Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different gluten foods give different reactions?

BarryC

By BarryC
in Related Issues & Disorders

Recommended Posts

BarryC Collaborator
BarryC
Posted

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
52 minutes ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

I am trying to remember - you are just sort of gluten free?  And don't have celiac?

i think joint pain could be from dehydration.  Beer isn't the best  at rehydrating after sweating.

 

 

BarryC Collaborator
BarryC
Posted
  • Author

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

cyclinglady Grand Master
cyclinglady
Posted

I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle.  No offense meant, but why are you here?  Either trial the gluten-free diet (100%) or find another diet  to help you lose weight or whatever.   

 

ravenwoodglass Mentor
ravenwoodglass
Posted
6 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

As a celiac my reactions to gluten are pretty consistant. The exception to that is when a gluten ingredient is combined with something else I am intolerant to for example soy. Perhaps you have more than one intolerance?

kareng Grand Master
kareng
Posted
8 hours ago, BarryC said:

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

My point about dehydration causing joint pain, still holds.  I guess you could see if you drank beer when you haven't been hot and sweaty and see if it effects you ? Beer usually has very little gluten, so I would look at  the circumstances or other ingredients or the alcohol itself.

But, when you come on asking questions like this, I am not sure what you are expecting for an answer.   Most of us don't play around with eating different gluten foods.

Victoria1234 Experienced
Victoria1234
Posted
10 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

It's kind of mean to come to a celiac board and flaunt drinking regular beer. Just sayin.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BarryC Collaborator
BarryC
Posted
  • Author

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

squirmingitch Veteran
squirmingitch
Posted

You can buy gluten free beers online & have them delivered right to your door. This is one example:

Open Original Shared Link

Or you could ask your local liquor store to order gluten free beer for you. 

Victoria1234 Experienced
Victoria1234
Posted
6 hours ago, BarryC said:

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

So if I can't find gluten-free lasagna noodles in my city, it would be ok to talk about having a long hard day at work and coming home to a fresh baked, gluten filled lasagna  on a CELIAC BoARD? Several servings, in fact! Yes, I do think it's approaching a sin. Your sensitivity level is excruciatingly low.

BarryC Collaborator
BarryC
Posted
  • Author

No Victoria1234 this is NOT just a celiac board. This is a 'celiac and gluten free diet support board'.  I am attempting to get some support. If you are not interested in giving me any, please keep your comments to yourself.  You dont know me or anything about me, and if you think I am a sinner, than obviously you have more issues than celiac disease.

ravenwoodglass Mentor
ravenwoodglass
Posted

Barry I am sorry some folks are giving you such a hard time. You are correct that this is not a group for only those who are celiac. It is a board for people to learn the ins and outs of being gluten free with celiac or gluten intolerance and their freinds and family  That said I came back to this post because after giving it some thought I remembered I do have different reactions to barley malt than I do to wheat gluten. How did I find this out? By drinking a few sips of gluten beers after mowing my lawn a few times.  After I was finally diagnosed.  Was that a bit foolish of me, sure it was but the days were hot and the beer was there.  Long story short, barley malt does not upset my stomach quite as badly as wheat gluten but it does something that a bit of wheat CC doesn't, it gives me terrible tooth and jaw pain.  So yes it is possible that the symptoms you got from those couple of beers are different from what the symptoms might be if you ate a piece of cake. 

It took a while to get used to the taste but I find Redbridge to be toleralble and have tried a couple of the Green's beers. I didn't care for the dark one but the pale one was drinkable though expensive. The ciders like Woodchuck are also nice so perhaps give those a try.  The ciders may be a bit easier to find.

Ennis-TX Grand Master
Ennis-TX
Posted

I was originally not going to respond to this as I assumed it was a troll post. But yes, I recall last time I drank a ale back in like 2010-2012, I got sick withing 10mins and vomiting which normally would take 30mins-2hours for the vomiting to start with solid food.  All my symptoms which are normally spaced out over time with exposure were complied into a much shorter window of starting. No clue how long it lasted I was out cold within the hour in the car til the next morning. Back then did not know it was celiac, but I knew I could not handle beers for some odd reason and stuck ti liquors and mixers.

Also I react differently to inhaled flour, I just get the brain fog, nerve issues, without the major digestive upset.

One other thought between CC and eating straight gluten there is a difference in how severe my nerve issues are and how long my constipation last. Straight gluten will make me loose motor control and collapse on the floor while CC will just cause me to loose feeling in my hands and feet and some some issues walking and handling things, Both result in vomiting etc but the severity is less in CC vs eating straight gluten where I vomit so hard I would have blood in it.

squirmingitch Veteran
squirmingitch
Posted

I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different.

artistsl Enthusiast
artistsl
Posted

I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night.

If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess. 

Whitepaw Enthusiast
Whitepaw
Posted
On 6/20/2017 at 10:47 PM, BarryC said:

 Still waiting for a gluten free beer that is drinkable.

Is Bards available in your area?  I found Bards and Redbridge to be the best, but had to quit both as they  gave me sinus problems. 

I've recently been reading Dr. Gundry's new book, The Plant Paradox. It has helped me with a  new dairy intolerance.   Although a cardiac surgeon, he has shifted focus to the impact diet has on health.  He discusses lectins. Turns out most of the foods I was eating were high in lectins. By choosing lower lectin foods, my recovery has improved.  Joint pain can be a symptom of  a high lectin diet.

Since different foods have different lectin levels, according to this theory, different foods may result in different symptoms.

Scroll down 1/3 of the page to SIDEBAR:LECTINS 101:

Open Original Shared Link

2lonedogs Newbie
2lonedogs
Posted

celiac disease typically screws up your whole autoimmune system. in my case, it took several years to identify all of the intolerances.

there are different responses to different substances... you may have one or several of them depending on the substance. Mine include nausea, abdominal pain, lethargy, brain fog, cramping, muscle tightness (resulting in joint pain), muscle spasm, creepy crawly skin, skin dryness leading to lesions/ psoriasis, diarrhea, constipation, sudden weight gain/loss of 2-3 lbs per day.  

the frustrating part is/was that the more I stayed away from gluten and other offenders, the better/stronger i felt but then i would discover another substance that had been hiding but now was brought to the forefront since the maybe-more-offending irritant was now gone. this went on for a couple years.  i now have a huge list of offenders and very few acceptable foods, but I keep reading and experimenting hoping for a more varied and healthier diet.  

i refer to myself as a human test subject because essentially you have to try something in order to gauge its effect.

Beverage Proficient
Beverage
Posted

BarryC ... I have celiac's and didn't get my knickers in a twist!!! If I did, I'd probably trip and fall flat on my face and have other problems to worry about.  Don't worry about it, we're here to help.  

If I get accidentally glutened, I do not get the intestional issues, but I do get some good body and bone aches. If I can't figure out what's causing it, and keep getting glutened, the brain fog sets in, I so very hate that worse than anything, send me to the retirement home early!

I also miss a good beer, my regular grocery stopped carrying Coor's Peak, which wasn't great but wasn't bad. I have to go a little further to find good gluten-free beers, just try one of each until you find the one that you like. I used to love Heiferweisen beer...wheat beer of all things, but can't have that anymore, and haven't found a good substitute, oh well.  Onward and upward.

BarryC Collaborator
BarryC
Posted
  • Author

Having this is so frustrating, my knickers are twisted up in knots. It is comforting to know that I am not the only one with multiple symptoms, most of which can be traced to gluten/casein. I have also spent a small fortune on digestive/weight loss supplements. Whats working now to improve my weight and digestion are being gluten/casein free of course, and cutting way back on red meat and alcohol. These two are also the worst for IBS, and really mess with the gluten compromised digestive system of an older person. I have found a store that carries Glutenberg beer, which is not bad but way too expensive. Guess I will stick to Coors Light for now.  The hard stuff really messes up my stomach. Happy summer everybody!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.