Reaction to gluten but also BUTTER

[soph93]

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 

[kareng]

1 minute ago, soph93 said:

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 

Did you get tested for Celiac?  Even if it isn't Celiac , it could take more than 2 weeks to see if gluten is the problem.  

If you have been tested for Celiac and it is negative.  You might want to try to start with a very simple gluten-free diet - just a few ingredients like chicken, salt, pepper, olive oil, rice, potatoes.  Get your self feeling better and then add things back in.  Eating so many different foods with so many ingredients makes it impossible to know what one thing is bothering you.  

[Ennis-TX]

Ditto kareng, first are you celiac, and were you tested? You need to see about a firm diagnosis.
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IF you are celiac then with damaged villi you do not digest or break down lactose.....the villi that are blunted/destroyed are responsible with the enzymes to break them down....so higher lactose dairy foods will be worse then lower ones. We normally suggest removing all dairy products when your first diagnosed for a few months. Mine never went away and I got whey allergy, so I use vegan cheese and butter flavored coconut oil for my cooking, baking, eating. I can give you a list to try later but normally we also suggest a WHOLE FOODS ONLY diet and simple meals of sheet pan meals, crock pot meals, omelettes, soups, stews, omelettes simple baked chicken etc.

For now a keep a food diary and see whats bother you, foods intolerance issues and sensitivities are very common with celiac.
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[Jenv47]

100% yes it can be dairy and eggs.  I have celiac but I have to avoid cow’s milk and eggs.  I’ve had eggs cooked in a gluten free product and have been ok but certainly no dairy and would never eat an omelet....  I was tested and the cow dairy and egg increase my IGG response which is inflammatory-  not hives etc.. and I feel horrible 

[soph93]

Hi all, 

 

thanks for your comments. The blood tests for anything such as celiac came back negative, so I don't think I am celiac - more just a gluten sensitivity. 

I will try more of a simpler diet taking out both gluten and dairy and then see how I feel. thank you all for your comments.

[cyclinglady]

But did you get all the celiac blood tests?  I test positive to ONLY the DGP IgA.  If my GI had not ordered the complete panel, my diagnosis would have been missed.  Then there are about 10% of celiacs who are seronegative.  In that case, a biopsy is required.  

 

[Ciglee]

You don’t have celiac, move on. 

[GFinDC]

Hi soph,

You may still have celiac disease.  Celiac can be hard to diagnose.  Most people with celiac disease are still undiagnosed even today.

If you do have NCGS (non-celiac gluten sensitivity) you are part of a much bigger group of people who have a reaction to gluten foods but don't show up on the standard celiac tests.  Possibly 5% of people have NCGS, vs 1% who have celiac.

The treatment for both is the gluten-free diet.  However, there is some new research that suggests people with NCGS react to foods with FODMAP'S.  So a low FODMAP'S diet may help them.

But the advice to go on a simple, whole foods diet is good.  Reduce the variety of foods you eat each day so its easier to track reactions.  Recovering from celiac damage is a months to years thing, not days.  The immune system doesn't stop attacking right away.

Avoiding sugary foods and carbs can help with bloating.  Meat and veggies, and nuts are good.  There are lots of processed gluten-free baked goods available but it is better to avoid those at the gluten-free diet start.

You may want to do an elimination diet at some point.  But I'd wait on that awhile.

Edited June 4, 2018 by GFinDC

[cyclinglady]

2 hours ago, Ciglee said:

You don’t have celiac, move on. 

What?  How can you (most likely not a doctor) make that call?  We try to be supportive on this forum which is dedicated to celiac disease, Non-Celiac Gluten Sensitivity or other autoimmune issues where a gluten free diet might help.  

What brings you back?  You last posted in 2013.  Are you experiencing current issues that may be attributed to a gluten exposure?  I am curious.  

Edited June 4, 2018 by cyclinglady