Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi - I'm New Here

Thankagirl

By Thankagirl
in Coping with Celiac Disease

Recommended Posts

Thankagirl Rookie
Thankagirl
Posted

I have been to this site thousands of times and not realized there was a message board. I found out about my gluten intollerance about 5 years ago and have struggled with my love of food verus feeling sick constantly. I am so glad you all are here to support and share.

My mom just found out she has the same problem and it seems like every one meet knows at least one person with this.

I look forward to meeting you all!

Sarah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Welcome to the board Sarah you will find lots of good information and recipes on this site.

floridanative Community Regular
floridanative
Posted

Welcome Sarah - we're glad you found the board! I'm a newbie to the diet and after my biopsy I asked my Mother to get tested. She says she will (been looking for what's wrong for over two years to no avail) but she recently had a beach vacation and she also has a cruise coming up in the summer so I'm looking for that to be her next excuse as to wait to get tested. How did you get your Mother to get tested, if you don't mind my asking?

tarnalberry Community Regular
tarnalberry
Posted

welcome to the board! I'm glad you found us. :-)

jerseyangel Proficient
jerseyangel
Posted

Welcome, Sarah :)

plantime Contributor
plantime
Posted

Welcome to the board! We are always glad to help and listen, and especially glad to make new friends! :D

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Sarah! Welcome to the board! There's a bunch of really great people here with a vast amount of knowledge about celiac. It's a great resource!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

maryn Newbie
maryn
Posted
Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

I am new too, and this is an awesome website. I am really excited to be able to chat withg people who understand. I have great friends, but unless yo go through it, you just don't understand. My son has been gluten-free for 4.5 years now. It seeems even hard to find a doctor who can really help. So, I am excited to be able to relate with people who can really relate. Thank You!

Thankagirl Rookie
Thankagirl
Posted
  • Author

thank you for your warm welcome!

How did you get your Mother to get tested, if you don't mind my asking?

My mom is a smart woman and knew from all I had been through that it was very likely that she had the same problem. She did it all on her own and is doing much better. She had gotten to an extrememe point before getting tested but the tests - as with me- weren't really conclusive. She started the diet and started feeling a lot better pretty quickly.

Sarah

elonwy Enthusiast
elonwy
Posted

Thats awesome that your mom has gone Gluten Free. My mom also has, after inconclusive tests, and is miraculously feeling better. I think she's still fighting a little bit, but she's doing really well and has jumped right into gluten free baking, which is nice :)

Welcome to the forum, it can be an odd place sometimes, but its helpful and fun and uplifting as well.

Elonwy

Guest Robbin
Guest Robbin
Posted

Sarah, Welcome! I am somewhat new too, but I have been SO encouraged here!

--Elonwy--ODD is GOOD isn't it? Better than BORING, right?!!! Where else, besides maybe a nursing home, can you hear so many discussions on POOP?

happygirl Collaborator
happygirl
Posted

haha, we Celiacs live in such a strange little bubble, don't we!

welcome to the board!

Thankagirl Rookie
Thankagirl
Posted
  • Author

HA ha ha ha!! You guys crack me up! I love boards like this - where everyone feels free to say what they need to say and can ask questions without being embarrassed!

:)

Sarah

Lollie Enthusiast
Lollie
Posted

Welcome Sarah! You are always free to ask or say whatever you need to! That is what makes this board so great!

Good Luck!

Lollie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,860
    • Most Online (within 30 mins)
      7,748
    Chastity Lynn
    Newest Member
    Chastity Lynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Refractory Celiac disease - what to do

      By RMJ · Posted

      Antibodies to Deamidated gliadin peptides.  It is another celiac antibody test. The main test is the one you had, TTG,  But a full panel will also include DGP IgA and IgG.  I was positive on all of them!
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @RMJ what is the DPG test? I think my doctor never had me do that 
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      Thank you @Scott Adams and @trents this is very helpful, and I think I have some solid ideas to bring to my doctor (corticosteroids, testing for chron’s, increasingly strict gluten-free diet)  @RMJ thank you this is definitely reassuring as well, I’m feeling frustrated and hopeless because I have gone through a similar progression of increasing strictness, and am now at a level similar to what you describe, but have not seen any changes in my blood results. I am now thinking to cut out processed foods altogether maybe with the help of a dietician? I’m also worried about cross contamination from the tables or microwave at my work (there is often free pizza and such sitting). It just feels so restrictive to not see or feel any results 
    • knitty kitty
      High IGA antigliadin, everything else normal, what does this mean?

      By knitty kitty · Posted

      Welcome to the Tribe!   Take the Celiac diagnosis and run with it! P.S.  Yes, adopting a gluten free diet is a big mental adjustment.  Many go through the five stages of grief.  Many are relieved to have a definitive diagnosis instead of being a walking medical mystery.    The forum here can help with lots of articles and years of experience to get you started on your Celiac journey.  Best wishes!
    • SMK7
      High IGA antigliadin, everything else normal, what does this mean?

      By SMK7 · Posted

      This was the advice from the GI physician:  "We discussed that your work-up is equivocal for celiac disease due to discordant serologies and biopsy results. As we discussed the gliadin DGP Ab IgA has a lower sensitivity (87%) and specificity (80-95%) for celiac disease compared to tissue transglutaminase Ag IgA (sensitivity of 95%, specificity of >95%, which you tested negative for). Your duodenal biopsies were normal; though in mild cases of celiac disease, affected areas can be patchy. While about 90% of individuals with celiac disease carry the HLA-DQ2 allele, many people in the general population also carry this allele without developing celiac disease.  In the context of some of your symptoms of GI upset, it's possible that you may have either irritable bowel syndrome, gluten intolerance, or a very mild case of celiac disease. As we discussed, sometimes we can attempt a high gluten diet for 6-12 weeks with a repeat EGD and biopsies. Or, you can treat this as if you had celiac disease by being gluten free and see if it helps with some of your other GI symptoms. We decided to take the second approach. In patients with celiac disease, we do monitor vitamin levels every year. We would also get a DXA scan to screen for osteoporosis. I have ordered these studies for this year; subsequent checks can be done via your primary care doctor's office."
×
×
  • Create New...