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What Specifically Should I Look For On Labels?


zip2play

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zip2play Apprentice

I had a equivacal blood test and a negative biopsy. But a GI Dr told me to try Gluten free, he said lots of false negatives happen.

What are the main words I need to look for on an ingredients label?

Monica


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Kailynsmom Apprentice

Celiac.com has list called the "safe list" and the "forbidden list" that tell you everything you need to check labels for. when my daughter went gluten-free 6 months ago, they helped tremendously.

jenvan Collaborator

the lists are here: https://www.celiac.com/st_main.html?p_catid=12 you may want to print them off and take them with you...

zip2play Apprentice

So my colgate toothpaste won't worK???

Ice creams are totally out ???

jenvan Collaborator

I am under the impression that colgate is gluten-free...but I'll let someone who uses colgate post that here for sure. I know all Crest pastes are gluten-free. There are a host of icecreams that are gluten-free. My favorite brand is Edy's :) If you go on their website and select a flavor, they will state whether it is gluten-free or not. I know going thru everything can be daunting at first...but take your time and try and move through things systematically. I kept a notebook of companies I called and products I verified as safe, just in case I need to refer back to them again.

zip2play Apprentice

I hope Colgate is gluten-free! That is good to know. Edy's is good huh? I have Bryers at home. The "natural" ice cream. Maybe that isn't so good. But I will check out Edy's website!

OH what about tomato soup?

Hey what other companies specifically note on the website nutritional information specifying Gluten Free?

Thanks for the heads up on Edy's!

ehrin Explorer

Colgate Total is Gluten Free - I only asked about that specific kind.

All I did was call the 800# on the tube...


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2Boys4Me Enthusiast

I called Colgate-Palmolive in Canada, and the rep said that EVERYTHiNG manufactured by them (dental products, soap, laundry detergent, dish soap) is gluten-free.

I'm not sure where you're from, but Ehrin makes a good point: call the 800 # and ask about all their products.

zip2play Apprentice

Thanks guys!

happygirl Collaborator

zip2play-in terms of ice cream, some breyers are going to be safe, as are some edy's. Obviously, something like "cookie dough" ice cream is not going to be safe in ANY brand. Often, the ice cream 'itself' is gluten-free, but the 'goodies' in it are the problem.

read labels, ask questions, call #s, and most importantly, don't eat anything unless you know 100% what is in it AND what has touched it (issues of cross-contamination with other sources---like using a knife that cut something with gluten, or a fast food worker that has gloves on that have touched bread....and then are touching your food)

the lists are very helpful.

also, tinkyada brand pastas (gluten-free) are the BEST. I substitute them for regular pasta all the time.

zip2play Apprentice

Good to know, thanks!

Idahogirl Apprentice

For tomato soup, try Pacific Natural Foods organic creamy tomato soup. It comes in a box, and they have it at a lot of grocery stores. Tastes just like Campbell's. I tried another gluten free kind, and it had a weird taste to it, and did not have the "creamy" taste.

Lisa

Kailynsmom Apprentice

We second the Pacific tomato soup- all of theirs are good actually. We also like Progresso Chicken and Rice!

fisharefriendsnotfood Apprentice

Including, but not limited to:

Wheat (Obviously)

Wheat Gluten

Wheat flour

Wheat Starch

Wheat Germ

Anything with the word wheat in it except for buckwheat

Oats

Barley

Barley Malt

Malt

Modified Food Starch

Food Starch

Starch

Flour

Natural Flavours (check with the company - it's probably fine but you need to check)

Flavour (same as above)

Anything you don't know the ingredients of

Anything made in a mold such as shaped chocolate - the mold could be coated with flour

There's more but I can't think of them right now.

-Jackie

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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