Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Aches And Pains


Moongirl

Recommended Posts

Moongirl Community Regular

did anyone get all sorts of aches and pains in and around the belly area the first few months of being gluten-free?? I feel like every other day i have a different type of pain or ache AND i feel like whatever i eat i get a burning sensation in my stomach!....at first they put my through CT scans, upper GI xrays, and blood tests, and found nothing, no acid reflux either! But could i have an acid problem in my stomach even if i dont have a reflux problem, my doc suggested prilosec, but i thought why do i need it if i dont have reflux? But now im thinking that i could just have a lot of acid in my stomach... :blink:

uff i feel like going gluten-free is like a detox program! (not that i have been to one, but i can only imagine)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

Moongirl Community Regular
Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

Lollie Enthusiast

Hey! I'm in the same boat! :blink: I have taken prilosec/neium for 10 years......Never really helped. ;)

I take a muscle relaxer, flexaril, if it gets too bad. I have tried the Levisnex-but it didn't really help. So sense I get back spasms from time to time I always have some muscle relaxers on hand. I would strongly advise you to stay clear of acid pump inhibitors,i.e. prilosec. When I had my upper endoscope they found small growths in my stomach. :huh: My GI said they were a side effect from years of prilosec. Needless to say, I no longer take those meds. I try not to eat pass 7pm and I try to keep it light. I have most of my problems at night. I sleep sitting up as well.

There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

penguin Community Regular
did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

I do get that, and since being gluten-free, it seems to be my first indicator that I've been glutened, because within a 1/2 hour I've got D.

I used levsin also, but like the bentyl much better. It doesn't give me a problem. I also take tylenol when it happens.

Moongirl Community Regular
There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

sure that would be great,

thanks

Lollie Enthusiast
sure that would be great,

thanks

Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Moongirl Community Regular
Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53

Uff that does make me mad too, but good looking out....if i dont have acid reflux, then why would they put me on it?! i dont need any more food limitations!

Lollie Enthusiast

i know! My doc actually told me about the growths in my stomach, said I didn't have acid reflux, but told me to continue taking the meds! <_<

i mean really, does that make any sense? Plus, I did more research into those acid inhibitors, and there are studies that say that extended use then stopping the drug, causes the pumps to over produce for a while, because they are trying to catch back up! ;) Good Grief! Anyway- I forgot to mention, you can use gaviscon to help with the acid- it just neutralizes the acid-doesn't stop you from producing. I have been off the prilosec/nexsium for 2months- and feeling better everyday and better then I had while on all those drugs!

Good Luck!

Lollie

elye Community Regular

Don't forget, some docs get a cut of the total amount of these big pharmaceutical products they prescribe. I read and hear all kinds of horror stories of patients being prescribed expensive drugs for very nebulous reasons...

Lollie Enthusiast

I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

angielackner Contributor

so um, what are "novel" foods...sorry if thats a dumb question. but i am on zantac...fairly high doses right now for the horrendous reflux i am having with my pregnancy...and i have been wondering if i am developing new food allergies right now as i have been getting a slightly ticklish throat the last couple of days...but it could also be the acid doing that i'm sure...but it feels like a lesser degree of how i feel when i have gluten, and i have not had any gluten lately, and this lasts all day...so i'm wondering whats up...i'll be asking my doc when i go in again next week...but now i'm wondering if the zantac is making all this happen in correlation with some other food.

angie

Moongirl Community Regular
I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

Unfortunately they are putting back on prilosec, b/c for some reason after my dx i started producing a lot of acid, and my stomach burns like he!! So i dont see much of another choice right now ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.