Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Before40

Recommended Posts

Before40 Newbie

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
36 minutes ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

That is not a Celiac test.  So I am not sure how you know you don't have Celiac.  A lactose intolerance is quite common side effect of  Celiac

Ennis-TX Grand Master
1 hour ago, Before40 said:

Well, for starters I think I am most likely like most people here. I have been struggling with a variety of symptoms, and trying to figure out what is bothering me has been a total guessing nightmare, with very little help from doctors. Even though I’ve gone to see them so many times. I recently found this biotech company that helps people find out if they really have a gluten celiac problem, or if it is something else. Using dna through hair or saliva, it was pain free, which was awesome! They tested me for a combination of intolerances/allergies/etc. My dietician referred me to them. It’s a place called Lab 600, they have a dot com and I got some testing done with them direct to their lab service and found out it is the same lab company that the allergist uses that I was going to go see next month. He wanted 1,100 for the testing at his office! The lab fee from the lab company itself was only $99 direct. So I went direct to them. They gave me Physician accepted results for my family doctor to keep on file and it cost me way less to get real answers without paying big prices. I wanted to let everyone else know because dealing with doctors who inflate prices is ridiculous, and I think it should be regulated or illegal to increase rates tgat high! Anyhow, I thought gluten was what was bothering me and my test came back it let me know that it was actually lactose. I had no idea, I really thought that it was a celiac issue. I got my daughters checked as well. One of them was scott-free no issues, the other one did come back with gluten intolerant results, with a wheat allergy and they also found out she was vitamin D deficient. So we have started to give her vitamin D supplements, and she has been starting to feel way better. So if this experience can possibly help someone else here I wanted to post, as I have been using the forum here and many other sites trying to get advice through all the symptoms and chaos of trying to figure out what was going on with myself, and I know how stressful it can be. Good luck to everyone! 

You can not diagnosis celiac with saliva and hair.....celiac is a autoimmune disease, where your immune system reacts to gluten. THE ONLY way to test is 1. Check the BLOOD for ANTIBODIES to gluten where you have to be eating it til you get them in your blood stream. 2. Checking for damage to your intestines like blunted vili by taking a biopsy of the small intestine.
Open Original Shared Link
Lactose Intolerance is a MAJOR issue with celiac as the enzymes to break ti down are not present in sufficient quantity with the damaged villi. Vitamin D is another huge absorption issue with cealic disease. SO before you go dismissing it, go get the proper blood test done. There is a company you can send the blood in yourself and get tested much cheaper then the doctors office but it is VIALS OF BLOOD.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,881
    • Most Online (within 30 mins)
      7,748

    Lizzy12
    Newest Member
    Lizzy12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No, I meant two years ago when you had your most recent upper GI scope.
    • pilber309
      yes it was very notable during the pre diagnosis of coeliacs in fact it was all the time.
    • trents
      And you were experiencing this burning sensation back then?
    • Avi Salmon
      Hello everyone, I am a young adult living with both Celiac disease and achalasia. I am looking for some inspiration to start raising awareness for people with Celiac disease on instagram. Please reach out to me if you have any tips and ideas on what is important to share to the world. 
    • pilber309
      Last one was about 2 yrs ago nothing untoward was seen  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.