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Does this look like DH?

Ljoin92

By Ljoin92
in Dermatitis Herpetiformis

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Ljoin92 Newbie
Ljoin92
Posted

Hello-

I have read several posts asking this, and searched through google images, but I was hoping for live-person input. 

I originally was hospitalized with what they thought was cellulitis. Sent home with antibiotics twice (it kept popping up in different locations) before being admitted twice. Skin biopsy during hospital stay showed either arthropod bite or drug reaction (house has been . That was the beginning of March. 

I have since seen an allergist, dermatologist & have an upcoming rheumatology appt (probably a waste of time - ANA & antidsDNA negative). I have been diagnosed with rosacea, I have stopped my birth control (in case it was drug reaction - a month later still no improvement). My dermatologist has me wearing deet everyday, which I’m about to discontinue since it’s also not working & im sick of the smell. 

Anyways, the original biopsy was from the lesion, I’m thinking of having derm do DH biopsy when I follow up & asking rheumatology when I see them next week to send me for a celiac panel. Just want to know if you guys think it’s worth my time. 

Here are the photos: Open Original Shared Link

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Scott Adams Grand Master
Scott Adams
Posted

Unfortunately we can't see the photos as they are password protected.

Ljoin92 Newbie
Ljoin92
Posted
  • Author

Open Original Shared Link

hopefully that one works

squirmingitch Veteran
squirmingitch
Posted

In those photos I don't see this presenting bilaterally. I only see one shoulder but not the other, 1 hand but not the other, 1 elbow but not the other, etc....

You haven't told us how it acts, how it feels. We can not make any kind of determination from photos alone.

cyclinglady Grand Master
cyclinglady
Posted

Looks more like bug bites that have been scratched causing some surrounding redness and irritation, but I am not a doctor.  It does not seem like hives either.   The rosacea?  I have it.  Mine is definitely triggered, not by gluten, but other food intolerances like onions or garlic which have never resolved despite healing fromceliac disease.  

Ljoin92 Newbie
Ljoin92
Posted
  • Author
6 hours ago, squirmingitch said:

In those photos I don't see this presenting bilaterally. I only see one shoulder but not the other, 1 hand but not the other, 1 elbow but not the other, etc....

You haven't told us how it acts, how it feels. We can not make any kind of determination from photos alone.

It’s popped up on both elbows, both shoulders, both feet & has now popped up on one hip (to be honest, I got bad at taking photos since there’s so many places). The spots are hot to the touch at first, they itch & sting then after about a day they start feeling more bruise like. They look almost like a wart at first then start to scab over (with & without scratching) & leave scars (dark red)

 

Ljoin92 Newbie
Ljoin92
Posted
  • Author

 

4 hours ago, cyclinglady said:

Looks more like bug bites that have been scratched causing some surrounding redness and irritation, but I am not a doctor.  It does not seem like hives either.   The rosacea?  I have it.  Mine is definitely triggered, not by gluten, but other food intolerances like onions or garlic which have never resolved despite healing fromceliac disease.  

The rosacea is kind of what lead me this direction. Ive been a google fiend since dealing with this, & with celiac having so many possible symptoms I of course found some of my symptoms in the list. 

My drs are mostly at the stage where they’re trying to figure out what it’s not. That’s where the deet comes in that I’ve een wearing for a week with new bumps still coming up daily. 

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Zzwindrunner Newbie
Zzwindrunner
Posted

The rash and bilaterally looks so muc like my sister’s. She just got her biopsy back positive for dh. She also had positive antibody test and genetic markers. Dermatologist argued with her about needing the biopsy, oh yes she was negative on endoscopy. I also have celiac positive endoscopy and antibodies and of course the genetic markers.

squirmingitch Veteran
squirmingitch
Posted

I think you ought to get the dh biopsy done properly this time & get the serum panel. Those of us with dh test negative on the serum panel 60% of the time so do be sure to get the dh biopsy and keep eating gluten every single day until then otherwise you will most likely get a false negative.

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