Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Microsensitivity Ever Get Better?


Guest BERNESES

Recommended Posts

Guest BERNESES

I have been thinking about this for a long time. I am extremely sensitive and I remember when I was first diagnosed my friend whose daughter has it said that after awhile your body adjusts and you don't react as sensitively to minute amounts of gluten. It's been a year for me and it has not. I'm starting to doubt it ever will. For the most part, I can't eat anything processed in a plant that processes wheat and I would say on average, I get "glutened" to some extent once a week even though I am eating a dedicated gluten-free diet. I can always trace the source back and it's always the same thing- the item doesn't actually contain gluten, but the plant did.

I've reacted to Amy's gluten free meals, Eden Organic refried beans, Blue Diamond Pecan thins, and many other things that only have one common link- gluten in the facility.

Has anyone ever had this initial sensitivity get better over time? Thanks, Beverly

PS Gone through all my body products, have hardly any gluten in the house.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



codetalker Contributor

I've been gluten-free for 10+ years now. Sensitivity has remained the same, which in my case means hypersensitivity. The slightest bit of gluten causes a reaction within 2-3 minutes.

As mentioned in other posts, I've given up on products made in shared facilities. Just too tired of getting sick.

In regard to the body adjusting, that may pertain to people who are not gluten-free at all. My own experience was that I seemed to have more pronounced reactions after going gluten-free, than before. Maybe that was what your friend was referring to.

Apologies for a less than encouraging post. Maybe you'll prove to be the exception.

hez Enthusiast

Since you keep getting glutened I would say that your body may not have had enough time. Does this make sense? :huh: I have heard from my doctor that over time I may not be as "sensistive" to gluten as I am now. But if I kept having cc issues than I might wonder if I have had enough time to heal. I hope I am making sense. I guess I am looking at the glass half full not half empty. Maybe you just need more time.

Hez

codetalker Contributor

I'm wondering if there might be an issue here with choice of words. Perhaps, "sensitivity" is not the applicable word.

To me, "sensitivity" refers to the likelihood that my body reacts to any amount of gluten. My experience is that it always reacts to even the smallest amounts of gluten. There are certain symptoms I have that always signal a gluten reaction. When this happens, I know my insides are being damaged.

On the other hand, I recognize that immediately after going gluten-free (10+ yrs ago), the slightest amount of gluten sent me into a tail spin: gas, bloating, cramps, D, depression, irritability. Today for the most part, those outward, visible symptoms are not as severe, especially if I take immediate action. They are more in the moderate to slightly severe range. They are still there and are still a problem. It's just that some of the edge has been taken off. For example, I can leave the house without always having to have Immodium in my pocket.

Perhaps that is what the doctor was referring to. Your body still reacts and damage is still done but the symptoms are not quite as severe.

Guest BERNESES

Codetalker- I didn't find your answer pessimistic at all. I just want to know what I'm dealing with. It's true- the micro amounts of gluten I do get from CC cause a reaction but it is not nearly as pronounced as if I were to ever eat a product that actually had gluten in it. The CC episodes are usually over in a day whereas a major episode would be much longer to recover.

But, can the small amount from CC (like 30 ppm) still cause damage? I have NO problem giving up processed foods from non-dedicated facilities if that is the case (not to mention I'm tired of feeling ill from cc). Thanks all, Beverly

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.