Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions about health


Joepilk

Recommended Posts

Joepilk Apprentice

I been on a gluten free diet for about 2 weeks or more and it’s seems like after i eat or sometimes at random i get this wierd feeling of being dizzy and lightheaded and also after i eat it feels like i have heighten anxiety even though what I’m eating is gluten free and sometimes my face gets red is that normal symptoms ? And also sometimes i can press down on diffrent spots in my stomach it seems sore and it seems like i never get hungry is it just celiac or could it be something more like overgrowth of bacteria or something 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Have you been diagnosed with celiac disease?  If not, consider getting back on gluten and get tested.  Learn about testing:

http://www.cureceliacdisease.org/screening/

Honestly, your symptoms could be attributed to many illnesses.  I hope you figure it out.  

Joepilk Apprentice

Yes i have been diagnosed with celiac and been gluten free for more than 2 weeks

Awol cast iron stomach Experienced
13 hours ago, Joepilk said:

I been on a gluten free diet for about 2 weeks or more and it’s seems like after i eat or sometimes at random i get this wierd feeling of being dizzy and lightheaded and also after i eat it feels like i have heighten anxiety even though what I’m eating is gluten free and sometimes my face gets red is that normal symptoms ? And also sometimes i can press down on diffrent spots in my stomach it seems sore and it seems like i never get hungry is it just celiac or could it be something more like overgrowth of bacteria or something  

Yes, I spent many years from age 11 on up, light headed and dizzy not knowing it was Celiac.  I get dizzy/lightheaded from eating full on gluten,(among other symptoms) cc, and environmentally when I have been damaged and my gut is a mess and my immune system is in full on attack mode.  During healing I only went to stores without a bakery on premise. My husband had to shop at the stores with a bakery on premise, since I would get dizzy 5 aisles from the bakery, then my olfactory senses would smell cinnamon churros, buns, pizza etc. I would get a flood of mucus and a major cough on the way home, often losing my voice along with my joint and muscle aches, light headiness, and headaches.  It took me awhile to catch on. Even now I try to shop when the bakery is not in full swing, or I take the long way around the store. I am only 26 months post challenge healing. Better but no where near my best.

I get flushing from my gluten and corn intolerance. You say it is your face. My face flushes and particularly notable for me is my upper chest below neck does. This is a major DH spot for me now when it use to be just my elbows, arms, buttocks that flared. This summer it was my chest and elbows that flared with itching everywhere even without the DH when some fish from the store was cc.

My opinion on the anxiety is it is your natural interpretation (or others) to the symptoms that are unfolding. Your brain tries to interpret and make sense of it. Also at some part in your life when you describe your symptoms someone suggested or labeled it anxiety and well now you tell yourself your anxious. Now when you eat you say oh no I have anxiety. Instead you should ask if I know it is gluten free am I reacting to something else or am I stressed about gluten around me? Many of us do get anxiety, but more so the intolerant body is reacting to the food and our brain is trying to make sense of it. Some of the anxiety strategies work to calm you down, deep breaths etc. So feel free to use them if they help. Is it clinical anxiety only a psychiatrist can say, but I wish many saw former labeled mood disordered Celiac's pre and post diagnosis because I suspect they may see a difference clinically. :) 

Did your Dr's tell you some of us get additional food intolerances? I got racing pulse after my gluten challenge when I drank cows milk. I now drink homemade almond milk, because store bought brands contain corn derivatives another intolerance that unzips my gi integrity as well and causes brain, nerve , and other issues for me. So I had to suggest you may not have the full picture yet. Also you have some healing to go.

I do not consider myself anxious in a clinical sense now that my issues have finally been diagnosed in my 40's, but I do see how my pediatrician told my mom that the symptoms I begged her to take me to the Dr for  at 5 he considered just my nature/just me/personality etc. as a child. He did not label my anxious, but told my mom strategies to calm me down or distract me. I now know I was eating things then that caused the symptoms I have now and then some. Decades undiagnosed took more a toll on me and I have a plethora more now. Alas I do my best to accept those undiagnosed, misdiagnosed years, and do my best to embrace my finally known condition.

As for the pressing down pain and not eating, normal also in my experience. I had stabbing pains and swollen organs for months after. My gallbladder was out of commission for months. A celiac chiropractor/TCM practitioner is my source of relief. I was tested negative for other issues bacteria etc with my scopes, but I do find homemade water kiefer as a source of safe probiotic for my gi. I have to be careful with supplemental probiotics due to gluten cc or corn ingredients. As for not being hungry I spent the first several months blending foods to smoothie like consistency as sometimes real food was painful on the organs. So from my experience and viewpoint all you are experiencing are possible as a newly diagnosed Celiac.

I am glad you found out what ails you and you have joined us here. This community has helped me immensely learn what I had wrong and how to do it right. Welcome, keep reading, and learning. 

Most of all best wishes on your path to healing.

 

 

 

cyclinglady Grand Master

Welcome to the club you never wanted to join!  ?

It sounds like your current symptoms are due to celiac disease.  It just takes time to heal.  It also takes time to really master the gluten free diet.  It takes time to identify additional food intolerances that may resolve once you have healed or not. 

Expect symptoms to last for a few more weeks, months, or even a year.  It all depends on your diet and how fast you heal. Remember, even though you have gone gluten free for two weeks, your body may still be producing antibodies.  When will those stop?  Who knows?  Everyone heals at a different pace.  The gluten free diet has a steep learning curve, so it is best to avoid eating out and stick to non-processed foods.  Choose whole, plain foods.  Again, do not eat out until you are feeling better!  Keep a food journal.  Many celiacs are temporarily lactose intolerant, so avoiding dairy might be good for a few weeks.  

Hang in there!  

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.