Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Diseases In Families


chrissy

Recommended Posts

chrissy Collaborator

since celiac is related or connected to other autoimmune diseases, i was just wondering how many different ones you all have in your families? in my line, my grandfather had MS, my brother has type1 diabetes, my sister has PSC, and my niece has sjogren's syndrome. in my dh's line, his grandmother had rheumatoid arthritis and his aunt has diabetes. i think that i originally counted 8 related conditions in our families, but i can't remember them all.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I was wondering also about autoimmune diseases because I honestly -- know nothing. :blink:

All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll go look it up in my medical files to be more accurate. I really don’t know what it means; or how it affects my other health issues.

Lately I have been doing a family tree and in reading my grandfathers death certificate I see he had an autoimmune diseases along with some of the diseases – chrissy – posted.

jnifred Explorer

one thing to remember is that autoimmune diseases are so inter-related with symptoms that they can sometimes be almost impossible to diagnose. My rhuematologist once told me that sometimes it doesn't matter what you call it, they are almost all treated the same and what works for one person won't work for another, so we just had to experiment to see what worked for me.

You can be diagnosed with one thing and start to have symptoms of another and less symptoms of the problems you originally started with. I think the most important thing with auto-imune diseases is to take care of your body, eat healthy, exercise, get sleep and drink lots of water. I know for me that when I take care of myself in all those ways, I feel so much better, let one of them slide and I immediately notice a difference in my energy, etc.

2Boys4Me Enthusiast

My younger son has Celiac. My husband, older son and I don't have any autoimmune diseases (that we are aware of...we've all been tested for celiac).

Neither my Mom, Dad, brother or sister have any autoimmune diseases. My Mom's Mom and Grandfather had thyroid problems. Most of my maternal grandfather's brothers and sisters had diabetes (not sure what kind) and one died of stomach cancer.

I have very little medical info from my Dad's side of the family other than one of his brothers died of stomach ulcers (I don't really know what that means).

On my husband's side: his dad has MS and his mom has psoriasis (which I think is auto-immune).

lorka150 Collaborator

My mom has MS.

My aunt (her sis) has MS.

My uncle (her bro) has eyeritis.

My grandma (her mom) has hypothyroidism and fibromyalgia.

My grandpa (her dad) has heart disease.

My sister has MS. My sister has IBS.

My dad's side, we are pretty sure that he has celiac disease and perhaps his twin bro.

DonnaD Apprentice

I have fibromyalgia & Gluten sensitivity

My daughter: celiac disease

My Sister Dx Fibro & Gluten sens

My younger sister ? Same symptoms as me at her age.

My Mother rheumatoid arthritis

My Dad, Motor neuron - not sure about this being auto immune

Aunt (mum's sister) Rheumatoid A. died of ovarian cancer.

Uncle (mum's brother) died of leukemia (i think this is Auto Im)

My matermal grandfather died of 'ulcers'

Cousin on dads side: fibro

jenvan Collaborator

My mom hashimoto's, her mother had thyroid dis.

My dad, psoriasis

My brother, aplastic anemia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

My mom and brother were also recently diagnosed with celiac.

jerseyangel Proficient

My mom--Antiphospholipid Syndrome--an autoimmune clotting disorder (she has many symptoms of Celiac, including chronic anemia. Neg. blood test)

Cousin--MS

Mom's cousin--MS

StrongerToday Enthusiast

My father has type II diabetes and thyroid issues (his was removed 5 years ago). His mother also had her thyroid blow up to the size of an orange but refused to see a dr. My cousin has Chron's (she's on the other side of my family).

kabowman Explorer

These are just the Autoimmune that I know of:

Maternal Grandmother - Rhumatoid Arthritis, food intolerances (from discussing with family)

Maternal Aunt - Celiac disease, Lupus, Nurothopy, Rhumatoid Arthritis, sarcoidosis (sp)

Maternal Cousin - MS, Lupus

Mother - food intolerances, will not investigate, nuropothy, sarcoidosis (sp), allergies, Mortons neuroma

Patermal Grandmother - Lupus

Sister - food intolerances, just begining to investigate

Me - food intolerances, lichen schlorosis (docs keep thinking I may have lupus too)

carriecraig Enthusiast

My dad has psoriasis

elisabet Contributor

My son is allergic to almost everything and ,no one else in our family has any autoimmune condition.

TCA Contributor

Ready for this? this is all just my dad's side of the family.

Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues

grandfother: chronic ulcers

grandmother: thyroid issues (removed at around 35)

aunt: diabetes, severe allergies, thyroid issues, fibromyalgia

uncle: diabetes, severe allergies, milk sensitivities, fibromyalgiam, failure to thrive as infant

2 cousins: severe allergies, milk sensitivites, failure to thrive as infants.

aunt: rhuematoid arthritis

aunt: Thyroid issues

uncle: diabetes

great-grandmother: diabetes

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.