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Who's From Michigan?


StrongerToday

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StrongerToday Enthusiast

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?


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  • Replies 82
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mommida Enthusiast

I'm in Michigan, lower pennisula. Freezing my behind off today, even though I'm wearing long johns.

Laura

hkeener Newbie

I am in Michigan and newly diagnosed... I live in Ypsilanti.

StrongerToday Enthusiast
I am in Michigan and newly diagnosed... I live in Ypsilanti.

I'm in Ann Arbor! Have you checked out the yahoo/ann arbor group? It's at Open Original Shared Link

I just joined over the weekend. I hope you're feeling better! :D

Dangerkitten Newbie

Hi,

Another Michigander here :) just north of Lansing. The snow is just so pretty that I don't care about the cold. Makes me want to bake a nice fresh hot loaf of Bob's Red Mill bread.

Janet

pixiegirl Enthusiast

I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

redheadheather Explorer

Another Michigander (Michiganian?) here! NW Michigan to be exact.


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  • 4 weeks later...
linz boowie Newbie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

darlindeb25 Collaborator

I am a Lawn Guylander now (Long Island, New York) but grew up in Ashley, Michigan. Dangerkitten, Janet, I worked in St. Johns for years. My sister is celiac and a dietician in St. Johns. There is a very nice store in Lansing on the east side that is called "Food For Life". It has a wide variety of gluten free foods and I miss that store here. The owner has only the one store. Deb

Nancy W Newbie
I live on Cape Cod now but I was born and raised in Bloomfield Hills, Michigan!!

Susan :)

I was born in Detroit but my aunt lives in Bloomfield Hills! I wonder if you know her? She lives on echo lane. I live in Miami now but I really miss Michigan

ianm Apprentice

I grew up in the Mt Pleasant area and now live in Ann Arbor.

BabySnooks Rookie
Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?

Hi,

I am from Madison Heights, Michigan. Was gluten-free for 3 1/2 months, now am doing a gluten challenge. I don't know why, since blood work and endoscopy were positive. Who am I to argue with the doctor, I am really enjoying my vacation from being gluten free. LOL

Sharon

Guest Rad

Hi . . .

I grew up 30 miles northwest of Port Huron in the countryside. The nearest town is Jeddo. Am living in New Mexico now. But visit Michigan every other year; only during the beautiful summers.

Dianna

pixiegirl Enthusiast

Nancy! I lived very close to Echo Lane! I had a horse and road him down Echo to a kids camp that was there, they had tons of riding trails there. Small world, no?

Susan

alicegray27 Newbie

Westland MI.

gointribal Enthusiast

I'm from MI, in the Jackson area and I was hoping I could get some help about Celiac. I know if I have it for sure or not but the doctors are checking. I had some blood work done and the only thing that was "bad" was a persecntage in the gluten blood work that they did. I had a colonoscopy done and that was fine. I am have a EDG done next month and I don't know if I should go back on gluten? I have been gluten-free for about 4 months and I can totally tell when I get it in my diet. I am at a loss as to what steps to take, I think my doctor thinks its all in my head but she hasn't said no its not Celiac. Can someone offer some help?

StrongerToday Enthusiast

There are lots of places you can get some help, including this board. Read a lot of messages; post a lot of questions. There is no question too personal or gross (see some of the "poop" threads if you don't believe me!). Locally, I know there's a Lansing area group and a Tri-County group - I don't have the addresses off the top of my head but I"m sure you could google them. If you have trouble let me know.

IMO the diet challenge is proof enough for me. If I eat something and feel sick from it, then I shouldn't eat it. I don't need a piece of paper telling me what I can and can not eat; in my circumstances the paper is wrong. All my blood tests came back negative; but the one time I ate wheat again I was sick as a dog. I also can't process any dairy. I'm giving my GI tract some time to heal, then will try dairy again.

You may want to read Wheat Free/Worry Free and Dangerous Grains. Also, there's lots of good cookbooks out there too - those have been very helpful to me.

You'll find lots of good info and helpful people here, so welcome and good luck!

samrenee Newbie

Hello, I am from Big Rapids Michigan. Diagnosed 2 years ago this Feb 19. I am 40 years old and work for a title insurance company. I recently seperated from my husband of 7 years. I am looking for freinds. I have been alone since I was diagnosed, there are no close support groups for me, or anyone around me with celiac disease. I was also diagnosed with Microscopic Colitis. You can email me or I have yahoo messenger. My messenger Id is: lilith_of_malroy@yahoo.com

SofiEmiMom Enthusiast

Macomb Township, Michigan. Myself and my two young daughters have Celiac.

  • 2 weeks later...
Danielle Newbie

I am in Kalamazoo, MI here. Diagnosed a year ago this month. Life has changed drastically but, I am surviving. :D

printmaker81 Rookie

I'm originally from Georgia, but I am going to grad school at Cranbrook Academy of Art in Bloomfield Hills. Diagnosed about nine months ago and starting to feel like a real person again.

mommida Enthusiast

Cranbrook!!? You are really close to me. I'm about 6 minutes north from DTE/Pine Knob. Let me know if you need help.

Laura

  • 3 weeks later...
Guest lindzay
Hi, Chesterfiled ( I94 and 23mile). Celiac since birth 45 years ago.

hello me i changed my userID. I am now Lindzay.

  • 2 weeks later...
Shagalynn Newbie

Hi there. From Highland. Diagnosed 2-1/2 years ago. Can't wait for the warmer weather to break.

Any fellow Michigan-ders out there? Brrr.... it's too cold already isn't it?
  • 3 weeks later...
annab Newbie

Giulio's Cucina Italiana, Gluten Free Dining in Michigan (Livonia)

Hello fellow Michiganders

I just found a great Italian restaurant in Livonia called Giulio's Cucina Italiana. They offer Gluten free entrees including different pastas with a great choice of sauces. Their website is www.giulios.us

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    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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