Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yay! Doctor Just Called With My 6 Month Results

jkmunchkin

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Jillian--that is great news! :)

happygirl Collaborator
happygirl
Posted

Way to go, girl! I'm proud of you :)

dlp252 Apprentice
dlp252
Posted

Congratulations!!!!!! How exciting!

jenvan Collaborator
jenvan
Posted

Great news--keep it up!

carriecraig Enthusiast
carriecraig
Posted

That's excellent news!

floridanative Community Regular
floridanative
Posted

That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jkmunchkin Rising Star
jkmunchkin
Posted
  • Author
That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.

Thanks all!!

Floridanative - that all checks out with what I know. I only had the blood tests done which is the norm. at 6 months. They will not do another endoscopy on me for another year to 2 years. U of C is giving you correct info.

AmandaD Community Regular
AmandaD
Posted

Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author
Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I've had the occassionally accidental glutenating but I have never purposely cheated if that's what you mean.

I think I've been glutened 3 times since going gluten-free. As a newbie I guess that's not bad for 6 months time, and obviously my blood tests agree :)

julie5914 Contributor
julie5914
Posted

Are you going out to eat any? I am very careful, but my 6 month labs were horrible :(. Congrats to you though. My symptoms are definitely better, so I know it feels good to have progress.

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author
Are you going out to eat any?

Absolutely not!!! I am celebrating tonight with a flourless chocolate souffle that DH is making me. Complete with rasperry sauce and vanilla ice cream

:P

Rachel--24 Collaborator
Rachel--24
Posted

Awesome!!!

So glad you're doing great on the diet. :)

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Congratulations! You must feel GREAT! . . . Lynne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748
    terri migut
    Newest Member
    terri migut
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.