Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How do you know when you're glutenated ?


KathleenH

Recommended Posts

KathleenH Enthusiast

Hey guys I know i've asked like 1000 questions and I probably getting annoying! So sorry!! But this is a question I cant seem to find the answer to. How do you know if you have been cross contaminated? Since I've only been gluten free for about a week I don't think I know what it feels like to be well yet so it would be hard to tell this early on right? How do you know if you just have an occasional stomachache/headache or you are eating something that was contaminated? I feel like this is going to be really hard to tell for me. For example I tried a new drink that "golden milk" for inflammation... I made sure everything was gluten free but I got a really bad stomachache after. I'm not sure if the new recipe just didn't agree with me or maybe the cup/pan/spoon I used was contaminated? I guess I'm going to be more diligent with actually cleaning the utensils and stuff I use before hand so I can tell the difference. 

Also while I'm at it I was wondering if anyone has any thoughts on leaky gut? I have read books/articles about this before I even knew I might have celiac disease and they say that if you have celiac you most definitely had a leaky gut first. How do you guys treat your leaky gut? Do you not worry about it? Did you talk to a doctor? 

Again thank you all for being so helpful and I'm sorry if I'm being annoying with all the questions I'm posting. 

Kathleen :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

You may or not be able to tell if you have been glutened.  Some celiacs are silent and sometimes your symptoms change.  You will soon figure it out.

Was that Golden milk certified gluten free?  I think it is easier for newbies to just start with certified foods for piece of mind.  Also Whole Foods are best.  We all have intolerances to various foods.  Too many ingredients and you do not know what is causing your symptoms.  I can not tolerate garlic.  Gee, everyone says it is the perfect health food!  But not  for me.  Xanthan Gum.  It is added to all kinds of processed gluten-free foods.  My husband tolerates it, but not me.  I still get sick from it.  (I bake with other gums?) who knows what you might have reacted to in that "milk".  

There is no fast cure.  Time will heal you, along with a clean diet.

Leaky gut is real.  Research zonulin.   Watch this video from Dr. Fasano, a leading celiac disease researching affiliated with Harvard and Mass General:

 

KathleenH Enthusiast
6 minutes ago, cyclinglady said:

You may or not be able to tell if you have been glutened.  Some celiacs are silent and sometimes your symptoms change.  You will soon figure it out.

Was that Golden milk certified gluten free?  I think it is easier for newbies to just start with certified foods for piece of mind.  Also Whole Foods are best.  We all have intolerances to various foods.  Too many ingredients and you do not know what is causing your symptoms.  I can not tolerate garlic.  Gee, everyone says it is the perfect health food!  But not  for me.  Xanthan Gum.  It is added to all kinds of processed gluten-free foods.  My husband tolerates it, but not me.  I still get sick from it.  (I bake with other gums?) who knows what you might have reacted to in that "milk".  

There is no fast cure.  Time will heal you, along with a clean diet.

Leaky gut is real.  Research zonulin.   Watch this video from Dr. Fasano, a leading celiac disease researching affiliated with Harvard and Mass General:

 

Hm I don't know for sure but I did make it from scratch. I'm gonna five it another try but if it keeps upsetting my stomach I'll just assume its not for me. Thanks for the video I'll be sure to watch it. 

RebekahLynn Newbie

Tumeric (curcumin) can be hard on the stomach. I would wonder if it was that.

KathleenH Enthusiast

Also wondering if you can be cross contaminated if you share a straw with someone who ate something with gluten in it? Its pretty frustrating... I thought i was doing good but then I shared a drink with a straw after they had been drinking beer :(

KathleenH Enthusiast
16 hours ago, RebekahLynn said:

Tumeric (curcumin) can be hard on the stomach. I would wonder if it was that.

Hmm yaa maybe that was it

cyclinglady Grand Master
21 hours ago, KathleenH said:

Also wondering if you can be cross contaminated if you share a straw with someone who ate something with gluten in it? Its pretty frustrating... I thought i was doing good but then I shared a drink with a straw after they had been drinking beer :(

Yep.  I would say yes.  You can get glutened by kissing, being slobbered on by an adorable baby, dipping a spoon from a pasta pot into a gluten-free pasta pot, swallowing airborne gluten-containing flour while baking, grilling chicken on a grill that has had gluten on it (think burger buns), etc.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Cross contamination....I swear so bloody frustrating, especially when you have no clue what made you sick and you spend a week like randomly getting sick then find it. Or it might end up being  some thing else completely randoms and at time not gluten but something else your intolerant to........Damn what I would not give for a star trek styled tricorder lol

I find I can normally narrow down if gluten or something else within 72 hours of it happening because gluten for me causes nerve and neurological issues. I find a bit more fog and depression, along with I end up burning myself cooking  a LOT more as the mix of daze and numbness makes it where I do not notice the heat and am slower to react. Note this is just the CC issues.   Straight gluten in a meal.....floors me literally I lose comeplete motor control and end up violently puking on the floor unable to move with gut wrenching pains. Followed by either D or C for the next day or so and numbness and fog that last a week or more.

 

Jmg Mentor

I don't, at least not always. I'm pretty careful so for a long time now any issues I've had have been with possible contamination rather than a large ingestion of gluten. There's no flashing light or app notification, just odd symptoms that only later I can perhaps tentatively connect to cross contamination. 

When I ate a gluten containing meal by mistake it was easier to tell, there was a massive rash across my chest, I felt brain fog depression etc. Later I got back ache and some joint pain as well as the return of twitching nerves under eye. 

At Christmas time I felt id probably had some cross contamaintion, probably from the use of shared cookware. A few days later I had another bout of optic neuritis which I'd not had for quite some time. 

To be honest I spend more time trying to prevent it happening then worrying about it once it has, if I can't trace it to one meal choice or establishment I try to put it behind me quickly and focus on recovering and staying we,l. The alternative is spending days on end as Sherlock Holmes in the case of the mystery glutening, a role I've played more than enough already!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.