Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Scheduled


hollyd

Recommended Posts

hollyd Apprentice

Hi All,

I'm seeing a celiac specialist and he told me to eat 4 servings of foods with gluten in it per day for 2 weeks prior to my scope. (I am already eating gluten foods, he just wanted me to top up). Are there any foods that are more offending than others in the gluten category? Are whole grains more glutenous than non-whole grains? I want to make sure I get this right and get an accurate diagnosis.

Also, can they tell just by looking if the villi are damaged or do they not know until the biopsy results come in?

Any other advice for me? Scheduled for upper and lower scopes for March 31.

Thanks a lot!

Holly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

Hah, a couple of tablespoons of the vital wheat gluten we all seem to be afraid of :P

Get some whole wheat pasta and other whole wheat stuff. Eat cream of wheat and add wheat germ to it (it's actually pretty yummy!)

nikki-uk Enthusiast

I agree with ChelsE,

Whole wheat pasta (which is made from Durum Wheat) has a high content of gluten.

I am trying to top up my son's gluten content in his diet(waiting for biopsy) ,and where possible I try to stir some wheat flour into soups,casseroles and porridge.

Good Luck :)

mmaccartney Explorer

At least make it enjoyable!!!

How about Pizza, Beer, whole wheat bread, bagels, Oreo Cookies, croissants!!! Think of all those things that you have had cravings for, and INDULGE!

If you gotta hurt yourself, at least enjoy part of it!!!

hollyd Apprentice

Thanks everybody:-) So it sounds like whole wheat is worse than the other, maybe that's why I'm so sick, I only eat whole wheat except for pizza or the odd other thing.

I bought two boxes of muffin mix LOL, I'd miss those, I guess I should get some chocolate cake, bagels (but you can't get a decent one in Australia where I now live :-( ) but topping up with wheat germ is pretty bad (good now) eh?

I know beer is off the list for celiacs but is it a major offender? I hear you though, if I can't have any for the rest of my days I'm gonna get some in!!

Hmm, I just had a craving for cous cous and so bought a box, that is durum wheat. What about the macrobiotic thing - wheat gluten? I'm a vegetarian so I'd eat it if I could find it.

For the past several months I can eat anything and everything fattening and not gain one ounce. You wouldn't believe all I ate over the holiday period and I haven't even been active because I'm too low on iron and tired all the time. I have to admit I do like that part!

Thanks

Holly

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.