Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac? Need your opinion

Woodster991
 Share

Recommended Posts

Woodster991 Newbie
Woodster991
Posted

Hi all I haven't been diagnosed or even had the test yet but wanted someone's opinion. I'll try and keep it brief... 4 years ago I was admitted to hospital for lung infection due to working in a kitchen with no extractor canopy. I discharged myself due to them giving me something I had allergic reaction to. From then I got health related anxiety. Anyways after 2 years my health related anxiety started to diminish but I came anxious about everyday things. To this day its under control. The last 6months I've started to notice changes within my bowels and body. I get tingling in right cheek near lips tingling in arm and legs. Pins and needles in feet. Acne on my back.. Diarohea and mucus. Stomach cramps and excess gas.., awful flatulence... Sometimes I just want to lie in bed all day from being tired. Un steady in my feet.  Palpitations   list is endless... I spent the last4 days gluten free and felt so much better but last night I went out and had a fair bit to drink and ordered Chinese not caring about gluten. Today I've been bed ridden all day. No hangover but all the other symptoms have come back twice as bad.. I went to Dr's last week and they reffered me to dietician but they seem to always just thinks its my anxiety and turn a blind eye. Nice to get someone's else's opinions sorry to be long 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
(edited)
33 minutes ago, Woodster991 said:

Hi all I haven't been diagnosed or even had the test yet but wanted someone's opinion. I'll try and keep it brief... 4 years ago I was admitted to hospital for lung infection due to working in a kitchen with no extractor canopy. I discharged myself due to them giving me something I had allergic reaction to. From then I got health related anxiety. Anyways after 2 years my health related anxiety started to diminish but I came anxious about everyday things. To this day its under control. The last 6months I've started to notice changes within my bowels and body. I get tingling in right cheek near lips tingling in arm and legs. Pins and needles in feet. Acne on my back.. Diarohea and mucus. Stomach cramps and excess gas.., awful flatulence... Sometimes I just want to lie in bed all day from being tired. Un steady in my feet.  Palpitations   list is endless... I spent the last4 days gluten free and felt so much better but last night I went out and had a fair bit to drink and ordered Chinese not caring about gluten. Today I've been bed ridden all day. No hangover but all the other symptoms have come back twice as bad.. I went to Dr's last week and they reffered me to dietician but they seem to always just thinks its my anxiety and turn a blind eye. Nice to get someone's else's opinions sorry to be long 

Sure.  Celiac is possible.  You need to remain on a gluten containing diet to be tested for it.  A dietician can’t test you for it.  Any doctor can order the basic Celiac panel blood tests.  

Edited by kareng
Woodster991 Newbie
Woodster991
Posted
  • Author

I take it they are symptoms of the disease 

kareng Grand Master
kareng
Posted
(edited)
2 hours ago, Woodster991 said:

I take it they are symptoms of the disease 

Yes and no.  They can also be from other things.  I hope the doctor tested the basics - thyroid, B12, iron, CBC, etc.  

my point is- a refersl to a dietician, for help with a gluten-free diet, is a bit premature.  Suggesting you go gluten-free  ,before you are tested for Celiac,  is irresponsible of that doctor .  If you have a great response to the gluten-free diet - you have to go back to months  of eating gluten to get a Celiac diagnosis.  Usually, when people feel better - they won’t go back to gluten.  But they don’t know if they have Celiac - so some are not as careful as a Celiac should be.  No official diagnosis means other health care providers and your insurance company won’t do follow up or testing for complications of Celiac ( for example - osteoporosis).   Some hospitals/ nursing homes will not  even try to provide gluten-free food without an official diagnosis . If a Celiac has kids - they need to be tested.  No diagnosis- no automatic testing. It goes on and on

Edited by kareng
cyclinglady Grand Master
cyclinglady
Posted

Please get tested for celiac disease before going gluten free. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,534
    • Most Online (within 30 mins)
      7,748
    RUKen
    Newest Member
    RUKen
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.