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Autoimmune Diseases In Families

chrissy

By chrissy
in Related Issues & Disorders

Recommended Posts

chrissy Collaborator
chrissy
Posted

since celiac is related or connected to other autoimmune diseases, i was just wondering how many different ones you all have in your families? in my line, my grandfather had MS, my brother has type1 diabetes, my sister has PSC, and my niece has sjogren's syndrome. in my dh's line, his grandmother had rheumatoid arthritis and his aunt has diabetes. i think that i originally counted 8 related conditions in our families, but i can't remember them all.

christine

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ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

I was wondering also about autoimmune diseases because I honestly -- know nothing. :blink:

All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll go look it up in my medical files to be more accurate. I really don’t know what it means; or how it affects my other health issues.

Lately I have been doing a family tree and in reading my grandfathers death certificate I see he had an autoimmune diseases along with some of the diseases – chrissy – posted.

jnifred Explorer
jnifred
Posted

one thing to remember is that autoimmune diseases are so inter-related with symptoms that they can sometimes be almost impossible to diagnose. My rhuematologist once told me that sometimes it doesn't matter what you call it, they are almost all treated the same and what works for one person won't work for another, so we just had to experiment to see what worked for me.

You can be diagnosed with one thing and start to have symptoms of another and less symptoms of the problems you originally started with. I think the most important thing with auto-imune diseases is to take care of your body, eat healthy, exercise, get sleep and drink lots of water. I know for me that when I take care of myself in all those ways, I feel so much better, let one of them slide and I immediately notice a difference in my energy, etc.

2Boys4Me Enthusiast
2Boys4Me
Posted

My younger son has Celiac. My husband, older son and I don't have any autoimmune diseases (that we are aware of...we've all been tested for celiac).

Neither my Mom, Dad, brother or sister have any autoimmune diseases. My Mom's Mom and Grandfather had thyroid problems. Most of my maternal grandfather's brothers and sisters had diabetes (not sure what kind) and one died of stomach cancer.

I have very little medical info from my Dad's side of the family other than one of his brothers died of stomach ulcers (I don't really know what that means).

On my husband's side: his dad has MS and his mom has psoriasis (which I think is auto-immune).

lorka150 Collaborator
lorka150
Posted

My mom has MS.

My aunt (her sis) has MS.

My uncle (her bro) has eyeritis.

My grandma (her mom) has hypothyroidism and fibromyalgia.

My grandpa (her dad) has heart disease.

My sister has MS. My sister has IBS.

My dad's side, we are pretty sure that he has celiac disease and perhaps his twin bro.

DonnaD Apprentice
DonnaD
Posted

I have fibromyalgia & Gluten sensitivity

My daughter: celiac disease

My Sister Dx Fibro & Gluten sens

My younger sister ? Same symptoms as me at her age.

My Mother rheumatoid arthritis

My Dad, Motor neuron - not sure about this being auto immune

Aunt (mum's sister) Rheumatoid A. died of ovarian cancer.

Uncle (mum's brother) died of leukemia (i think this is Auto Im)

My matermal grandfather died of 'ulcers'

Cousin on dads side: fibro

jenvan Collaborator
jenvan
Posted

My mom hashimoto's, her mother had thyroid dis.

My dad, psoriasis

My brother, aplastic anemia

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Rikki Tikki Explorer
Rikki Tikki
Posted

My mom and brother were also recently diagnosed with celiac.

jerseyangel Proficient
jerseyangel
Posted

My mom--Antiphospholipid Syndrome--an autoimmune clotting disorder (she has many symptoms of Celiac, including chronic anemia. Neg. blood test)

Cousin--MS

Mom's cousin--MS

StrongerToday Enthusiast
StrongerToday
Posted

My father has type II diabetes and thyroid issues (his was removed 5 years ago). His mother also had her thyroid blow up to the size of an orange but refused to see a dr. My cousin has Chron's (she's on the other side of my family).

kabowman Explorer
kabowman
Posted

These are just the Autoimmune that I know of:

Maternal Grandmother - Rhumatoid Arthritis, food intolerances (from discussing with family)

Maternal Aunt - Celiac disease, Lupus, Nurothopy, Rhumatoid Arthritis, sarcoidosis (sp)

Maternal Cousin - MS, Lupus

Mother - food intolerances, will not investigate, nuropothy, sarcoidosis (sp), allergies, Mortons neuroma

Patermal Grandmother - Lupus

Sister - food intolerances, just begining to investigate

Me - food intolerances, lichen schlorosis (docs keep thinking I may have lupus too)

carriecraig Enthusiast
carriecraig
Posted

My dad has psoriasis

elisabet Contributor
elisabet
Posted

My son is allergic to almost everything and ,no one else in our family has any autoimmune condition.

TCA Contributor
TCA
Posted

Ready for this? this is all just my dad's side of the family.

Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues

grandfother: chronic ulcers

grandmother: thyroid issues (removed at around 35)

aunt: diabetes, severe allergies, thyroid issues, fibromyalgia

uncle: diabetes, severe allergies, milk sensitivities, fibromyalgiam, failure to thrive as infant

2 cousins: severe allergies, milk sensitivites, failure to thrive as infants.

aunt: rhuematoid arthritis

aunt: Thyroid issues

uncle: diabetes

great-grandmother: diabetes

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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