Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Foot Pain

guy220d

Recommended Posts

guy220d Rookie
guy220d
Posted

One of my more persistant symptoms is pain in the bottom of my feet. I haven't read much about others at this forum who complain about foot pain, but there is Anne Luther's account of neuropathy in her feet at csaceliacs.org and I think another account at Clan Thompson. Does anyone else suffer from achy feet? How long does it last after going gluten-free? I've been off gluten (with some mistakes) for about 9 weeks. [ I used to love walking and hope to enjoy it again soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hang in there! I have neuropathy--and had a lot of pain on the bottom of my feet. It probably took 6 months or so before it went away. Even now when I get the tingling and numbness, I don't get that pain anymore.

mouse Enthusiast
mouse
Posted

I was just diagnosed with neuropathy in my feet. The ball of the foot and toes have electrical impulses and numbness, but no pain. I honestly don't remember if I had pain before. I have been gluten-free for two years.

Guest MyKidsMom
Guest MyKidsMom
Posted

I have pain across the top of my feet and my ankles and knees always feel swollen. Not sure if this is the same kind of pain...and I don't know what neuropathy is. I will look it up. But for me I have found taking a calcium supplement with magnesium has helped a lot. I have been moving towards gluten-free for 5 months now.

sparkles Contributor
sparkles
Posted

I have diabetic neuropathy and also dietary neuropathy. The neurologist that I see found a B12, B1, and B6 deficiency. I have been on the B12 shots and have been taking vitamins for the B1 & 6 deficiency. I have been on the shots for about 5 months. I also started a nueropathy drug at the same time and the pain in feet and legs has lessened a great deal. I do floral design in a large craft store so I am on my feet a great deal and never would have made it through the holiday season this year if my legs and feet had not improved greatly. I used to walk but still cannot walk a lot. I am hoping that someday I will be able to do that again but for right now I am pleased that I can stand and walk as much as I do. I will have the B1 & 6 checked again soon as they may not be able to be absorbed correctly. I am not sure if shots are given but I am thinking that there must be some kind of liquid supplement. Have your doc do vitamin testing. I think that this is sometimes overlooked when one is diagnosed and since the villa is where all the vitamins and minerals are absorbed, supplements may have to be given because we cannot absorb the correct amount for everything to work right because of permanent damage or unhealed damage to the villa.

crlariviere Newbie
crlariviere
Posted

My husband Ralph was diagnosed with Celiac Disease over 5 years ago. He has severe pain bottom of his feet and ankles. His hands are always sore and stiff..of course, his fingernails are terrible looking and peel. A few of them even came off and regrew.

He gets extremely tired and is awake 5 hours sometimes even less a day. Not only that, he has severe psoriasis.

Finally found a few doctors who deals with Celiac disease in Maine. No one in my family or his realize the pain that this man has been going through.

Are there other people out there that feel the same as my husband..and now that I do have a name for my husbands problems for his feet, will look it up and see what his doctor says.

thanks

  • 3 weeks later...
jendamiano Newbie
jendamiano
Posted

Hi! My father has been going to doctors for years with "burning feet" and test after test found nothing. He was diagnosed with neuropathy in his feet. Do you think that it is possible that all of this could be from celiac disease? Three of my kids have celiac and I am going to be tested myself soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Hi! My father has been going to doctors for years with "burning feet" and test after test found nothing. He was diagnosed with neuropathy in his feet. Do you think that it is possible that all of this could be from celiac disease? Three of my kids have celiac and I am going to be tested myself soon.

It is genetic so there would be pretty good odds that he may have at least a gluten sensitivity or intolerance. Or have him go gluten-free for 3 weeks and see if there's improvement. Or is he one of those that won't do it w/o a dr's say so?

Annette

jendamiano Newbie
jendamiano
Posted

He has tried everything else so I hope he'd be willing to try this! He said he did have a blood test done that came back negative. I believe at the time he was trying to avoid yeast so therefore he was not eating breads, crackers, etc. so I'm sure that would mess up the results of the test. My sister is being evaluated for celiac also so I would have to bet that there is a pretty good chance that he probably has some form of gluten intolerance etc.

He's a tough one to convince to try it, but if the doctor suggests some more tests he's there right away!

Have a great night!

Guest Robbin
Guest Robbin
Posted

I have had this problem for a long time and in the past year the pain has gotten extremely bad in the heels of my feet. Sharp pain in the morning especially and I had to get those gel-type heel inserts for my shoes. Thank you all for sharing your symptoms and giving me hope that it will lessen. I hope to be able to walk again around the neighborhood with my lazy dog. :)

  • 3 years later...
marta Newbie
marta
Posted
One of my more persistant symptoms is pain in the bottom of my feet. I haven't read much about others at this forum who complain about foot pain, but there is Anne Luther's account of neuropathy in her feet at csaceliacs.org and I think another account at Clan Thompson. Does anyone else suffer from achy feet? How long does it last after going gluten-free? I've been off gluten (with some mistakes) for about 9 weeks. [ I used to love walking and hope to enjoy it again soon!

hi!! i am new to this, i tested negative on the bloodwork for celiac, and am scheduled for the biopsy in a few wks, because of gas and bloating, in which i was always gassy and bloaTED FOR years, but never knew why, thought it was just the foods i was eating, could never figure out which foods though!! . THE BIGGER PROBLEM IN MY LIFE IS ACHY FEET!! I STARTED 2 YRS AGO, AND DOCS SAID IT WAS TARSAL TUNNEL IN BOTH MY FEET, WHICH IS NOT COMMON. I STARTED WITH ACHY FEET, THEN IT WAS MORE LIKE A BURNING TINGLING FEELING, WHICH WAS TOTALLY WORSE!! GOT CORTISONE SHOTS, PHYSICAL THERAPY, ORTHODICS (WHICH WERE TOO PAINFUL TO WEAR) WHAT HAS HELPED ME A LITTLE IS ACUPUNCTURE, AND CHIROPRACTIC. but still its 2 yrs since this started, I AM ONLY 42 AND STILL CANNOT WALK AROUND THE BLOCK, I WAS ALWAYS VERY ACTIVE, UP TILL 2 YEARS AGO. i want to be able to keep up with my boys ages 7 and 9. Sometimes i make dinner sitting on a stool in my kitchen, which the stool has become a permanent fixture, so i can sit on it while doing dishes or cooking!! i always have to use a motorized ride on cart, when i go food shopping, or to the zoo, with the kids, or Halloween trick or treating! i do not have any weight problems, i am 5 ft 116lbs, and have always been!! its so weird!

Twiggy Rookie
Twiggy
Posted

My feet get unbelievably sore...nothing to see..just really tender.It feel likes the foots padding has worn away and im walking on bare bone.Also my toes and feet tingle like they coming round fron anathetic...like how your mouth feels after dental numbing...nerves are numbed.Ankle and achillies tendons are so stiff when i wake/have sat for a while that i have to manipulate them to get going again.I also seem to be palagued with hard skin on the soles of my feet too at the moment,dont know if anyone can relate to this ?I also suffet terrible bone pain in my shins and cramp in my calfs....at night/on waking and stretching out

Lisa Mentor
Lisa
Posted

I have always heard that when you suffer from malabnortion, your body steals from the available fat storage in your bottom and the pads of your feet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    2. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    3. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    4. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety

      This article, and the comments below it, may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,809
    • Most Online (within 30 mins)
      7,748
    Taraceliacmama
    Newest Member
    Taraceliacmama
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.