Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Goosebumps


MisterSeth

Recommended Posts

MisterSeth Enthusiast

On and off for the past 3-4 years I get these intense feelings of rage and despair that are usually provoked by trivial media. I don't throw tantrums or anything but I've been getting goosebumps a lot lately. Is it cabin fever or might it be celiac related?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

There is a lot of trivial media these days, isn't there! Nothing else on TV to watch that is new but the news and it is not very uplifting these days.

knitty kitty Grand Master

Found a couple of articles for you that mention thiamine deficiency and goosebumps.  Thiamine deficiency can trigger wonky fight or flight responses.  

I've had the goosebumps and the upsets that seem to come over trivial stuff.  High dose thiamine (benfotimine)  has helped me so much.  

https://www.hormonesmatter.com/asthma-a1at-deficiency-thiamine/

http://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

Hope this helps!

MisterSeth Enthusiast
20 hours ago, trents said:

There is a lot of trivial media these days, isn't there! Nothing else on TV to watch that is new but the news and it is not very uplifting these days.

i mean im getting provoked by reading about things instead of them happening in front of me. I had like 3 straight days where I wanted to dive down into hell and make sure Jim Jones is still suffering and that kind of thing. Not actually but I was angry about something that happened 52 years ago

MisterSeth Enthusiast
3 hours ago, knitty kitty said:

Found a couple of articles for you that mention thiamine deficiency and goosebumps.  Thiamine deficiency can trigger wonky fight or flight responses.  

I've had the goosebumps and the upsets that seem to come over trivial stuff.  High dose thiamine (benfotimine)  has helped me so much.  

https://www.hormonesmatter.com/asthma-a1at-deficiency-thiamine/

http://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

Hope this helps!

thanks, this is not the first time a thiamine deficiency has been connected to my problems. think its time i just get B1 pills and stop messing with this b100 because its not working

cyclinglady Grand Master

These are very trying times.  It is hard to determine what might be provoking your current symptoms without a full follow-up visit to your doctor.  If that is not possible now, focus on a strict clean gluten-free diet that is varied so that you are getting plenty of nutrition.  Taking supplements can be helpful if you actually have a deficiency, but it is best in my non-medical opinion, to find the root cause of those deficiencies.  Actively flaring celiac disease is one obvious reason, but you might have other unknown or yet to be identified illnesses.  

You were just diagnosed last Fall and it takes time to heal.  Seek some medical help when it is possible.  Doctors are offering teleconferencing and that can be a good place to start.  Follow-up care for celiacs is important!  

knitty kitty Grand Master
4 hours ago, MisterSeth said:

thanks, this is not the first time a thiamine deficiency has been connected to my problems. think its time i just get B1 pills and stop messing with this b100 because its not working

I Stayed on the B100 because you need all the eight B vitamins since they work together.  I didn't see benefits until I Increased my thiamine intake to 300mg or above.  And I  made sure I was getting enough magnesium because thiamine needs magnesium.  I also took Niacinamide in addition to niacin.  It's a different form the body can more easily use.  The B vitamins are water soluble and can't be stored in the body long.  The National Institute of Health has found no toxicity level for thiamine.  

Not professional medical advice. 

These are things that helped me.  

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MisterSeth Enthusiast
19 minutes ago, knitty kitty said:

I Stayed on the B100 because you need all the eight B vitamins since they work together.  I didn't see benefits until I Increased my thiamine intake to 300mg or above.  And I  made sure I was getting enough magnesium because thiamine needs magnesium.  I also took Niacinamide in addition to niacin.  It's a different form the body can more easily use.  The B vitamins are water soluble and can't be stored in the body long.  The National Institute of Health has found no toxicity level for thiamine.  

Not professional medical advice. 

These are things that helped me.  

 

 

not sure how it can be toxic if my damaged guts are absorbing lower amounts of it anyways

knitty kitty Grand Master

You're right, not all of the vitamins you consume will be absorbed.  But even with high dose thiamine, it's not going to cause toxicity just because it's in your system.  Excesses are excreted in urine.  I spread out my thiamine doses throughout the day and with meals.  

While damaged guts are struggling to absorb nutrients, I believe taking supplements to be beneficial.  Yes, the ultimate goal is to get all of the necessary nutrients from foods, but until the gut heals enough to absorb all the nutrients it needs, some extra help from supplements is beneficial in making recovery quicker.  

I would much rather take supplements that speed me along the path of healing than sit around ill for months or years while my body struggles to absorb needed nutrients.  I've done both.  Supplementation is a much better alternative for me.  

Posterboy Mentor

MisterSeth,

Knitty Kitty has given you good advise....it is form and frequency that matter most...and if it is the fat soluble form of Benfotiamine....you have the extra factor of timing.....

Timing matters...(Benefotiamine) needs food to help it be absorbed better....

Add Benfotiamine to your B-complex with meals or twice a day (Morning and Evening) works well....

And a Magnesium Citrate (always with meals) or a Magnesium Glycinate (anytime) and you will begin to notice a difference in about 3 to 4 weeks and a sustained difference in about 3 to 4 months...

Here is a longer explanation of it...I wrote in a comment on Thiamine...

Absorption happens in two ways...Active and Passive....here is nice article about it...

https://education.seattlepi.com/food-nutrients-bloodstream-osmosis-4574.html

I hope this is helpful but it is not medical advise.

Posterboy,

Posterboy Mentor
8 hours ago, MisterSeth said:

i mean im getting provoked by reading about things instead of them happening in front of me. I had like 3 straight days where I wanted to dive down into hell and make sure Jim Jones is still suffering and that kind of thing. Not actually but I was angry about something that happened 52 years ago

MisterSeth,

This research might help you...

https://www.researchgate.net/publication/276489128_The_Impact_of_Thiamine_Treatment_on_Generalized_Anxiety_Disorder

This fit me to a "T" once....I always worried over even the slighest thing someone said to me or worried it would be "bad" or have a "bad outcome".....I got better and you can too!

You might try some Zinc lozenges too....really help my "Anxiety"....they will become metallic tasting in your mouth when your mouth when you get enough Zinc.

I hope this is helpful but it is not medical advise...

Posterboy,

Posterboy Mentor

MisterSeth,

Here is link research that I left off entitled

"Understanding nutrition, depression and mental illnesses"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

This is why you shouldn't leave off your B-complex but take them morning and evening....

quoting there section on B-complex Vitamins...

B-complex vitamins

"Nutrition and depression are intricately and undeniably linked, as suggested by the mounting evidence by researchers in neuropsychiatry. According to a study reported in Neuropsychobiology,[42] supplementation of nine vitamins, 10 times in excess of normal recommended dietary allowance (RDA) for 1 year improved mood in both men and women. The interesting part was that these changes in mood after a year occurred even though the blood status of nine vitamins reached a plateau after 3 months. This mood improvement was particularly associated with improved vitamin B2 and B6 status. In women, baseline vitamin B1 status was linked with poor mood and an improvement in the same after 3 months was associated with improved mood.

Thiamine is known to modulate cognitive performance particularly in the geriatric population.[43]"

Again I hope this is helpful but it is not medical advise.

Posterboy,

MisterSeth Enthusiast

i think these are definitely the first things I'm going to do. it makes sense because I have a real anorexia problem (not nervosa) which has probably helped my health a lot those times i was exposed to harmful foods but probably puts me in a constant state of sub-clinical malnourishment. also the anxiety and loss of appetite made me turn to pot, which can have a complication called "cannibinoid hyperremesis syndrome" that essentially causes it to do the opposite of what you'd think and made me even worse. 

the pot initially worked like a charm though, made me grin like an idiot and made me eat lots of food

MisterSeth Enthusiast
2 hours ago, knitty kitty said:

You're right, not all of the vitamins you consume will be absorbed.  But even with high dose thiamine, it's not going to cause toxicity just because it's in your system.  Excesses are excreted in urine.  I spread out my thiamine doses throughout the day and with meals.  

While damaged guts are struggling to absorb nutrients, I believe taking supplements to be beneficial.  Yes, the ultimate goal is to get all of the necessary nutrients from foods, but until the gut heals enough to absorb all the nutrients it needs, some extra help from supplements is beneficial in making recovery quicker.  

I would much rather take supplements that speed me along the path of healing than sit around ill for months or years while my body struggles to absorb needed nutrients.  I've done both.  Supplementation is a much better alternative for me.  

yeah i was just saying because i was paranoid about nerve damage and medication instructions so i refused to take a second B100 on any days, when it sounds like I would need to take 5 a day for a month to start overdosing on the niacin and stuff

knitty kitty Grand Master
2 hours ago, MisterSeth said:

i think these are definitely the first things I'm going to do. it makes sense because I have a real anorexia problem (not nervosa) which has probably helped my health a lot those times i was exposed to harmful foods but probably puts me in a constant state of sub-clinical malnourishment. also the anxiety and loss of appetite made me turn to pot, which can have a complication called "cannibinoid hyperremesis syndrome" that essentially causes it to do the opposite of what you'd think and made me even worse. 

the pot initially worked like a charm though, made me grin like an idiot and made me eat lots of food

MisterSeth, 

I hope you find this article enlightening.  ?

 

https://www.ncbi.nlm.nih.gov/pmc/articles/pmc6741376/__sec1title

Heavy Cannabis Use Associated with Wernicke’s Encephalopathy

Posterboy Mentor

MisterSeth,

For some reason Knitty's link was broken....

I hope this one works....entitled "Heavy Cannabis Use Associated With Wernicke's Encephalopathy"

https://pubmed.ncbi.nlm.nih.gov/31523540/

Posterboy,

knitty kitty Grand Master

Oooh, sorry about that broken link.  Thanks, Posterboy for catching that!

Here it is again.

https://www.ncbi.nlm.nih.gov/pmc/articles/pmc6741376/

 

MisterSeth Enthusiast
23 hours ago, knitty kitty said:

MisterSeth, 

I hope you find this article enlightening.  ?

 

https://www.ncbi.nlm.nih.gov/pmc/articles/pmc6741376/__sec1title

Heavy Cannabis Use Associated with Wernicke’s Encephalopathy

scared the s$#& out of me. no i don't have brain damage, seen people who were "perma-fried" though

MisterSeth Enthusiast

goosebumps stopped mostly, it was probably CHS. loss of appetite in a job that makes me handle 10-20k kg of freight a day

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.