Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

just got my daughter's biopsy results :(


tarab87

Recommended Posts

tarab87 Rookie

my 7 years old daughter's results are in from her biopsy and this what they say...

she 100% has celiac disease 

significant damage to the small intestine and villi all so inflammation 

So from now she's on a stricked diet I have seen the dietician so I no roughly what I am doing.

any one with inflammation of the small intestine... is the inflammation because of the celiac? or could it be something else. I tend not to Google things I like to know from people who are going through this am just wanting to be prepared for wen we go see the consultant to discuss the results. 

I am going to be using this forum a lot now as the help and advise on here is great 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

Yes celiac causes damage and inflammation to the small bowel.  Once she goes gluten free her body will heal and she will feel loads better.

tessa25 Rising Star

It's good to start with soups and stews for a few weeks to help some of the damage start to heal.

Easiest way to deal with school is for her to always bring a bag lunch to school with her. If you make up some chocolate cupcakes and freeze them in that small chest freezer I recommended in the other post then if the school is one where people bring in cake for a child's birthday, have her bring a cupcake with her on that day if you know what day someone has a birthday.

LookingforAnswers15 Enthusiast

Hi, it may be difficult for your daughter, but try avoiding even gluten-free processed food as much as possible. It will help her recover faster. While it does not have gluten, it has a lot of other substances/additives, which may not sit well with your daughter while she is recovering. Pay attention how she reacts to dairy products, eggs, nightshades, corn, oats,etc. At first, due to inflammation and damage, she might not be able to eat them. However, once healed, you can start reintroducing one at the time and see how she reacts. No one likes learning that they have celiac disease but try to look at the bright side... it was discovered fairly fast so she has an excellent chance of recovering and not having any further issues on gluten-free diet. Some people go undiagnosed for a very very long time, which just makes their recovery that much more difficult. Make sure she is 100% gluten-free and you both will do great! Good luck!

cyclinglady Grand Master
31 minutes ago, tessa25 said:

It's good to start with soups and stews for a few weeks to help some of the damage start to heal.

Easiest way to deal with school is for her to always bring a bag lunch to school with her. If you make up some chocolate cupcakes and freeze them in that small chest freezer I recommended in the other post then if the school is one where people bring in cake for a child's birthday, have her bring a cupcake with her on that day if you know what day someone has a birthday.

The teacher might be able to store a small gluten-free cupcake, clearly labeled and well wrapped (I have individual cupcake special containers), in the staff lunch room too.  

cyclinglady Grand Master
9 minutes ago, cyclinglady said:

The teacher might be able to store a small gluten-free cupcake, clearly labeled and well wrapped (I have individual cupcake special containers), in the staff lunch room too.  

Oh, Skittles or other gluten-free candy, are good alternatives too for class parties.  

Gemini Experienced
2 hours ago, LookingforAnswers15 said:

Hi, it may be difficult for your daughter, but try avoiding even gluten-free processed food as much as possible. It will help her recover faster. While it does not have gluten, it has a lot of other substances/additives, which may not sit well with your daughter while she is recovering. Pay attention how she reacts to dairy products, eggs, nightshades, corn, oats,etc. At first, due to inflammation and damage, she might not be able to eat them. However, once healed, you can start reintroducing one at the time and see how she reacts. No one likes learning that they have celiac disease but try to look at the bright side... it was discovered fairly fast so she has an excellent chance of recovering and not having any further issues on gluten-free diet. Some people go undiagnosed for a very very long time, which just makes their recovery that much more difficult. Make sure she is 100% gluten-free and you both will do great! Good luck!

Avoiding processed food is not necessary for everyone. Many people can tolerate small amounts like bread in the beginning.  There is no proof that total avoidance of these products leads to faster healing.  I was in my mid-40's when diagnosed and did not abstain from all processed foods.  I needed to gain weight badly so ate gluten-free bread (toast) in the beginning and did just fine. It is really difficult for kids to eat whole foods only, unless they have to. It will become obvious fairly quickly if they are having trouble with them. Many will also resent the diet if they are forced to eat no mainstream carbs. I am not saying to eat chocolate cupcakes on the second day but gluten-free bread and some cereals should be just fine.  Kids are kids...they will heal faster than we adults do anyway so parents should not feel guilty about giving their kids some gluten-free toast in the morning or making them a sandwich for lunch.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarab87 Rookie

thank you all for your advise and input I do really appreciate it.

it's hard to take in these results but am sure once we in a routine all will be fine 

I will be having a meeting with the school she will be going on packed lunches and I will ask about gluten free snacks or cakes wen it's another childs birthday.

 

CeliacMommaX2 Enthusiast

I just wanted to chime in and say I hope your daughter gets to feeling better soon.  I know how overwhelming it can be as a parent to navigate the celiac world for our little ones.  My daughter was diagnosed at 4 (almost 7 now) and was very sick with a lot of damage.  It takes a while, but you will soon get used to bringing her food where ever you go.  I keep frozen cupcakes (chocolate is the best) on hand for any time she has an occasion that others are having treats.  I found nutella makes an easy, quick icing too (without needing to open an entire can of frosting).  

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,880
    • Most Online (within 30 mins)
      7,748

    juliehegarty
    Newest Member
    juliehegarty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't "scream" of celiac disease I think it is important to go forward with the endoscopy/biopsy while still consuming gluten to ensure it will not be a wasted effort. The last thing you want is to have two different test modalities that unnecessarily contradict one another. So, unless the continued consumption of gluten poses an immediate and significant threat to your health, my advice is to (excuse the pun) "gut it out" until the endoscopy/biopsy happens. There is also the option of temporarily going gluten free and then undertaking a "gluten challenge" in the weeks leading up to the appointment in September. Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks leading up to the day of the procedure. But I would certainly give it longer than two weeks to be sure. And in view of the fact that it could happen sooner if there is a cancellation, I would encourage you to not go gluten free until after the procedure if your health permits. By the way, what are your symptoms? What led you to investigate celiac disease as the cause of your medical issues?
    • RMJ
      I had an endoscopy where there was no visible damage but biopsies showed damage. I even asked beforehand if the endoscope had good enough magnification to see the villi!  I hope you get a clear answer from the biopsies.
    • terrymouse
      I have an endoscopy booked for mid-September to test for Celiac. My gp seems convinced it is celiac and I should eliminate gluten right away, but the gastroenterologist I was referred to says if I'm totally gluten-free then they won't be able to detect celiac from the endoscopy, and I should load up on gluten 2 weeks before the test. So I guess I shouldn't eliminate gluten then? Or stop and start again closer to the appointment date. But I'm also on the wait list in case they can get me in sooner, because I'm losing weight. I don't want to have to go back and do it over again if I can help it. They also were unsure if there isn't something else wrong with my stomach, so that's a possibility. I don't have the details but from what I understood my blood tests results were positive but on the low end. So I'm getting mixed up here, do I go gluten-free or not? Would 2.5 months of being gluten-free make any noticable difference? 
    • knitty kitty
      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
    • ehb
      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
×
×
  • Create New...