Undetectable antibodies but ongoing symptoms

[Z S]

I have GI symptoms of getting glutened for the past month or so. It's mainly thin, yellow stool that disintegrates as soon as it hits the water. My doctor tested my gluten antibodies and they were undetectable as I have been following the gluten-free diet really strictly. He also did stool work and blood work that came back normal. I also eliminated dairy and soy but saw little to no difference. I feel really frustrated because I have worked so hard on the gluten-free diet especially being at college; however, things aren't getting better. Anyone has had similar experiences or know what's going on?

[cyclinglady]

I would ask your doctor to order a HIDA scan to check your gallbladder.  A non-functioning gallbladder seems to be pretty common in celiacs.  My gallbladder used to work and not work over the years (decades) until finally it became infected.  It just could no longer squeeze to release the necessary bile to help digest any food.  I had no stones.  The HIDA scan checks the refractory rate.  Mine was 0%.  An ultrasound for me was useless.   

Non-functioning gallbladders are a family curse.  Seriously.   I went for years suffering because I did not fit all of the standard matrix: female, fair, fertile, fat and 40.  The most important was supposedly being fat which I was not.    My symptoms started in high school and I finally had surgery in my late 40’s.  In all fairness the HIDA was not around when I was younger.  Now when a family member complains of GI problems we all yell out “get a HIDA scan and get tested for celiac disease!”

Research it and perhaps EPI (Endocrine Pancreatic Insufficiency). 

Do not get “boxed” into a diagnosis.  Not everything is due to celiac disease.