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Common Cookware Cross-contamination with Gluten Post Customary Sanitation Study


Scott Adams

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Scott Adams Grand Master
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Misdiagnosed my sophomore/ junior year of High School, 3 years ago, with celiac disease, I became obsessed with the science of this ailment and how it was supposedly affecting me. I was shocked by how little is known about this autoimmune disease and the many gaps in research done on it. One such gap is that of cross-contamination in the household, where it is likely to have a daily impact on those following gluten-free diets. Because of this, I decided to help fill this gap in scientific knowledge with a manageable project based on cross-contamination in the home, asking whether one can share common kitchen cookware that is used with gluten containing foods, or if people, to help maintain a gluten-free diet, need designated ones for their food preparation.

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ravenwoodglass Mentor

Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.

kareng Grand Master

Odd.  And I wonder why she thinks she doesn't have Celiac?  But her little experiment does show that some people may be going over board with new and separate pots, etc

Victoria1234 Experienced

Wish we could see her follow up studies from the last 5 years.

ravenwoodglass Mentor
12 hours ago, Victoria1234 said:

Wish we could see her follow up studies from the last 5 years.

Yea. I hope she isn't like one of my blood and biopsy diagnosed relatives who then had a gene test that showed she didn't have one of those 2 most common genes.  She was then told it was a misdiagnosis and went back to eating gluten.

She is young so she could also be in what they call the 'Honeymoon' period that used to cause doctors to think celiac could be outgrown.  In young adults it can seem celiac has resolved because the person can consume gluten for a time before the antibodies start causing symptoms again.

Pure conjecture on my part.

ironictruth Proficient

She may be one of those people who got diagnosed only via blood. Some tests can come back false positive. Or maybe only via biopsy and it turns out she had H. Pylori. Who knows. Absolutely could happen though.

 

One of the things that surprised me too was when my doc said it can weeks to months for symptoms to develop on a gluten challenge. I always had this image of getting so imminently sick that there was no question about the connection with gluten. 

 

cyclinglady Grand Master

Another variable that should be considered......old age and reduced eyesight!  We do not have a dishwasher, so we hand wash.  It appears that I am not washing as well at night.  This might be fine for a good gut bionome (referencing a study in Sweden, I think), but bad from a cross contamination perspective with gluten.  

Open Original Shared Link

Bottom line?  Wear your reading glasses and improve your lighting!  You may consider transitioning to a 100% gluten-free household as reduced vision and dementia kick in.  ?


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Awol cast iron stomach Experienced

Interesting the Teflon was the substrate /material the gluten "stuck to" with a higher ppm of cc a synthetic man made versus an organic material iron . Based on her writing further exploration is not likely to get funding but perhaps from this preliminary finding if repeated celiacs in shared households should avoid teflon products. 

My husbands bachelor pots and pans were a great set of stainless steel. Our wedding set of dishes mostly have broken.  I purged all pre diagnosis wood , plastic, and and old or very used ceramic and with my son and I both affected the household went completely gluten free. 

I wish the budding scientist much success, but hope she followed her own data and ditched all teflon.

 

 

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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
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