla]

Yes, I have eliminated dairy, but I haven't eliminated soy yet. Can eating dairy/soy make you have headaches, body aches, etc?

You could have sensitivities or allergies to dairy and soy and they can also cause those.You may be getting glutened and not know from where. I have been glutened yesterday and I don't even know how. I do know because of the reaction and the DH that I was glutened. I have not ate anything with wheat or gluten. So, you may be getting glutened by accident or the dairy and/or soy thing.

[celiaccecilia]

You could have sensitivities or allergies to dairy and soy and they can also cause those.You may be getting glutened and not know from where. I have been glutened yesterday and I don't even know how. I do know because of the reaction and the DH that I was glutened. I have not ate anything with wheat or gluten. So, you may be getting glutened by accident or the dairy and/or soy thing.

Yes, I could be getting glutened, as my family still eats lots of wheat. I will have to try eliminating soy and see if that helps.

Thanks.