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Thankagirl

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Thankagirl Rookie

I have been to this site thousands of times and not realized there was a message board. I found out about my gluten intollerance about 5 years ago and have struggled with my love of food verus feeling sick constantly. I am so glad you all are here to support and share.

My mom just found out she has the same problem and it seems like every one meet knows at least one person with this.

I look forward to meeting you all!

Sarah


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Rusla Enthusiast

Welcome to the board Sarah you will find lots of good information and recipes on this site.

floridanative Community Regular

Welcome Sarah - we're glad you found the board! I'm a newbie to the diet and after my biopsy I asked my Mother to get tested. She says she will (been looking for what's wrong for over two years to no avail) but she recently had a beach vacation and she also has a cruise coming up in the summer so I'm looking for that to be her next excuse as to wait to get tested. How did you get your Mother to get tested, if you don't mind my asking?

tarnalberry Community Regular

welcome to the board! I'm glad you found us. :-)

jerseyangel Proficient

Welcome, Sarah :)

plantime Contributor

Welcome to the board! We are always glad to help and listen, and especially glad to make new friends! :D

Canadian Karen Community Regular

Hi Sarah! Welcome to the board! There's a bunch of really great people here with a vast amount of knowledge about celiac. It's a great resource!

Karen


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penguin Community Regular

Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

maryn Newbie
Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

I am new too, and this is an awesome website. I am really excited to be able to chat withg people who understand. I have great friends, but unless yo go through it, you just don't understand. My son has been gluten-free for 4.5 years now. It seeems even hard to find a doctor who can really help. So, I am excited to be able to relate with people who can really relate. Thank You!

Thankagirl Rookie

thank you for your warm welcome!

How did you get your Mother to get tested, if you don't mind my asking?

My mom is a smart woman and knew from all I had been through that it was very likely that she had the same problem. She did it all on her own and is doing much better. She had gotten to an extrememe point before getting tested but the tests - as with me- weren't really conclusive. She started the diet and started feeling a lot better pretty quickly.

Sarah

elonwy Enthusiast

Thats awesome that your mom has gone Gluten Free. My mom also has, after inconclusive tests, and is miraculously feeling better. I think she's still fighting a little bit, but she's doing really well and has jumped right into gluten free baking, which is nice :)

Welcome to the forum, it can be an odd place sometimes, but its helpful and fun and uplifting as well.

Elonwy

Guest Robbin

Sarah, Welcome! I am somewhat new too, but I have been SO encouraged here!

--Elonwy--ODD is GOOD isn't it? Better than BORING, right?!!! Where else, besides maybe a nursing home, can you hear so many discussions on POOP?

happygirl Collaborator

haha, we Celiacs live in such a strange little bubble, don't we!

welcome to the board!

Thankagirl Rookie

HA ha ha ha!! You guys crack me up! I love boards like this - where everyone feels free to say what they need to say and can ask questions without being embarrassed!

:)

Sarah

Lollie Enthusiast

Welcome Sarah! You are always free to ask or say whatever you need to! That is what makes this board so great!

Good Luck!

Lollie

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      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
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