Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Face


gointribal

Recommended Posts

gointribal Enthusiast

I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

are you possibly allergic to something else?

I mean, yeah, it's possible it could be from gluten, stranger things have happened.

francelajoie Explorer

Did you eat nuts, peanuts, unusual fruit, or anything different from what you usually eat?

I get a swollen face from eating pineapple...I'm allergic to the peel.

Guest Robbin

I get swollen hands and face, especially cheeks and around the eyes. I thought I was just weird, though maybe it is an allergy, too. Even when the D was so bad, I would have a swollen face. I'm still pretty new at this and keep getting gluten accidently. Caramel color seems to be a big one for me. Take care :)

jerseyangel Proficient

When I have a gluten reaction, I get a little puffy, like I'm retaining water. In my case, it's all over, especially in my face and hands. My neurpoathy also gets worse and that involves the left side of my face. Do you feel any numbness or tingling in your face?

gointribal Enthusiast

Carmel color, that might have been it. Thats the only thing that sticks out, I've never had a promlem with nuts before. Oh and my hands where sooo puffy, I could hardly get my rings on and yes I do have a slight tingle in my face.

sspitzer5 Apprentice
I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o

My eyes get swollen sometimes, especially my left one. I thought it might be gluten, but sometimes it seems swollen and I don't have any other symptoms. So, maybe it's an allergy to something else?

S


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NOBREAD4ME Rookie

I get swollen hands and face, especially cheeks and around the eyes. I thought I was just weird, though maybe it is an allergy, too. Even when the D was so bad, I would have a swollen face. I'm still pretty new at this and keep getting gluten accidently. Caramel color seems to be a big one for me. Take care :)

I was told I have Celiac today. My stoll was tested and aparently I am Gluten Intolerant. Im shocked and unbelieving. My haed hurts a lot, vision difficulty sometimes almost like a alergic reaction. im wondering if anyone else feels this way. i have never broken bones and this is all so new and confusing, please help me. Summer

Guest BERNESES

gointribal- I get one bump above my right eye. I call it my "glutenometer". If I wake up in the morning and it's puffed out, then I know something snuck past "security". I've been tested for allergies (70 allergens total) and i am allergic to nothing. So, I'm pretty sure that little swelling above my eye is gluten.

  • 2 years later...
Aga28 Newbie

Hello everybody! I am new to all this. Went gluten free 6 m ago,went back to gluten and noticed how horrible I felt. One cookie made me stay in bed the whole weekend.

Just wanted to ask you guys if it is a safe idea to cut off all the grains. I am nutrition student and it has been said that we do need grains for proper brain function. Any ideas?

Also have very loow BP 70/50 :(

ravenwoodglass Mentor
Hello everybody! I am new to all this. Went gluten free 6 m ago,went back to gluten and noticed how horrible I felt. One cookie made me stay in bed the whole weekend.

Just wanted to ask you guys if it is a safe idea to cut off all the grains. I am nutrition student and it has been said that we do need grains for proper brain function. Any ideas?

Also have very loow BP 70/50 :(

Welcome Aga, we really can do fine with minimal grain in our diets. Some people eliminate it completely. Most celiacs can tolerate nongluten grains like rice, millet, quiona, buckwheat wild rice etc. As far as the need to have grains for brain function remember that we heavily fortify or grain foods in this country. That may be where the concern that someone would be deficient if they gave up grains came from. You can get the nutrients you need from other sources and also the fiber. You should grab your text and look for the appendix that has the nutritive values of different foods. There you will be able to look at the nutrients and fiber contents and compare them with what you would otherwise be getting if you were eating the gluten grains. If your book by chance does not have one there are good ones available all over. Something that may also help with your brain and nerve function would be a sublingual B12 supplement. Many of us can not utilize this B from our diet or swallowed supplements.

I would suggest also that you post this query in a new post, more people will be able to see it and you'll get more replies.

  • 1 year later...
alissar Contributor

I found out I have Celiac two months ago. I was waking up every morning with swollen hands and severely swollen eyelids/puffy face and thats actually how I found out I have Celiac. I would never have gone to the dr's otherwise. I never associated the swelling with my GI issues (I was told I had IBS/lactose intolerance). The only thing I have changed in the past two months is not eating gluten and my swelling has diminshed by about 90%/sometimes gone completely. However, if I go out to a restaurant, it comes back full force and takes about a week to go down again. I definitely believe the swelling is due to gluten. Hope this helps!

Fey Rookie

I found out I have Celiac two months ago. I was waking up every morning with swollen hands and severely swollen eyelids/puffy face and thats actually how I found out I have Celiac. I would never have gone to the dr's otherwise. I never associated the swelling with my GI issues (I was told I had IBS/lactose intolerance). The only thing I have changed in the past two months is not eating gluten and my swelling has diminshed by about 90%/sometimes gone completely. However, if I go out to a restaurant, it comes back full force and takes about a week to go down again. I definitely believe the swelling is due to gluten. Hope this helps!

When I was 15, I started having this issue that involved puffy joints at first, which then led to puffiness through my body - usually after eating mall food. Sometimes it was just hands and feet, and I'd get this dizzy feeling then swell up. Sometimes my entire body would swell up. The swelling would get worse in the sun or heat, while the joint pain would prevail in the cold.

My "tentative" diagnosis back then was Lupus, because of the joint pain, positive ANA, high SED rate, anemia, etc. Then it went away, I got better (with ups and downs, but nothing as extreme) until I turned 19 and had a huge Lupus flare (after moving out and cooking for myself... lots of gluten) and got officially diagnosed with Lupus.

Now that I found out about celiac, I can link all of my SLE flares to changes in eating habits. It was a month-long migraine with nausea and swelling in my extremities that finally made me gluten-free diet!

  • 1 year later...
Linka Newbie

Hi... I'm new here. I've been (mostly) gluten free for over a year now after a lifetime of struggles with symptoms including canker sores, hives, indigestion/heartburn, bloating, gas...etc.

I've been avoiding eating anything that I don't have complete ingredient and nutritional info for but last night I gave in and had a McDonald's Strawberry milkshake as I drove home after work. I awoke this morning with an EXTREMELY puffy face and bloated stomach. (My 14 year old daughter was aghast when she saw me first thing this morning.)

I can't find any conclusive info relating to gluten content in McDonald's shakes... Can anyone provide me with evidence that the milkshake caused my reaction and that it is related to my gluten intolerance?

Another thought..... Has anyone here wondered if undiagnosed gluten intolerance/celiac disease has contributed to eating disorders??

Hawthorn Rookie

I can't find any conclusive info relating to gluten content in McDonald's shakes... Can anyone provide me with evidence that the milkshake caused my reaction and that it is related to my gluten intolerance?

Another thought..... Has anyone here wondered if undiagnosed gluten intolerance/celiac disease has contributed to eating disorders??

With regards the milkshake.....could be a cc thing. All those breadbuns and sticky gluteny fingers. I would think it's highly possible that even if the shake itself was gluten-free, the hands handling the cup/lid probably are not.

Eating disorders. I have wondered about this since I have had issues with this myself. I had a lot of mental health problems, all of which seem to have cleared up gluten-free. Did a gluten challenge recently and they all came back.

I certainly get food cravings after a glutening. It's weird.

  • 4 months later...
drjlgphd Newbie

I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o

When I'm glutened my whole face swells or gets puffy but only my left am swells. I mentioned this to a friend who is a family physician and she said it's probably a build up of lymph fluid somehow triggered by my body's reaction to gluten.

Kamma Explorer

I always get swollen legs, hands, face and my left eye sags. I put this down to salt intake as it always happened the day after I ate salty foods.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,638
    • Most Online (within 30 mins)
      7,748

    Clilly
    Newest Member
    Clilly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Good point, as thyroid conditions are more common in those with celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
    • Scott Adams
      @DebD5 it sounds like you are in the super sensitive celiac disease zone--and if so your reactions are real, and not psychological, as your doctor implied.  It's also possible you have other dietary triggers so be sure to look at that article in my last post in this thread.
    • DebD5
      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is  85% better. I’m actually losing weight which, that’s a long story but was impossible. I definitely am like you. Thank you so very much for posting. For some of celiacs I do believe this is the magic key. 
    • DebD5
      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
    • DebD5
      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked sooner and fixed through medication, maybe things would look different. Who knows. I only share my experience so you question your doctors and advocate. Always see an endocrinologist for thyroid care fyi. Actually always see the specific Dr for your specific ailments. I’d also consider seeing a gynecologist that specializes in female hormones/menopausal symptoms. Early ovarian failure happens in celiacs so I read  on the celiac disease center in Chicago website. 
×
×
  • Create New...