Bechet's Disease

[jenvan]

I have a friend who was tentatively diagnosed with Bechet's disease--another autoimmune. Just wondering if anyone here has any info or experience with it...I'm trying to do some research for her.

[Nancym]

It was on Mystery Diagnosis recently. There's all sorts of information on the Web. Have you googled it yet?

[Guest CD_Surviver]

Have you googled it yet?

i wounldn't use google i would use metacrawler.com. metacrawler searches the search engienes and so you get more from your search. like it searchs google and yahoo and jeeves and a few others i can not remeber right now. but i love i use it for all my research papers and things.

Lauren

[stef-the-kicking-cuty]

I just looked it up on Yahoo. It's actually called Behcet's disease and was first discovered about 200 years ago in Turkey. Nobody really knew about it then of course. The name "Behcet's disease" it actually got (if I can recall it right) 1932, when they found out that some of the main symptoms were mouth and genital ulcers. Very interesting...

Hey, I just found this:

"Behçet's disease was first described in 1937 by Dr. Hulusi Behçet, a dermatologist in Turkey."

So it wasn't 1932, it was 1937...

Here are the symptoms: Most symptoms of the disease are caused by inflammation of the blood vessels. The five most common symptoms of Behçet's disease are mouth sores, genital sores, other skin lesions, inflammation of parts of the eye, and arthritis.

[bluelotus]

Sounds painful. Hope your friend can find relief soon.

[stef-the-kicking-cuty]

They also mentioned that there is no known cure for it yet...

[jenvan]

Thnx guys...I have done some internet research, just didn't know if anyone here had it or knew someone who did. She is pretty miserable to say the least..and has some crohn's type symptoms...just trying to research and see where all these things might intersect....

[jerseyangel]

Gee, I had never heard of it and it sounds awful. Hope your friend has a Dr. that is up on the latest info. about it and that she doing better soon.

[zakismom]

I do know someone with it but I'm not close enough to ask about it. What I have seen of it so far is not very good. I hope your friend doesn't get the more severe symptoms. Another woman I know was tested for it but they ruled it out. She is also a diabetic (type 1) and has a son with Aspergers.

[jenvan]

zakismom-

thanks for the info--sounds like your friend isn't doing really well... did they ever mention if they are on meds?

[zakismom]

I'll see what I can find out and let you know.

[debimashni]

I was diagnosed with Behcet's Disease in 2001. I was also diagnosed with Celiac Disease in 2003 and autoimmune hepatitis last November. I have Remicade IV treatments every 6 weeks...it helps with the pain, but my quality of life sure isn't what it used to be. Feel free to email me, if you would like more info.

debismashni@aol.com

[jenvan]

I definitely will drop you a line--thanks!