Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression And Sleep Deprivation


Tutahl75

Recommended Posts

Tutahl75 Apprentice

Hello,

I've been a Celiac for about a year and a half now. My biggest problems with the disease is anxiety and sleep deprivation. About four months ago I found a herbal remedy called Holy Basil or Tulsi Root. It works great at containing my anxiety and keeping me balanced with no side effects so far. I definately recommend it to those with similar problems.

However, I still have my hang ups with sleep. I get into sleep ruts from time to time and it often brings back the memories of being really sick pre diagnosis. Does anyone have any recommendations for relaxation techniques to quiet the mind or even a good sleep medicine that doesn't leave them feeling like a bag sh*$ in the morning?

thanks for your time,

Bd


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

I use valerian root capsules and melatonin and an anti-histamine (makes me drowsy). I wake up feeling fine!

StrongerToday Enthusiast

I completely understand, and I wish I had some advice - but I'm in the same boat you are. I went GFDF in August and felt amazing... up until Thanksgiving. Then "life" happened (work, illnesses, etc.) and for the past four weeks I have been comletely wrapped in anxiety. I've been waking up around 4:00 every day which is so not helping! I've been on Ambien and Zanax and it's not cutting it any more, so my dr. just put me on Paxil on Friday.

In the meantime, I've bought myself a sleep music celiac disease (from Bed, Bath and Beyond) which sometimes helps. I also took some relaxation classes and learned deep breathing, progressive muscle relaxation and guided imagery. All which do help, they just don't take it away. I'm really hoping Paxil will help, and soon!

Let me know if you find any answers, and good luck!

celiacat35 Newbie
I completely understand, and I wish I had some advice - but I'm in the same boat you are. I went GFDF in August and felt amazing... up until Thanksgiving. Then "life" happened (work, illnesses, etc.) and for the past four weeks I have been comletely wrapped in anxiety. I've been waking up around 4:00 every day which is so not helping! I've been on Ambien and Zanax and it's not cutting it any more, so my dr. just put me on Paxil on Friday.

In the meantime, I've bought myself a sleep music celiac disease (from Bed, Bath and Beyond) which sometimes helps. I also took some relaxation classes and learned deep breathing, progressive muscle relaxation and guided imagery. All which do help, they just don't take it away. I'm really hoping Paxil will help, and soon!

Let me know if you find any answers, and good luck!

Tutahl75 Apprentice
I completely understand, and I wish I had some advice - but I'm in the same boat you are. I went GFDF in August and felt amazing... up until Thanksgiving. Then "life" happened (work, illnesses, etc.) and for the past four weeks I have been comletely wrapped in anxiety. I've been waking up around 4:00 every day which is so not helping! I've been on Ambien and Zanax and it's not cutting it any more, so my dr. just put me on Paxil on Friday.

In the meantime, I've bought myself a sleep music celiac disease (from Bed, Bath and Beyond) which sometimes helps. I also took some relaxation classes and learned deep breathing, progressive muscle relaxation and guided imagery. All which do help, they just don't take it away. I'm really hoping Paxil will help, and soon!

Let me know if you find any answers, and good luck!

You should try Holy Basil as mentioned in my initial email. It really helps with the stress reaction of anxiety and it has no side effects. I used Paxil as well and it made my stomach upset if I was stressed and made me sweat like crazy. You can get it at the health food stores. Most grocery stores don't sell Holy Basil. Hope this helps and thanks for the tips.

Lovinglife Rookie

I second what everyone has been saying: download or buy some relaxation, sleeping music; write down the issues that are ailing you and burn them or throw them away or simply vent on the page and then do something rejuvenating; pray or meditate (this is often intimidating, but it doesn't have to be long at all. you could do it for a few seconds. just deep, focused breathing at any time throughout the day); create a routine that would allow you to have a comfortable environment before you go to bed (ie. about the same time each night, comfortable pillows and sheets, do similar things each night- meditate, pray, read, listen to music, don't eat too much before you go). I hope that this helps. Let me know.

Florence

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.