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Pre diagnostic testing questions


Alm2015

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Alm2015 Newbie

I have been dealing with digestive issues and internal inflammation for about 3 years now. I had some blood work done and a CT scan done in December which showed my inflammation levels internally or quite elevated. The gastro did not want to continue to do any testing they thought it was nothing so I'm now seeing and naturopath. I've been off of all allergen food for about 3 months now as I started Whole30  but she told me in order for me to have the Celiac screen that I have to eat gluten for 3 to 4 weeks, I'm worried that I won't make it that long. My symptoms are usually upper abdominal pain, indigestion  back pain, sharp pain in the lower intestines, and constipation, and rarely mucousy stool. My question is how long do I truly need to have the reactions in my body before I can go and have the screen done?


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cyclinglady Grand Master

Yes.  Celiac blood testing measures antibodies which can take months to build up after being dormant (gluten free).  Here is more information regarding testing after being gluten free (gluten challenge):

Open Original Shared Link

I hope  you feel better soon!  

  • 2 weeks later...
Victoria5289 Apprentice
On 5/6/2017 at 5:07 PM, Alm2015 said:

I have been dealing with digestive issues and internal inflammation for about 3 years now. I had some blood work done and a CT scan done in December which showed my inflammation levels internally or quite elevated. The gastro did not want to continue to do any testing they thought it was nothing so I'm now seeing and naturopath. I've been off of all allergen food for about 3 months now as I started Whole30  but she told me in order for me to have the Celiac screen that I have to eat gluten for 3 to 4 weeks, I'm worried that I won't make it that long. My symptoms are usually upper abdominal pain, indigestion  back pain, sharp pain in the lower intestines, and constipation, and rarely mucousy stool. My question is how long do I truly need to have the reactions in my body before I can go and have the screen done?

I'm may want to  it's sounds like a allergy problem only 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
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