Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight loss concern


manaja

Recommended Posts

manaja Apprentice

Hi , I'm slightly concerned with some weight loss I've been having , I've lost 5Ib in 7 weeks , I went from 11stone 5lb to 11stone , I weighed myself this morning , I haven't altered my diet and over the last couple of weeks , I started to eat more when I realised the weight loss was there , it has made no difference .I have been gluten free since August 2016. 

 A recent blood panel last month showed elevated calcium , high end of normal , but my parathyroid had come down to normal levels , they also did an electropheresis test for myeloma which i didn't know about , that came back negative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Eat more fats, with seeds and nuts, the zinc, iron, and healthy fats help with keeping lean muscle up. If your on dairy you might want to drop it. I assume you are on dairy or some dairy alternative with calcium enrichment? Perhaps your taking tums, or some thing else with calcium in it. All good in moderation but try to cut it in half to lower you calcium intake a bit, calcium can block magnesium absorption as they use the same channels and this can lead muscle and nerve break down in the long run. Unlike some other nutrients that are harmless with each meal some nutrients need to be taken in meal rotations if they use the same channel to optimize absorption or taken in combinations.

I use BCAAs or scoops of a vegan protein powder in shakes and to maintain my weight and build muscles. Vegan proteins like pumpkin are high in zinc, pea protein is high in iron and magnesium and various trace minerals, sancha inchi is a good in its own right high in zinc, iron, and magnesium.

manaja Apprentice

Hi , thanks for the reply, the reason my calcium is quite high is because my parathyroid gland was all out of sync when I was first diagnosed , it controls the calcium levels in the blood, my parathyroid was taking the calcium from my bones and dumping it into my blood, hence I also have osteoporosis because of this  disease. I cant understand why i'm losing weight again , going to have to keep an eye on it all.

cyclinglady Grand Master

Are you celiac?  Have you had follow-up testing?  I know I can drop weight fast after a hidden gluten exposure.  

Open Original Shared Link

manaja Apprentice

Hi , yes I’m a celiac, I had the endo done Aug 2016 , shows very smooth  intestinal walls and lots of patchy inflammation etc , my latest bloods showed a drop in my antibodies 10.7 , so down from15.5 , maybe I had gluten exposure somewhere, but it’s a little concerning to me , I still eat like a horse , 

plumbago Experienced
3 hours ago, manaja said:

Hi , yes I’m a celiac, I had the endo done Aug 2016 , shows very smooth  intestinal walls and lots of patchy inflammation etc , my latest bloods showed a drop in my antibodies 10.7 , so down from15.5 , maybe I had gluten exposure somewhere, but it’s a little concerning to me , I still eat like a horse , 

Hello,

Do you know what the cause is of hyperparathyroidism? And,
is your blood glucose ok?

manaja Apprentice

Hi , no I don’t know the cause of pars hyperthyroidism, but he did say that my level was back to normal, they didn’t test for my glucose 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maddiecl Explorer

You may want to count your calories for a week or so to make sure you are eating enough.  When I was diagnosed with Celiac I had to change my diet COMPLETELY.  I went from eating mainly carbs and dairy to eating mainly fruits and veggies and I lost about 15 pounds (that I didn't have to lose) in about 4 weeks.  My GI doc recommended that I count my calories and drink gluten-free/Dairy free protein shakes twice a day until I got the hang of the diet and found more things I could eat that were more calorie dense. Once I got my energy back and had the energy to cook and grocery shop more often eating an abundance of foods became much easier. I am now 6 months into the diet and I am keeping weight on just fine, and have gained about 5 pounds back. 

manaja Apprentice
50 minutes ago, Maddiecl said:

You may want to count your calories for a week or so to make sure you are eating enough.  When I was diagnosed with Celiac I had to change my diet COMPLETELY.  I went from eating mainly carbs and dairy to eating mainly fruits and veggies and I lost about 15 pounds (that I didn't have to lose) in about 4 weeks.  My GI doc recommended that I count my calories and drink gluten-free/Dairy free protein shakes twice a day until I got the hang of the diet and found more things I could eat that were more calorie dense. Once I got my energy back and had the energy to cook and grocery shop more often eating an abundance of foods became much easier. I am now 6 months into the diet and I am keeping weight on just fine, and have gained about 5 pounds back. 

Thanks for the reply, I’ll try cutting out the carbs , the only dairy I have is milk in tea . I’ve been on the gluten-free diet for nearly two years now , I do eat a lot of carbs , but this last week I have been ravenous, pretty much how I was before I was diagnosed, my wife couldn’t fill me and combined with the weight loss I think this shouldn’t be happening .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.