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Myspace

DragonQueen

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LqrMan Newbie
LqrMan
Posted

I just joined that group too. There are at least 5 other groups for celiacs on my space as well. Some guy even started a group for GLUTEN LOVERS...lol...how sad.

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Moongirl Community Regular
Moongirl
Posted

eww that pretty sad....but hey if he really likes it that much.... :huh: let him eat all he wants

jerseyangel Proficient
jerseyangel
Posted
Woo hoo! I'm in! Patti-what’s your my space address?

It's My Space/pattinsj--I'm flying by the seat of my pants over there! This board is the only time I've been involved in an online group. I joined up so I could be a part of the Celiac group that Bronco started. Now I really have to get a picture! We bought a digital camera, so now I have no more excuses :D If I need help, can I count on you? :huh:

jenvan Collaborator
jenvan
Posted

Sure thing Patti..I'll help you out! Its not hard...I'm still a baby as far as myspacers go, but I can only be a slave to one site at a time :)

Claire Collaborator
Claire
Posted

broncobux- thanks for the help. As I said, I am very used to computers - work hours a day here but this just didn't work. I finally took the URL, pasted it into a doc and made it inactive and then activated it from that location. With that it worked fine. I did sign up but don't know how much I will get there. It it will take a bit to get used to it and I already spend too much time here!

Too many plates in the air! Thanks again. Claire

KaitiUSA Enthusiast
KaitiUSA
Posted

I just now found this thread...I will join today:)

my space.com/kaitiusa

KaitiUSA Enthusiast
KaitiUSA
Posted

I can't get to the link..it keeps saying this page can't be displayed

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VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Sorry Claire,

I misread your post -- I thought it said "I am NOT computer savvy" -- my fault -- now my former post looks condescending...

:(

No offense I hope

Welcome to the group Kaiti and Brit!

We now have 13 -- keep em coming!!

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Did you gues delete your group? I searched on MySpace and found many other Celiac groups but not this one.

jerseyangel Proficient
jerseyangel
Posted

No--it's there. It's called Gluten Free Freaks.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I found "Gluten Free Freaks" easily this time, thank you.

num1habsfan Rising Star
num1habsfan
Posted

if anyone wants to add me (that I havent already found) my name/page on there is num1habsfan :P

~lisa~

  • 1 month later...
Kayla Nichole Newbie
Kayla Nichole
Posted

YAY I joined.....thats how I actually found this site, from a group in myspace, its the first one when you type in "Celiac" you guys should join it also.....you can never be in to many groups B)

jenvan Collaborator
jenvan
Posted

Welcome here Kayla!

Archived

This topic is now archived and is closed to further replies.

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    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

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