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Guest DawterAod

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celiac3270 Collaborator

LOL......that's rather funny and ironic, Peg. :lol::lol::lol:


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  • Replies 117
  • Created
  • Last Reply
stargirl Apprentice

:D Bakersfield, CA

Laura

Guest Lindam
:rolleyes: I am from Lombard, Illinois. About 20 miles from Chicago. :)
  • 5 weeks later...
Sterndogg Apprentice

Boston (North End), MA

SOX Baby!!!

  • 3 weeks later...
Guest cowboy
How do you like this....I'm from Wheaton, IL

Peg

Me too!

I never made the connection WHEATon, Illinois until I saw your post.

darlindeb25 Collaborator
:lol: ashley michigan--hehe--try to find this needle in the haystack town :lol: hint--in the middle of the mitten---deb :lol:
celiac3270 Collaborator
Boston (North End), MA

SOX Baby!!!

I'm a New Yorker, but I 100% agree on the Bosox....this is their year....and you couldn't get a more perfect scenario than making a comeback to win four straight and take down the Yankees.......


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RavenFeather Newbie

Raleigh, North Carolina, Email me if your in the area, I would to love too meet another person with celiac disease besides my teacher.

Guest gfinnebraska
:D Auburn, Nebraska :D I would love to meet someone with celiac disease in my area ~ didn't see any other NE out there... :(
num1habsfan Rising Star

Saskatchewan, Canada

~lisa~

Guest sushi

Kaneohe, Hawaii

Susette

scudderkidwell Rookie

My husband and I are from Mouse country and Hurricane Central

Orlando, Fl. :rolleyes: Jean

cdobbs Rookie

Central Texas

christi

rattaway Newbie

Hey! We are located in Farmington, New Mexico. Looks like I am the most southwestern member here so far. Hope someone else is from the four corners area. Rian

Guest gliX

northern virginia

kschmitz Newbie

I'm from St. Louis, Mo. Go Cards!!!!

ks

llj012564 Newbie

Northern Minnesota ;)

Tim297 Newbie

I'm twenty minutes away from Cleveland, Ohio. Anyone else from this area?

burdee Enthusiast

Rachel: No, you're not the only one from Washington State. I live in Seattle, Washington, by Greenlake. We have lots of local celiac support groups in this area. Maybe few Seattle celiacs post on this site, because we have great local support. ;) However, I need all the help I can get. :lol:

BURDEE

pixiegirl Enthusiast

Cape Cod, MA

Susan

B)

stef-the-kicking-cuty Enthusiast

Carlisle (near Harrisburg), PA

snipe12 Rookie

I am from Yorkshire in England and I live in the countryside part.

WSLIZ Newbie

I am from West Springfield, Massachusetts

  • 2 weeks later...
leapingllama05 Newbie

Im from Kansas City and I'm 18. I'd love to talk to anyone around here. I need some help.

I'm more celiac than you Newbie
hey im from michigan it would be really nice to talk to someone from michigan with celiac disease the only people i talk to that have celiac disease are from canada (which there is nothing wrong with that) but it would be kinda nice to know there is someone that may live near you that is "like you" know what i mean? it would be really cool if some of us michigan people could swap email addresses or somethin! mines pippigirl32@hotmail.com email me when ever ya wanna i would love to hear from ya!

Julianne

PS if you are from a diff counrty or state thats cool i would still love to talk to you! Im always up for meeting new people! :D

I'm from ann arbor, michigan

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  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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