Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!

danikali

Recommended Posts

danikali Enthusiast
danikali
Posted

Well, I have been sick on and off since last Thursday since I got glutened at a buffet. Well, I thought I was on my way to heatlh yesterday because I wasn't eating ANYTHING processed, only whole natural foods.

Well, I had a banana and apple in the morning, chicken (plain-cooked myself) for lunch with carrots and an orange and for dinner we went to my fiance's parent's house for our Christmas with them. His Mom knows all about my problems and is very careful. She also cooked for me for Thanksgiving and I had no problems. Well, I had ham, sliced potatos, a salad with vinager and oil for dressing and berries for dessert. Oh and tea with my dessert- herbal Peach and spice tea. Then when I got home, I had some celery with peanut butter (just peanuts and salt). But before I ate that, I noticed that my left arm was hurting. Like the skin was (actually still is) burning, underneath. And it's weak. It goes from my elbow to my hand but it's only on the inside of my arm. So that was before I had the celery.....(and I want to add that when I woke up and most of the day yesterday, I felt really really good. No symptoms at all!)

Then this morning I woke up with THE WORST STOMACH PAINS and they keep coming and going still. It also hurt really bad to pee this morning, but it went away after I drank some water. My back is also achy and my stomach is HUGE. And my arm still "burns."

So, has anyone had this before? Especially the arm thing. And none of these foods ever bothered me before, so why did I get so sick from my food yesterday? Every little second I think I'm better, IT COMES BACK! Any advice?

I had an apple, some rice cakes, a potato and veggies today so far. I'm hungry but I'm so scared to eat! Help! As the day goes on my pain keeps getting worse and worse and worse.................I don't know what to do anymore......I am at such a loss

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I'm so sorry you are feeling so bad. I'm afraid I'm so new to all this myself that I don't have any advice, just wanted to tell you how sorry I am. I've had the burning on the arms before, but never knew what it was, and in fact was going to ask that question here myself. In my case, though, it's more like a bad sunburn except that there is no redness whatsoever, no marks, no bumps, not outward indication at all...sounds a bit different than yours. When my arms get like that, it actually hurts to have my clothing touch them. The only thing I can think of that might have been "off" is the ham. Sometimes they use "carmel coloring" or wheat in the glaze. I hope you feel better soon...you've had such a rough time.

Kasey'sMom Enthusiast
Kasey'sMom
Posted

I know you must be scared. I have pain when I'm glutened as well. My pain usually starts a day or so after I've eaten gluten and can last a week or longer. Before I found out I had celiac disease I saw several specialist who did testing for all type of diseases that include similiar types of pain. They had no idea that it was gluten that was causing this debilitating pain. I remember going shopping last Christmas with my mom. I hurt so bad that I just had to wait in the middle of the store until she came and got me and helped me to the car. At times I wasn't sure if I would make it through another day. I'm only in my 20's...and so thankful that I found out that gluten was what was making me sick. I've only been gluten-free for a few months but I've seen a drastic improvement.

I find I'm eating less and less outside my house because I'm scared that I'll get glutened. This weekend I tried some cows cheese and had nausea and pain associated with it.

In addition to the ham you might want to double check the herbal tea.

Hope you get to feeling better soon!

jerseyangel Proficient
jerseyangel
Posted

Hi Dani--Sorry you're not feeling well. Some hams and herbal teas contain gluten. Those are things you have to check out. I also get the burning. I tend to feel it on the bottom of my feet and on my face. Kind of like burning from the inside. No rash or anything on the skin--just the burning. The weakness hits me in the legs. I was accidently glutened a couple weeks ago and the weakness is still coming and going. Hope you're better soon :)

Mary Rita Newbie
Mary Rita
Posted

When I go out to dinner I always take 4 enzyme capsules with me. This helps if I become contaminated with gluten. I get them from my nutrionist. Sometimes if I get glutened my left arm and leg hurt.

traveljunkie Rookie
traveljunkie
Posted
When I go out to dinner I always take 4 enzyme capsules with me. This helps if I become contaminated with gluten. I get them from my nutrionist. Sometimes if I get glutened my left arm and leg hurt.

Hi Mary,

I was about to post a question about enzymes. What brand are you on? I notice when ever I take enzymes, I have less reactions. I'm intolerant to a lot of food and have been doing research on enzyme and low stomach acids. I have tried different brands of enzymes, some are to strong and hurt me.

Thanks,

Charlene

Carriefaith Enthusiast
Carriefaith
Posted

I understand what you are going through :( I can also get severe stomach pain from gluten. I have a few suggestions as to why you aren't feeling better. One could be that the food you ate at the dinner was contaminated. The food may have looked fine, but you don't know for sure unless you were there while it was being prepared. Another reason could be that you are still having symptoms from your gluten accident last Thursday. During my worst gluten reaction last winter, I was experiencing mild to severe stomach pain for almost 2 weeks. Also, for some reason my stomach pain seems to come several days after I get glutened. My stomach pain also comes and goes throughout a reaction and the pain seems to get worse after I eat.

I hope that you are feeling better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


danikali Enthusiast
danikali
Posted
  • Author

Thanks everyone......

This is just too horrible. I am always always always sick. I'm at work and for the past hour (I'm a legal assistant), I went into an attorney's office who is on maternity leave, and I layed down on my stomach and in the fetal position and now I am feeling a lot better. A LOT. Not normal, the burning is still on my arm and my stomach still feels a little weak but the back pain is gone and that is what was hurting the most. I felt like all of my insides were inflamed!!!

Anyway, I'm not eating anything from anyone anymore unless I make it with them, or I watch them make it and I read every label over and over again! This is really getting rediculous. I feel like I shouldn't eat for the rest of the day to give my stomach a break because even water is hurting me! But I'm so hungry!!!

Now someone mentioned the carmel coloring. Does all carmel coloring have gluten in it? And my fiances cousin read the ingrediants of the tea out loud, and there were a lot of things in there, but I didn't hear barley malt. I should have just checked it myself to make sure because now I have no idea.

Carriefaith Enthusiast
Carriefaith
Posted
I am always always always sick.
How long have you been on the gluten free diet? I was almost constantly sick for about 6 months after I started the gluten-free diet. I slowly started getting better after that, but most of my symptoms didn't really start clearing up until after 1 year on the diet. Most people, however, start feeling better after 3-4 months on the diet.

I feel like I shouldn't eat for the rest of the day to give my stomach a break because even water is hurting me! But I'm so hungry!!!
I know that feeling all to well. I find that eating sometimes does make it worse. From my expereince, the best thing may be to give your stomach a break and just try liquids for a while, like soup or juice. If you really want solid food maybe try it at home, so if you do get pain, then at least you're not in public (I hate getting my pain in front of people, it's so embarrassing).
julie5914 Contributor
julie5914
Posted

Actually, that thing with your arm esp. sounds like nightshades. It doesn't sound like you've been glutened. Maybe the nitrates in the ham bothered you, but it was more likely the potatoes. Google nightshade intolerance and see if that sounds like you.

Rachel--24 Collaborator
Rachel--24
Posted
Actually, that thing with your arm esp. sounds like nightshades. It doesn't sound like you've been glutened. Maybe the nitrates in the ham bothered you, but it was more likely the potatoes. Google nightshade intolerance and see if that sounds like you.

I'm in agreement about the potatos. Keep a food diary to try to figure out which foods bother you and yes, you can get more food intolerances after going gluten-free. The other food intolerances may have been there all along but you never noticed them because you were still eating gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,676
    • Most Online (within 30 mins)
      7,748
    AW1851
    Newest Member
    AW1851
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.