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Thankagirl

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Thankagirl Rookie

I have been to this site thousands of times and not realized there was a message board. I found out about my gluten intollerance about 5 years ago and have struggled with my love of food verus feeling sick constantly. I am so glad you all are here to support and share.

My mom just found out she has the same problem and it seems like every one meet knows at least one person with this.

I look forward to meeting you all!

Sarah


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Rusla Enthusiast

Welcome to the board Sarah you will find lots of good information and recipes on this site.

floridanative Community Regular

Welcome Sarah - we're glad you found the board! I'm a newbie to the diet and after my biopsy I asked my Mother to get tested. She says she will (been looking for what's wrong for over two years to no avail) but she recently had a beach vacation and she also has a cruise coming up in the summer so I'm looking for that to be her next excuse as to wait to get tested. How did you get your Mother to get tested, if you don't mind my asking?

tarnalberry Community Regular

welcome to the board! I'm glad you found us. :-)

jerseyangel Proficient

Welcome, Sarah :)

plantime Contributor

Welcome to the board! We are always glad to help and listen, and especially glad to make new friends! :D

Canadian Karen Community Regular

Hi Sarah! Welcome to the board! There's a bunch of really great people here with a vast amount of knowledge about celiac. It's a great resource!

Karen


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penguin Community Regular

Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

maryn Newbie
Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

I am new too, and this is an awesome website. I am really excited to be able to chat withg people who understand. I have great friends, but unless yo go through it, you just don't understand. My son has been gluten-free for 4.5 years now. It seeems even hard to find a doctor who can really help. So, I am excited to be able to relate with people who can really relate. Thank You!

Thankagirl Rookie

thank you for your warm welcome!

How did you get your Mother to get tested, if you don't mind my asking?

My mom is a smart woman and knew from all I had been through that it was very likely that she had the same problem. She did it all on her own and is doing much better. She had gotten to an extrememe point before getting tested but the tests - as with me- weren't really conclusive. She started the diet and started feeling a lot better pretty quickly.

Sarah

elonwy Enthusiast

Thats awesome that your mom has gone Gluten Free. My mom also has, after inconclusive tests, and is miraculously feeling better. I think she's still fighting a little bit, but she's doing really well and has jumped right into gluten free baking, which is nice :)

Welcome to the forum, it can be an odd place sometimes, but its helpful and fun and uplifting as well.

Elonwy

Guest Robbin

Sarah, Welcome! I am somewhat new too, but I have been SO encouraged here!

--Elonwy--ODD is GOOD isn't it? Better than BORING, right?!!! Where else, besides maybe a nursing home, can you hear so many discussions on POOP?

happygirl Collaborator

haha, we Celiacs live in such a strange little bubble, don't we!

welcome to the board!

Thankagirl Rookie

HA ha ha ha!! You guys crack me up! I love boards like this - where everyone feels free to say what they need to say and can ask questions without being embarrassed!

:)

Sarah

Lollie Enthusiast

Welcome Sarah! You are always free to ask or say whatever you need to! That is what makes this board so great!

Good Luck!

Lollie

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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