Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yay! Doctor Just Called With My 6 Month Results


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Food for Life


jerseyangel Proficient

Jillian--that is great news! :)

happygirl Collaborator

Way to go, girl! I'm proud of you :)

dlp252 Apprentice

Congratulations!!!!!! How exciting!

jenvan Collaborator

Great news--keep it up!

carriecraig Enthusiast

That's excellent news!

floridanative Community Regular

That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
GliadinX



Celiac.com Sponsor (A8-M):
Lakefront Brewery


jkmunchkin Rising Star
That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.

Thanks all!!

Floridanative - that all checks out with what I know. I only had the blood tests done which is the norm. at 6 months. They will not do another endoscopy on me for another year to 2 years. U of C is giving you correct info.

AmandaD Community Regular

Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.

jkmunchkin Rising Star
Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I've had the occassionally accidental glutenating but I have never purposely cheated if that's what you mean.

I think I've been glutened 3 times since going gluten-free. As a newbie I guess that's not bad for 6 months time, and obviously my blood tests agree :)

julie5914 Contributor

Are you going out to eat any? I am very careful, but my 6 month labs were horrible :(. Congrats to you though. My symptoms are definitely better, so I know it feels good to have progress.

jkmunchkin Rising Star
Are you going out to eat any?

Absolutely not!!! I am celebrating tonight with a flourless chocolate souffle that DH is making me. Complete with rasperry sauce and vanilla ice cream

:P

Rachel--24 Collaborator

Awesome!!!

So glad you're doing great on the diet. :)

tiredofdoctors Enthusiast

Congratulations! You must feel GREAT! . . . Lynne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,169
    • Most Online (within 30 mins)
      7,748

    Jewelzie
    Newest Member
    Jewelzie
    Joined

  • Celiac.com Sponsor (A20):
    Lakefront Brewery


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Food for Life



  • Upcoming Events

  • Posts

    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
    • Scott Adams
      Around 9% of celiacs cannot tolerate any oats, even gluten-free oats. It might be worth eliminating them for a few months, then get re-tested.
    • thejayland10
      I only eat certifed gluten-free products but a lot of which are processed. Could there be trace gluten in those or is that very unlikely? 
    • Scott Adams
      For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes (you may want to avoid oats):    
×
×
  • Create New...