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Biopsy and Colonocopy Results


Ennis-TX

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Ennis-TX Grand Master

Doctors called me this morning with biopsy and complete results on my colonoscopy. Seems like in addition to celiac and acid reflux, I now have confirmation on record of Ulcerative Colitis AND IBS. Good news is the biopsies came back negative for cancer, bacteria, etc. Doctors even got me on a prescription that is for the the colitis I need to go pick up this after noon.

But half joking and half serious here.......is there such a thing as a digestive tract transplant? lol Like mine at 27 is as screwed up with ulcers, damaged vili, etc. that it makes my grandmas look good and she is in her 80s. Would not fix the celiac but damn would make life easier with a nice base set of undamaged organs to work with and none of this lower stuff.


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kareng Grand Master

The logistics on a complete GI tract transplant would be crazy!  :o

When my kids were in High School, they did FIRST Robotics.  We used to joke that instead of throwing balls and lifting things, they should make robotic GI systems!  :D

 

But, if you can get some of these other issues under control, it might allow you to expand the range of food that you eat

Ennis-TX Grand Master

I know right but we can dream, imagine a artificial one even. While we still might suffer the other autoimmune responses at least the gut issues would be gone ^.^ . Still would avoid gluten as I have issues with nerve and brain also being attacked but I can think of it as such much less of a burden with less limitation with a artificial gut. Hell might even design one that filters out gluten proteins.

cyclinglady Grand Master

Well, it must be a relief to know where you stand.  My niece has Crohn's (newly diagnosed).  Her medications are helping.  If I could get her to eat healthier, like you.......

GFinDC Veteran

Hi EnnisTX,

I saw an article about cigarette smoking being helpful for people with ulcerative colitis not long ago.  Supposedly helps people get into remission or something.  I am not sure if it is worth considering or if the nicotine patches might do the same thing?  Here's a forum post of UC peeps talking about it and vaping.  Lots of things to consider before doing it I think.

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Xiao Bai Rookie

There is a procedure called fecal transplant, that is considered highly effective for most of your conditions.  Unfortunatly, it is not approved for use in the US for any problem except for C. Difficile.  There are places is Argentina and Brazil that do it, and they are very modern and oriented to foreigners like us.

  • 3 months later...
Victoria1234 Experienced

Wow, so I just googled fecal transplant, and it sounds like there is a website called the power of poop that gives you at home, diy instructions on the procedure. Wow, just wow.


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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