Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal pain/hunger


Samuel's mom

Recommended Posts

Samuel's mom Newbie

My 8 year old son was diagnosed a few weeks ago.  How long does it take for the abdominal pain to go away after starting gluten free diet? Also he is so hungry all the time now-did anyone else experience this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
3 hours ago, Samuel's mom said:

My 8 year old son was diagnosed a few weeks ago.  How long does it take for the abdominal pain to go away after starting gluten free diet? Also he is so hungry all the time now-did anyone else experience this?

Welcome! 

Supposedly, kids heal faster, but no one knows for sure.  Most members can take weeks, months or even years to feel better.  Why?  Often there is collateral damage beyond the GI tract (e.g. osteoporosis, joint issues, or neuropathy).  Then there is the gluten free diet which has a steep learning curve.  Mistakes are made and that can set a person back.  

Consider reading our Newbie 101 post found under the “Coping” section of the forum.  It  is pinned at the top.  It contains some useful advice and tips.  I would recommend trying to avoid lactose (dairy) for a while.  Many celiacs are lactose intolerant and it is usually only temporary due to damage villi where the enzymes to digest lactose are damaged.   Intolerances  to things like soy or corn are common.   Avoiding processed foods for a while helps because even additives (like Xanthan Gum) can trigger symptoms.  Avoiding restaurants until he is better is also good.   Eating out is a bit like playing Russian Roulette.  Possible, but it takes some training.  Focus first on eliminating his abdominal pain.

Note that some lucky celiacs never have any intolerances at all! 

We are here to help.  Getting  this diagnosis can be overwhelming not just for the patient, but family members too.  Browse through our kids section for ideas, especially on filing a 504 education plan to keep him safe at school.  Look into celiac camps for kids or local celiac groups. 

Finally, he is hungry because he has been malnourished.  If his abdominal pain is bad, focus on foods like stews, soups, well cooked veggies, and even cooked fruit (e.g. baked apples,) that is soft and easy-to digest for a week or so.  I do this after a accidental gluten exposure because eating anything can hurt to digest for a few weeks.  

 

 

Ennis-TX Grand Master

Ditto to cylcing ladies post, but I might add a Food diary to keep track of what he is eating and his pains. Record everything he eats, how it is fixed, seasoned etc. and his symptoms. Rotate his foods removing keratin ones or suspects to issues for 5-7 days then adding them back in for 1 day. This way you can see if he has a intolerance to something. The whole foods only diet of nothing processed makes this simpler and healing faster. I also found a low carb diet to be needed to deal with other issues. IF he keeps having pain and gas issues for a few more weeks on the diet consider changing to low carb diet so their will be less stuff to ferment into gas, and go for high fat and protein might be a bit tougher on digestion so go with simple stewed/steamed mushy foods and blended soups for now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.