Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different gluten foods give different reactions?


BarryC

Recommended Posts

BarryC Collaborator

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
52 minutes ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

I am trying to remember - you are just sort of gluten free?  And don't have celiac?

i think joint pain could be from dehydration.  Beer isn't the best  at rehydrating after sweating.

 

 

BarryC Collaborator

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

cyclinglady Grand Master

I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle.  No offense meant, but why are you here?  Either trial the gluten-free diet (100%) or find another diet  to help you lose weight or whatever.   

 

ravenwoodglass Mentor
6 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

As a celiac my reactions to gluten are pretty consistant. The exception to that is when a gluten ingredient is combined with something else I am intolerant to for example soy. Perhaps you have more than one intolerance?

kareng Grand Master
8 hours ago, BarryC said:

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

My point about dehydration causing joint pain, still holds.  I guess you could see if you drank beer when you haven't been hot and sweaty and see if it effects you ? Beer usually has very little gluten, so I would look at  the circumstances or other ingredients or the alcohol itself.

But, when you come on asking questions like this, I am not sure what you are expecting for an answer.   Most of us don't play around with eating different gluten foods.

Victoria1234 Experienced
10 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

It's kind of mean to come to a celiac board and flaunt drinking regular beer. Just sayin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BarryC Collaborator

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

squirmingitch Veteran

You can buy gluten free beers online & have them delivered right to your door. This is one example:

Open Original Shared Link

Or you could ask your local liquor store to order gluten free beer for you. 

Victoria1234 Experienced
6 hours ago, BarryC said:

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

So if I can't find gluten-free lasagna noodles in my city, it would be ok to talk about having a long hard day at work and coming home to a fresh baked, gluten filled lasagna  on a CELIAC BoARD? Several servings, in fact! Yes, I do think it's approaching a sin. Your sensitivity level is excruciatingly low.

BarryC Collaborator

No Victoria1234 this is NOT just a celiac board. This is a 'celiac and gluten free diet support board'.  I am attempting to get some support. If you are not interested in giving me any, please keep your comments to yourself.  You dont know me or anything about me, and if you think I am a sinner, than obviously you have more issues than celiac disease.

ravenwoodglass Mentor

Barry I am sorry some folks are giving you such a hard time. You are correct that this is not a group for only those who are celiac. It is a board for people to learn the ins and outs of being gluten free with celiac or gluten intolerance and their freinds and family  That said I came back to this post because after giving it some thought I remembered I do have different reactions to barley malt than I do to wheat gluten. How did I find this out? By drinking a few sips of gluten beers after mowing my lawn a few times.  After I was finally diagnosed.  Was that a bit foolish of me, sure it was but the days were hot and the beer was there.  Long story short, barley malt does not upset my stomach quite as badly as wheat gluten but it does something that a bit of wheat CC doesn't, it gives me terrible tooth and jaw pain.  So yes it is possible that the symptoms you got from those couple of beers are different from what the symptoms might be if you ate a piece of cake. 

It took a while to get used to the taste but I find Redbridge to be toleralble and have tried a couple of the Green's beers. I didn't care for the dark one but the pale one was drinkable though expensive. The ciders like Woodchuck are also nice so perhaps give those a try.  The ciders may be a bit easier to find.

Ennis-TX Grand Master

I was originally not going to respond to this as I assumed it was a troll post. But yes, I recall last time I drank a ale back in like 2010-2012, I got sick withing 10mins and vomiting which normally would take 30mins-2hours for the vomiting to start with solid food.  All my symptoms which are normally spaced out over time with exposure were complied into a much shorter window of starting. No clue how long it lasted I was out cold within the hour in the car til the next morning. Back then did not know it was celiac, but I knew I could not handle beers for some odd reason and stuck ti liquors and mixers.

Also I react differently to inhaled flour, I just get the brain fog, nerve issues, without the major digestive upset.

One other thought between CC and eating straight gluten there is a difference in how severe my nerve issues are and how long my constipation last. Straight gluten will make me loose motor control and collapse on the floor while CC will just cause me to loose feeling in my hands and feet and some some issues walking and handling things, Both result in vomiting etc but the severity is less in CC vs eating straight gluten where I vomit so hard I would have blood in it.

squirmingitch Veteran

I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different.

artistsl Enthusiast

I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night.

If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess. 

Whitepaw Enthusiast
On 6/20/2017 at 10:47 PM, BarryC said:

 Still waiting for a gluten free beer that is drinkable.

Is Bards available in your area?  I found Bards and Redbridge to be the best, but had to quit both as they  gave me sinus problems. 

I've recently been reading Dr. Gundry's new book, The Plant Paradox. It has helped me with a  new dairy intolerance.   Although a cardiac surgeon, he has shifted focus to the impact diet has on health.  He discusses lectins. Turns out most of the foods I was eating were high in lectins. By choosing lower lectin foods, my recovery has improved.  Joint pain can be a symptom of  a high lectin diet.

Since different foods have different lectin levels, according to this theory, different foods may result in different symptoms.

Scroll down 1/3 of the page to SIDEBAR:LECTINS 101:

Open Original Shared Link

2lonedogs Newbie

celiac disease typically screws up your whole autoimmune system. in my case, it took several years to identify all of the intolerances.

there are different responses to different substances... you may have one or several of them depending on the substance. Mine include nausea, abdominal pain, lethargy, brain fog, cramping, muscle tightness (resulting in joint pain), muscle spasm, creepy crawly skin, skin dryness leading to lesions/ psoriasis, diarrhea, constipation, sudden weight gain/loss of 2-3 lbs per day.  

the frustrating part is/was that the more I stayed away from gluten and other offenders, the better/stronger i felt but then i would discover another substance that had been hiding but now was brought to the forefront since the maybe-more-offending irritant was now gone. this went on for a couple years.  i now have a huge list of offenders and very few acceptable foods, but I keep reading and experimenting hoping for a more varied and healthier diet.  

i refer to myself as a human test subject because essentially you have to try something in order to gauge its effect.

Beverage Proficient

BarryC ... I have celiac's and didn't get my knickers in a twist!!! If I did, I'd probably trip and fall flat on my face and have other problems to worry about.  Don't worry about it, we're here to help.  

If I get accidentally glutened, I do not get the intestional issues, but I do get some good body and bone aches. If I can't figure out what's causing it, and keep getting glutened, the brain fog sets in, I so very hate that worse than anything, send me to the retirement home early!

I also miss a good beer, my regular grocery stopped carrying Coor's Peak, which wasn't great but wasn't bad. I have to go a little further to find good gluten-free beers, just try one of each until you find the one that you like. I used to love Heiferweisen beer...wheat beer of all things, but can't have that anymore, and haven't found a good substitute, oh well.  Onward and upward.

BarryC Collaborator

Having this is so frustrating, my knickers are twisted up in knots. It is comforting to know that I am not the only one with multiple symptoms, most of which can be traced to gluten/casein. I have also spent a small fortune on digestive/weight loss supplements. Whats working now to improve my weight and digestion are being gluten/casein free of course, and cutting way back on red meat and alcohol. These two are also the worst for IBS, and really mess with the gluten compromised digestive system of an older person. I have found a store that carries Glutenberg beer, which is not bad but way too expensive. Guess I will stick to Coors Light for now.  The hard stuff really messes up my stomach. Happy summer everybody!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.