Love Grown Granola - has oats is marked gluten-free

[MelRock]

I LOVE thisOpen Original Shared Link. I have eaten it for years with yogurt for breakfast.  It is gluten-free, but it contains Oats. Have any of you had success with it?

 

I am new here, but have been wheat "in-tolerant" for 15 years and recently "probably" Diagnosed with DH.

Severe anemia for a year and the DH rash for over 4 months.

Melissa

[apprehensiveengineer]

Gluten-Free Watchdog has done a few Q&As recently explaining the nuances of labeling and testing of gluten-free oats:

Open Original Shared Link

Open Original Shared Link

To summarize, avenin (the protein in oats) seems to trigger a reaction in a similar manner to the other gluten-containing grains, but to a negligible extent in the majority of celiacs. Because of this, some countries (such as the USA) have decided that oats can be allowed in gluten-free foods, provided that they are otherwise uncontaminated with gluten-containing grains.

The issue with contamination, however, is that it is quite prevalent. Because of the way they are grown and transported, oats normally contaminated with wheat/barley/rye. Some producers/sellers of oats seek out farmers who only grow oats and employ practices to prevent contamination after harvest (purity protocol). Other producers opt to sort or "filter out" the contaminating grains.

There seems to be a lot of variability in how well this is done, which has led some experts like GFWD to recommend against using products that contain sorted gluten-free oats. She has posted a list of manufacturers/producers of purity protocol oats that she recommends:

Open Original Shared Link

If you are going to eat oats and can tolerate them, I would stick with the companies she lists until the regulations on gluten-free oats become tighter, more transparent and standardized.

Going to be honest though, if you say you have DH (or think you have it) ... I would stay far away from oats no matter what the company says about them. I'll admit I am a bit biased - I tried purity protocol oats and they made me sick as a dog for a month and resulted in an epic rash flare.

 

 

[cyclinglady]

Well written and I heartily agree!  Thanks.  

[Beverage]

My doctor said to stay away from oats. I ignored it, thinking I could eat the gluten free CERTIFIED kind, found the one with the best reputation, ha ha, I know so much.  NOT.  After being complete off all grains for a few months, I ate them and it took about a month, and got sooooo sick.  No to oats for me.

[squirmingitch]

On 7/6/2018 at 12:25 AM, apprehensiveengineer said:

Going to be honest though, if you say you have DH (or think you have it) ... I would stay far away from oats no matter what the company says about them. I'll admit I am a bit biased - I tried purity protocol oats and they made me sick as a dog for a month and resulted in an epic rash flare.

 

 

DITTO THIS!!!! ME TOO!!!

[apprehensiveengineer]

11 minutes ago, squirmingitch said:

DITTO THIS!!!! ME TOO!!!

And I'm very very sure that dietary fibre is not known to cause rashes or weeks of exhaustion.

It drives me nuts that a one line of speculation in the discussion section of a paper got blown up as a convenient means to dismiss ALL apparent averse reactions to pure oats, when there is evidence that such an immune response is possible from a mechanistic perspective.

[squirmingitch]

There are a couple studies that were done concluding that roughly 10% of celiacs actually do react to oats -- purity protocol oats even.