Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Aches And Pains


Moongirl

Recommended Posts

Moongirl Community Regular

did anyone get all sorts of aches and pains in and around the belly area the first few months of being gluten-free?? I feel like every other day i have a different type of pain or ache AND i feel like whatever i eat i get a burning sensation in my stomach!....at first they put my through CT scans, upper GI xrays, and blood tests, and found nothing, no acid reflux either! But could i have an acid problem in my stomach even if i dont have a reflux problem, my doc suggested prilosec, but i thought why do i need it if i dont have reflux? But now im thinking that i could just have a lot of acid in my stomach... :blink:

uff i feel like going gluten-free is like a detox program! (not that i have been to one, but i can only imagine)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

Moongirl Community Regular
Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

Lollie Enthusiast

Hey! I'm in the same boat! :blink: I have taken prilosec/neium for 10 years......Never really helped. ;)

I take a muscle relaxer, flexaril, if it gets too bad. I have tried the Levisnex-but it didn't really help. So sense I get back spasms from time to time I always have some muscle relaxers on hand. I would strongly advise you to stay clear of acid pump inhibitors,i.e. prilosec. When I had my upper endoscope they found small growths in my stomach. :huh: My GI said they were a side effect from years of prilosec. Needless to say, I no longer take those meds. I try not to eat pass 7pm and I try to keep it light. I have most of my problems at night. I sleep sitting up as well.

There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

penguin Community Regular
did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

I do get that, and since being gluten-free, it seems to be my first indicator that I've been glutened, because within a 1/2 hour I've got D.

I used levsin also, but like the bentyl much better. It doesn't give me a problem. I also take tylenol when it happens.

Moongirl Community Regular
There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

sure that would be great,

thanks

Lollie Enthusiast
sure that would be great,

thanks

Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Moongirl Community Regular
Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53

Uff that does make me mad too, but good looking out....if i dont have acid reflux, then why would they put me on it?! i dont need any more food limitations!

Lollie Enthusiast

i know! My doc actually told me about the growths in my stomach, said I didn't have acid reflux, but told me to continue taking the meds! <_<

i mean really, does that make any sense? Plus, I did more research into those acid inhibitors, and there are studies that say that extended use then stopping the drug, causes the pumps to over produce for a while, because they are trying to catch back up! ;) Good Grief! Anyway- I forgot to mention, you can use gaviscon to help with the acid- it just neutralizes the acid-doesn't stop you from producing. I have been off the prilosec/nexsium for 2months- and feeling better everyday and better then I had while on all those drugs!

Good Luck!

Lollie

elye Community Regular

Don't forget, some docs get a cut of the total amount of these big pharmaceutical products they prescribe. I read and hear all kinds of horror stories of patients being prescribed expensive drugs for very nebulous reasons...

Lollie Enthusiast

I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

angielackner Contributor

so um, what are "novel" foods...sorry if thats a dumb question. but i am on zantac...fairly high doses right now for the horrendous reflux i am having with my pregnancy...and i have been wondering if i am developing new food allergies right now as i have been getting a slightly ticklish throat the last couple of days...but it could also be the acid doing that i'm sure...but it feels like a lesser degree of how i feel when i have gluten, and i have not had any gluten lately, and this lasts all day...so i'm wondering whats up...i'll be asking my doc when i go in again next week...but now i'm wondering if the zantac is making all this happen in correlation with some other food.

angie

Moongirl Community Regular
I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

Unfortunately they are putting back on prilosec, b/c for some reason after my dx i started producing a lot of acid, and my stomach burns like he!! So i dont see much of another choice right now ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.