Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac disease or leaky gut syndrome


Turner

Recommended Posts

Turner Newbie

Hi my name is Alison. I had a celiac panel done a year ago and it was negative but I still have leaky gut syndrom.  My iron level is down and I have a low Tsh or they say sensitive. I have a lot of cramping, gas, and bloating. I have no idea what to do as doctors in ontario will not help u. I am 45-46 years old. I also have acid reflux and asthma and I am currently doing immunotherapy for dust mites. I never truly feel good and I am tired alot. I thought if I eat healthier I would loose weight but it is not coming off. I even find that fruits and vegetables are causing alot of diahrea as well what is causing this. Is it the natural sugar in the fruit or something all together. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hi Alison and welcome :)

Few questions:

Did you have the full celiac blood panel?

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

Sometime only one or 2 of these markers are tested. If you have your results you could post them. Also were you eating gluten at the time and for weeks before? There's some more info and links on testing here and the forum faq here

Even with a negative test, gluten could still be the problem. I had all your symptoms, tested negative but am gluten free for life based on my reaction to the gluten challenge during testing. Have you heard of non celiac gluten sensitivity? If you've finished with diagnosis, then why not give the gluten free diet a try and see if it helps?

Hope this of help. Best of luck! 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jeffpine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Should I be screened for celiac disease?

    2. - trents replied to Dema's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Eating gluten before blood test

    3. - Dema posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Eating gluten before blood test

    4. - jeffpine replied to jeffpine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Should I be screened for celiac disease?

    5. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Reportable Disease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,098
    • Most Online (within 30 mins)
      7,748

    mcolagiovanni
    Newest Member
    mcolagiovanni
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @jeffpine, please realize that GliadinX is not designed to allow you to eat large amounts of gluten without celiac repercussions. It is designed to counteract cross contamination situations where you might be exposed to small amounts of gluten accidentally such as you might get in a restaurant when you order something that should be gluten free but it is cooked on the same grill with stuff that has wheat. Also remember that the absence of noticeable uncomfortable reactions doesn't necessarily equate to no damage happening to the small bowel lining.
    • trents
      Welcome to the forum, @Dema! The current recommendations for the "gluten challenge" leading up to the day of testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least two weeks. I hope this helps you in your decision. This information represents more recently updated guidelines but you will find older info giving more relaxed guidelines that were found to be not reliable.
    • Dema
      Hi everyone :). I think I have a high likelihood of having celiac and will please Gd have a blood test in 2 days time confirming this. over the past two weeks I’ve been on and off (to max 5 days) gluten to cope with my symptoms however now I can see online that I’m supposed to be having 2 servings of gluten every day for 6 weeks, which isn’t even my normal diet.  should I reschedule my blood test. I would really love for it to be diagnosed soon. Would appreciate any advice! thanks!
    • jeffpine
      WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged, 
    • Jmartes71
      I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?
×
×
  • Create New...