Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa


Rachel--24

Recommended Posts

Rachel--24 Collaborator

I really dont care for quinoa (tried it a long time ago pre-gluten-free) but thought I'd give it another chance. I ate it for breakfast last Thursday and have been REALLY messed up ever since. I have every symptom of a glutening but I know it wasnt contaminated. My doctor told me to avoid both quinoa and amaranth because even though they are gluten-free they are too similar structurally to gluten and therefore some people react....same with soy protein isolate (whatever that is). I didnt really believe him since 9 out of 10 websites say they are safe...sooo I went ahead and ate quinoa. Now I am still sick. :(

I asked my doctor about this and he said this is why he told me not to eat it....because some people DO react to it. He said while some of his patients do fine with it...others have gluten reactions from it. I'm confused about this. I knew even the purest of oats could cause trouble for some but quinoa??? :huh:

Did anyone else have a gluten reaction from quinoa?

P.S. I'm not at all sad about giving up quinoa...cuz its gross....but just wanna know if it could cause that reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

dunno, I think it's gross too.

Rachel--24 Collaborator
dunno, I think it's gross too.

LOL...I'm thinking noones gonna answer cuz probably everyone here feels the same. I'm the only one dumb enough to try it twice. :lol::lol:

angel-jd1 Community Regular

I put it in meatloaf ,meatballs, cookies, and things sometimes. I have also used it ontop of apple crisp. I have also eaten it as a hot cereal with a little butter and sugar. I don't think it is bad and it hasn't made me sick at all. By the way, I used the flakes.

-Jessica :rolleyes:

I really dont care for quinoa (tried it a long time ago pre-gluten-free) but thought I'd give it another chance. I ate it for breakfast last Thursday and have been REALLY messed up ever since. I have every symptom of a glutening but I know it wasnt contaminated. My doctor told me to avoid both quinoa and amaranth because even though they are gluten-free they are too similar structurally to gluten and therefore some people react....same with soy protein isolate (whatever that is). I didnt really believe him since 9 out of 10 websites say they are safe...sooo I went ahead and ate quinoa. Now I am still sick. :(

I asked my doctor about this and he said this is why he told me not to eat it....because some people DO react to it. He said while some of his patients do fine with it...others have gluten reactions from it. I'm confused about this. I knew even the purest of oats could cause trouble for some but quinoa??? :huh:

Did anyone else have a gluten reaction from quinoa?

P.S. I'm not at all sad about giving up quinoa...cuz its gross....but just wanna know if it could cause that reaction.

psawyer Proficient

I eat it from time to time. It is a nice change of pace from all the rice and potatoes. I don't think it is gross at all. And it is gluten free and natural. However, I suppose you could be one of the people who react to it.

ianm Apprentice

I never had any reaction from quinoa but it is gross so I don't eat it. I read on a quinoa package that the plant produces a soap like substance as a natural insect repellent and can have a bitter taste.

Mango04 Enthusiast

Maybe I'm totally weird - b/c I think it's good! Did you rinse it really well before you cooked it? If not, it has this soapy coating that can make you really sick. It's some sort of natural pesticide that you have to entirely clean off before you cook it...and it tastes really bad if you don't get rid of it. A lot of the time when you buy quinoa that soapy stuff is already rinsed off though...so maybe that wasn't the problem. Hope you feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

I thought that the quinoa flakes were completely gross, but I like whole quinoa. Especially since it cooks so much faster than rice. Never gotten sick from it though.

hez Enthusiast

I have never gotten sick from Quinoa. However, as a hot cereal and pasta I think it is gross. I do like quinoa as a substitute for couscous.

Feel better soon!

Hez

psawyer Proficient

You do have to make sure it is thoroughly rinsed to remove any saponin (the soaplike coating) before preparing it. This may have been done before you get it, but I always put it in a strainer and run plenty of cold water through it to ensure that it is clean. When the water runs clear the saponin has been eliminated.

tarnalberry Community Regular

I eat it with no problems.

Merika Contributor

I like it but it makes me feel sort of bad, so I don't eat it anymore. :( When I did allergy tests one year post-gluten-free, I tested positive to every grain out there (except for wheat, rye, barley, oats, LOL - because I'd avoided them I suspect). I think if your insides are really messed up, any grain is hard to digest. In time, you may be ok eating them (like 3 years.....).

Merika

jenvan Collaborator

I eat with no issues...ate it last night-yum! :) I always cook it in a broth or seasonings like saffron.

marciab Enthusiast

I don't have any problems with quinoa, but brown rice tears up me up some times. marcia

Rachel--24 Collaborator
Maybe I'm totally weird - b/c I think it's good!

Yeah...you're TOTALLY weird! :lol::lol: j/k

apparantly there are a few of you weirdos on this thread. ;)

I'm not a picky eater and I even like the dry amaranth snaps but I just dont go for quinoa at all.

Did you rinse it really well before you cooked it? If not, it has this soapy coating that can make you really sick. It's some sort of natural pesticide that you have to entirely clean off before you cook it...and it tastes really bad if you don't get rid of it. A lot of the time when you buy quinoa that soapy stuff is already rinsed off though...so maybe that wasn't the problem. Hope you feel better.

I did not know it came with a soapy chemical on it. :huh:

Great....if I was gonna get sick I'd rather it have been pizza...not some soapy quinoa. Gross.

How do I know if the chemical was washed off or not? It was hot cereal (Ancient Harvest) and it was flakes not those little round things. I don't think I could have washed off the flakes because they were real tiny...they probably would have disintegrated or something. :unsure:

I wonder if residues could have gotten me sick since I am extremely sensitive to any chemicals? I think even a natural pesticide would definately make me sick.

jenvan Collaborator

I was curious on the "soap" so looked it up here. It said:

Open Original Shared Link

Preparation

Quinoa's survival through the millennia may be attributed to the resinous, bitter coating that protects its seeds from birds and insects--and also shields them from the intense high-altitude sunlight. This coating, called saponin, is soapy and must be removed in a strong alkaline solution to make the grain palatable. Most quinoa sold in this country has already been cleansed of its saponin. But quinoa should be rinsed thoroughly before cooking to remove any powdery residue of saponin. Place the grain in a fine strainer and hold it under cold running water until the water runs clear; drain well.

Sterndogg Apprentice

I like it as a substitute too for couscous and use chicken broth or beef stock instead of water for flavoring if having as a side dish with dinner.

Rachel--24 Collaborator
Quinoa's survival through the millennia may be attributed to the resinous, bitter coating that protects its seeds from birds and insects--and also shields them from the intense high-altitude sunlight. This coating, called saponin, is soapy and must be removed in a strong alkaline solution to make the grain palatable. Most quinoa sold in this country has already been cleansed of its saponin. But quinoa should be rinsed thoroughly before cooking to remove any powdery residue of saponin. Place the grain in a fine strainer and hold it under cold running water until the water runs clear; drain well.

Thanks Jen,

Maybe I should have washed the flakes...wonder if that would have helped. Well....now I know and I wont be eating them again....thats for sure. I bet it was residue that got me sick. I looked at the box and it says nothing about the saponin. I think if I was healthy it wouldnt have bothered me but my immune system is definately under some serious stress so it doesnt take a whole lot to make things worse.

Mango04 Enthusiast
Yeah...you're TOTALLY weird! :lol::lol: j/k

apparantly there are a few of you weirdos on this thread. ;)

hahahahahahaha :lol:

The only thing I don't like about quinoa is it's really hard to wash. Maybe I just don't have the right kind of strainer. Hmmm. Go figure we have to worry about strange soapy stuff being in the foods that are supposedly safe and naturally gluten-free. <_<

Rachel--24 Collaborator
Go figure we have to worry about strange soapy stuff being in the foods that are supposedly safe and naturally gluten-free. <_<

Yeah...I never woulda thought there was insect repellent on my cereal! What the... :blink:

jerseyangel Proficient
:D:D I bought a box of quinoa several months ago. I didn't know of a good way to make it, so I just kind of forgot about it. After hearing what everyone is saying, I don't think I'll be trying it anytime soon!
psawyer Proficient

Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

If the quinoa has been processed into flakes or some other form besides whole grain, then the saponin would have been removed. The caution only applies to whole quinoa, where some residue may remain.

Mango04 Enthusiast
Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

If the quinoa has been processed into flakes or some other form besides whole grain, then the saponin would have been removed. The caution only applies to whole quinoa, where some residue may remain.

Yeah definitely. It's just kind of a pain to wash when you buy the whole qunioa....but I still think it's really good. Actually thinking of making some tonight. :)

Rachel--24 Collaborator
Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

Yeah...I understood about it being a natural occuring chemical and not synthetic. I was just being silly about not wanting soapy insect repellent on my cereal. :lol:

Since I ate flakes I'm sure the saponin was washed out but can it really be 100% removed? All I know is I got really sick so its definately not worth it to me to eat it again...I mean, it's not like its chocolate or anything super yummy like that. ;)

psawyer Proficient

Rachel, I'm cool with what you said. I just didn't want anybody to think there was anything about whole quinoa what was not natural or organic.

Your body may have a problem with quinoa even if the saponin is completely removed.

Peace. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748

    AnneSN
    Newest Member
    AnneSN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.